Maggie Larché
@CSRG2022
Foster collaborative studies in the disease of Systemic Sclerosis and to raise awareness.
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Today on the International Day of Persons with Disabilities, we recognize the impact systemic sclerosis (SSc) can have on daily function. Advancing SSc research—early detection, treatment, and multidisciplinary care—is key to reducing disability and improving long-term outcomes.
Employment concerns often show up in the exam room, even when they aren’t the main reason for the visit. How do you support these conversations in your practice?
This Thanksgiving, we are especially grateful for our incredible community of medical professionals, researchers, and partners dedicated to treating and supporting patients with systemic sclerosis. Thank you for your compassion, expertise, and commitment!
We’re excited to announce the relaunch of the Canadian Scleroderma Research Group (CSRG) — now redesigned with a new protocol and several important updates. Whether you’re joining for the first time or returning as an active site, we look forward to having your team on board.
Suicide prevention is part of whole-patient care. On World Suicide Prevention Day, how do you open space for mental health in your systemic sclerosis practice?
⏰ It’s National Be Late for Something Day — but don’t be late in spotting the early signs of systemic sclerosis (SSc). Early detection = better outcomes. 💙
👋 The CSRG team wants to hear from YOU—our colleagues in rheumatology, medicine, and pharma! We’re looking for your ideas on what you’d like to see featured on our social media channels.
At CSRG we are turning hard facts into groundbreaking insights — our biobank is where tough samples meet cutting-edge science.
📢 CSRG has Reached 100+ Publications on Scleroderma 📢 We’re proud to share that the Canadian Scleroderma Research Group (CSRG) has published over 100 peer-reviewed research papers focused on scleroderma.
📊 What is CSRG? Canadian Scleroderma Research Group (CSRG) is a national, multi-center research initiative dedicated to improving the lives of people living with SSc. Through cuttingedge research and collaboration, we’re helping to uncover new insights into this complex disease.
June 29 - World Scleroderma Day: CSRG is thankful for all the patients who share their time by participating in research studies.
See this Instagram video by @sclerodermacan instagram.com/reel/DLQV1QEPl…
instagram.com
Scleroderma Canada (@sclerodermacan) • Instagram reel
Scleroderma Canada (@sclerodermacan) • Instagram reel
CSRG is set to Make a Move across Canada! Find your local event this weekend and have some fun while raising funds :)
💊 Immunosuppression in early SSc—a growing trend? New data shows a rise in early treatment. Is the field shifting toward earlier intervention to change long-term outcomes?
CSRG is proudly funded partially by Scleroderma Canada! Come Make A Move with us as we raise essential funds for research. Find a walk near you!
Clinicians — how often do you ask about work when seeing your patients with systemic sclerosis? 🩺💼 This 2009 article by Hudson et al. found that nearly half of SSc patients were work-disabled early in their disease course. 👉 jrheum.org/content/36/11/…
🔬 Research Highlight from CSRG! Can simple blood tests help predict serious heart and lung complications in systemic sclerosis? Read more about how this could change early detection and care. 👇 pmc.ncbi.nlm.nih.gov/articles/PMC89…
Celebrating Volunteer Week at CSRG! This week, we're proud to celebrate Volunteer Week, a time to recognize and thank the incredible individuals who contribute their time and skills to help our community thrive.
📰 Article Highlight Check out this fascinating new research exploring patterns of disease progression in systemic sclerosis. Using a unique modeling approach, the study offers fresh insights into how damage unfolds over time.
🫁 CSRG Research Feature Interstitial Lung Disease (ILD) is a serious complication in systemic sclerosis. CSRG research is helping us better understand its impact and improve outcomes for people living with this condition.
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