Sickle Cell Disease Coalition
@ConquerSCD
The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
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Want a sneak peek of the #SCD Stakeholder Database?: bit.ly/3VgN9g4 Make sure you fill out the survey for your organization to be included: bit.ly/4au6iAw
📅 Calling all SCDC Members & sickle cell orgs! Share your upcoming events & resources for our Nov-Dec calendar & newsletter. No rush—our office is closed for Veterans Day 🦅, so you’ve got extra time! 📩 Send submissions: [email protected]
November is National Marrow Awareness Month! For those with Sickle Cell Disease (SCD), a blood or marrow transplant can be life-changing. Learn how transplants work for SCD from our partner, NMDP: ow.ly/xhVX50XmHRY
Excited to join Bluesky! 💙 The SCD Coalition is all about connection. Join us to share events, resources, and conquer SCD together! Say hello! ow.ly/ZBpG50XmByY
🎃🩸 Halloween Tips for Sickle Cell Disease — Part 2 🩸🎃 3️⃣ Take breaks while trick-or-treating. 4️⃣ Balance sweets with healthy snacks. 5️⃣ Have a cozy backup plan for home fun. Stay safe and enjoy!
🎃🩸 Halloween Tips for People with Sickle Cell Disease — Part 1 🩸🎃 1️⃣ Stay warm! Layer up under your costume to avoid cold-triggered crises. 2️⃣ Hydrate like a potion master — carry water and sip often. More tips coming soon! 💜 #SickleCell #SpookieSCD #HalloweenTips
⏳ Missed a session at the 2025 Sickle Cell Disease Annual Summit? No worries — the platform is still open! Log back in to catch up or revisit your favorites before it closes here ow.ly/2GWj50X7YRW Don’t miss out on valuable insights and resources. #SCDSummit2025
🫁 October is #HealthyLungMonth. For people with #SickleCellDisease, lung issues like Acute Chest Syndrome can be life-threatening — yet often overlooked. Lung health must be part of the care plan. 📘 Check out @CDCgov’s Lung Health Toolkit: 🔗 ow.ly/1gLS50X7YHt #SCD
📣 Got an event, resource, or opportunity to share with the #SickleCell community? Send it to us by Wednesday afternoon to [email protected] and we can feature it in our Friday newsletter! Let’s keep each other informed and connected. #SCD e #Newsletter #FlashFriday
🧬 1 in 10 people with #SickleCellDisease in the U.S. are Hispanic/Latino. @SickCells is leading Spanish outreach. Let’s honor #HispanicHeritageMonth by lifting every voice impacted by SCD! #LatinxHealth #SickleCell ow.ly/XZUi50X7THH
💚 Living with #SickleCellDisease means more than pain — it brings anxiety & isolation. Check out @CayenneWellness for free mental health services in CA! 🌐 ow.ly/EKFv50X7Tny for wellness tools.
At the summit, Dr. Victor Montori shared a powerful message on empathy in patient-centered care. Join us! Learn more: ow.ly/eCN850X7Sz0 #PatientRevolution #SickleCell #VictorMontori #WhyWeRevolt #SCDCSummit2025
At the summit, Dr. Victor Montori shared a powerful message on the Patient Revolution for kind care. Learn more: ow.ly/KrwF50X7Sib #PatientRevolution #SickleCell #VictorMontori #WhyWeRevolt #SCDCSummit2025
Thanks to everyone for making the 2025 SCDC Annual Summit unforgettable! 💬🤝🩸 Let’s keep building! #SCDSummit2025 #SickleCell #CommunityVoices #CoalitionWork 📝 Missed the survey? We’d love your thoughts: ow.ly/13nz50X7P6x
Meet Our Summit Moderator: Heather Avant 🎤 A passionate advocate for the sickle cell community and Chair of the NHLBI Cure Sickle Cell Initiative Panel. Join us for her insights at the Summit! #SCDCPartner #SCDCSummit2025
Our Blood Donor Diversity National Sickle Cell Awareness Month Toolkit is here! ✅ Fast facts ✅ Myths vs facts ✅ Patient stories ✅ Customizable graphics 📥 Download: ow.ly/7QlE50WWaCQ Want to learn more? Apply to join the Coalition: ow.ly/uvC250WWaE1
We’re excited to attend the 2025 SCD Educational Summit by Cayenne Wellness Center, Sept 17–20! 👀 Spot Ivy by the pop of pink in the crowd — and don’t forget to ask for a pin! 💗 #SCDSummit2025 #SickleCellAwareness #SCD
👀 Here’s a look at the exclusive 2025 SCDC Summit gear — designed just for attendees! 🎁 Gear will be available to registered attendees with a redemption code. #SCDCSummit2025 #SCDCommunity #SummitMerch #SCDC
🗓️ Only 2 days left! Join the SCD Coalition Peer Learning Exchange on Sept 11 at 10am EST / 3pm GMT. Hear from patient leaders & drive change. Register: ow.ly/WbVQ50WTjAc #SickleCell #SCD
Sickle Cell Awareness Month is here! 🩸 Take a look at some of the key events happening across the sickle cell community this September. 📅 View the full calendar: ow.ly/LE1M50WS5ZA 🔁 Share & help spread awareness. #SickleCellAwarenessMonth #SCD #SickleCell"
We’re ONE MONTH out from the 2025 SCDC Summit — and registration is officially OPEN! And yes, we’re back on Whova! Our members loved the experience. Connect with others, and personalize your Summit journey from anywhere. 🎟️ Register now: ow.ly/ANTl50WQtsG
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