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DF_PC's profile picture. Desmoid Fibromatosis Patients & Carers is here to empower & support patients to live beyond their diagnosis.

DFPCUK

@DF_PC

Desmoid Fibromatosis Patients & Carers is here to empower & support patients to live beyond their diagnosis.

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DFPCUK
 @DF_PC
Jun 29, 2024

The perfect accessory this festival season! 🎉 💃🏻

Sarcoma_UK's profile picture. We're no longer updating this account. Follow us on Facebook, Instagram, LinkedIn, YouTube and Threads to stay informed.
Sarcoma UK
 @Sarcoma_UK
Jun 29, 2024

Stay cool this festival season and support Sarcoma UK! 🕺 Celebrity ambassador for Sarcoma UK @Graemepark, has collaborated with Fangirl to support those affected by bone & soft tissue cancer. Fans available at: graemeparkdj.tmstor.es/product/147523

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St Mark's Hospital
 @StMarksHospital
Sep 9, 2021

@stmarkshospital new #stoma #book will be a vital read for both #patients and #healthcare professionals, providing stoma patients with detailed information on stoma care and empowering them to independently care for their stoma on a daily basis. bit.ly/3yX8RqA

StMarksHospital's tweet image. @stmarkshospital new #stoma #book will be a vital read for both #patients and #healthcare professionals, providing stoma patients with detailed information on stoma care and empowering them to independently care for their stoma on a daily basis. bit.ly/3yX8RqA
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DTRFoundation's profile picture.
Desmoid Tumor Research Foundation
 @DTRFoundation
Sep 2, 2021

Check out these #RFAChallengers who hit the 2nd #RFAVirtualChallenge Fundraising Milestone! With only 3.5 weeks to go, WE STILL NEED YOU to become an #RFAChallenger! Whether you raise $100 or $1K, TOGETHER we can advance #desmoid tumor research in 2022! DTRF.org/rfa

DTRFoundation's tweet image. Check out these #RFAChallengers who hit the 2nd #RFAVirtualChallenge Fundraising Milestone! With only 3.5 weeks to go, WE STILL NEED YOU to become an #RFAChallenger! Whether you raise $100 or $1K, TOGETHER we can advance #desmoid tumor research in 2022! DTRF.org/rfa
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Sep 4, 2021

💙September is Desmoid Tumour Awareness Month 💙#DesmoidAwarenessMonth #DesmoidTumourAwarenessMonth #DesmoidTumorAwarenessMonth #DesmoidFibromatosis #Desmoid #AggressiveFibromatosis

DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Desmoid Tumor Research Foundation
 @DTRFoundation
Sep 2, 2021

Meet Katrien, a 20-year-old #DesmoidSurvivor from Washington State. “It took a lot to realize that these tumors aren’t easily treated and I need to prepare myself for a long and hard battle." Help raise #DesmoidAwareness: DTRF.org/awareness #DesmoidTumorAwarenessMonth

DTRFoundation's tweet image. Meet Katrien, a 20-year-old #DesmoidSurvivor from Washington State. “It took a lot to realize that these tumors aren’t easily treated and I need to prepare myself for a long and hard battle." Help raise #DesmoidAwareness: DTRF.org/awareness #DesmoidTumorAwarenessMonth
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Sep 2, 2021

September is 💙DESMOID TUMOUR AWARENESS MONTH #DesmoidTumourAwarenessMonth #DesmoidTumorAwarenessMonth #DesmoidTumour #DesmoidFibromatosis #Desmoid #DesmoidTypeFibromatosis #DesmoidTumor

DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Desmoid Tumor Research Foundation
 @DTRFoundation
Sep 1, 2021

SEPTEMBER IS #DesmoidTumorAwarenessMonth! #Desmoid tumors are rare, invasive, soft tissue tumors affecting 5-6 per every 1M people per year (though frequently misdiagnosed). Visit DTRF.org/awareness to learn how to raise #DesmoidAwareness, see our events schedule, & more!

DTRFoundation's tweet image. SEPTEMBER IS #DesmoidTumorAwarenessMonth! #Desmoid tumors are rare, invasive, soft tissue tumors affecting 5-6 per every 1M people per year (though frequently misdiagnosed). Visit DTRF.org/awareness to learn how to raise #DesmoidAwareness, see our events schedule, & more!
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jul 15, 2021

This is an event not to be missed for #DesmoidFibromatosis patients, carers & professionals! We can’t wait to take part again virtually this year! #DesmoidCommunity Look out soon for our annual RFA fundraiser for the DTRF too! #FundACure #DesmoidWarriors #DesmoidUnitedUK

DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Desmoid Tumor Research Foundation
 @DTRFoundation
Jul 14, 2021

Together we will…EMPOWER OURSELVES at the Annual DTRF Patient Meeting Webinars on 9/25, the main event of #DTRFWeekend2021! Webinar #1 will include overviews of #desmoid medical therapies, #cryoablation, a new #clinicaltrial, & the int’l #pregnancy study. DTRF.org/weekend

DTRFoundation's tweet image. Together we will…EMPOWER OURSELVES at the Annual DTRF Patient Meeting Webinars on 9/25, the main event of #DTRFWeekend2021! Webinar #1 will include overviews of #desmoid medical therapies, #cryoablation, a new #clinicaltrial, & the int’l #pregnancy study. DTRF.org/weekend
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jul 15, 2021

** INTERNATIONAL STUDY: DESMOID TUMOUR AND FERTILITY ** @DesmoidI are looking for women to take part in an international study into #DesmoidTumour’s & fertility. Scientific research starts with us! Find out more including links to take part below. #DesmoidFibromatosis

DesmoidI's profile picture. Desmoid Foundation ONLUS is a non-profit org that connects patients with desmoid and Gardner's syndrome with the competent scientific community.
Desmoid Foundation ONLUS - Italia
 @DesmoidI
Jul 7, 2021

** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY ** Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to desmoidfoundation.org/.../desmoid-tu… and fill out the questionnaire! Scientific research starts with us! #df #desmoid #desmoide

DesmoidI's tweet image. ** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY ** Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to desmoidfoundation.org/.../desmoid-tu… and fill out the questionnaire! Scientific research starts with us! #df #desmoid #desmoide
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DesmoidI's profile picture.
Desmoid Foundation ONLUS - Italia
 @DesmoidI
Jul 7, 2021

** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY ** Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to desmoidfoundation.org/.../desmoid-tu… and fill out the questionnaire! Scientific research starts with us! #df #desmoid #desmoide

DesmoidI's tweet image. ** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY ** Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to desmoidfoundation.org/.../desmoid-tu… and fill out the questionnaire! Scientific research starts with us! #df #desmoid #desmoide
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jul 12, 2021

Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at DTRF.org/weekend! Together we will… 🧩 CONNECT (9/24) 🧩 ADVANCE RESEARCH (9/24) 🧩 EMPOWER OURSELVES (9/25) 🧩 FUND A CURE (June-Sept & 9/26) #DesmoidTumourAwareness

DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Desmoid Tumor Research Foundation
 @DTRFoundation
Jul 6, 2021

Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at DTRF.org/weekend! Together we will… CONNECT (9/24) ADVANCE RESEARCH (9/24) EMPOWER OURSELVES (9/25) FUND A CURE (June-Sept & 9/26)

DTRFoundation's tweet image. Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at DTRF.org/weekend! Together we will… CONNECT (9/24) ADVANCE RESEARCH (9/24) EMPOWER OURSELVES (9/25) FUND A CURE (June-Sept & 9/26)
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jul 8, 2021

It’s that time of year again & @MalcolmWhales are embarking on their annual #DorsetWalk21! Please follow, like, share and donate! This is an amazing cause very close to our hearts after they helped fund our #DFPC21 patient conference last year. #Support #Donate #Share

MalcolmWhales's profile picture. In memory of Malcolm (#bowelcancer) enabling school children (and others) to fundraise and donate to #childrenscancer #cancer #tmwf #sport #dorsetwalk
The Malcolm Whales Foundation
 @MalcolmWhales
Jul 8, 2021

Tents are up for our KSCS walkers, now time for some food and games! Everybody is in good spirits ready for the walk to begin in the morning If you would like to donate to this years walk you can do so at justgiving.com/tmwf #teamTMWF #DorsetWalk21

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Bradley Price
 @BradleyJPrice
Jun 17, 2021

A really important campaign from @TeenageCancer - improving the provision of specialist psychological support is long overdue.

TeenageCancer's profile picture. We give young people with cancer the best possible care and support, through treatment and beyond – so cancer doesn’t stop them living their lives.
Teenage Cancer Trust
 @TeenageCancer
Jun 17, 2021

Right now, many young people are facing cancer without the mental health support they need. And the impact of coronavirus is making the situation even worse. It’s #NotOK. But you can help us change it – email your MP and join our campaign 👇 teenagecancertrust.org/notok

TeenageCancer's tweet image. Right now, many young people are facing cancer without the mental health support they need. And the impact of coronavirus is making the situation even worse. It’s #NotOK. But you can help us change it – email your MP and join our campaign 👇 teenagecancertrust.org/notok
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jun 18, 2021

Share your support by wearing red! #Red4Research

UKRI_News's profile picture. We support world-leading research to push the frontiers of knowledge and generate economic, social, environmental & cultural benefits for all. Learn more 👇
UK Research and Innovation
 @UKRI_News
Jun 18, 2021

Today is #Red4Research Day where we show our support for everyone participating, undertaking and supporting COVID-19 research. Get involved by wearing something red and find out more- orlo.uk/ml8Kb @NHSRDForum @NIHRresearch

UKRI_News's tweet image. Today is #Red4Research Day where we show our support for everyone participating, undertaking and supporting COVID-19 research. Get involved by wearing something red and find out more- orlo.uk/ml8Kb @NHSRDForum @NIHRresearch
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jun 18, 2021

This is a common issue for many with chronic/lifelong conditions. It’s great to see something being done to combat those risks.

UKRI_News's profile picture. We support world-leading research to push the frontiers of knowledge and generate economic, social, environmental & cultural benefits for all. Learn more 👇
UK Research and Innovation
 @UKRI_News
Jun 18, 2021

Nearly half of older people in the UK take five or more medicines, increasing the risk of adverse reactions. With @LandG_UK, we've invested in new software to help doctors prescribe the safest and most effective combinations of drugs. orlo.uk/j9MXg #HealthyAgeing

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RareBeacon's profile picture.
Beacon for Rare Diseases
 @RareBeacon
Jun 18, 2021

What perfect timing! We just concluded #DrugRepo21 and now we're marching into #Red4Research! Show your support by wearing something red♥️ and tag us in your photos! Three cheers for #Research, #Innovation and #DrugRepurposing 🙌👏

UKRI_News's profile picture. We support world-leading research to push the frontiers of knowledge and generate economic, social, environmental & cultural benefits for all. Learn more 👇
UK Research and Innovation
 @UKRI_News
Jun 18, 2021

Today is #Red4Research Day where we show our support for everyone participating, undertaking and supporting COVID-19 research. Get involved by wearing something red and find out more- orlo.uk/ml8Kb @NHSRDForum @NIHRresearch

UKRI_News's tweet image. Today is #Red4Research Day where we show our support for everyone participating, undertaking and supporting COVID-19 research. Get involved by wearing something red and find out more- orlo.uk/ml8Kb @NHSRDForum @NIHRresearch
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jun 15, 2021

#ASCO21 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis" Thank you to all who worked on this and congratulations on winning the Conquer Cancer Merit Award 🌟 #DesmoidTypeFibromatosis #DesmoidTumour #DesmoidFibromatosis #DesmoidTumor #BenignIsNotFine

OncoVik_G's profile picture. Medical Oncology Fellow, Princess Margaret Cancer Center, Toronto, Canada 🇨🇦 🍁. Alumini Medical Oncology, BRAIRCH AIIMS, New Delhi, India 🇮🇳
Vikas Garg
 @OncoVik_G
Jun 8, 2021

Happy to share our ASCO 2021 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis". Thankful to all patients and my mentor for this great opportunity. Thank you Conquer cancer foundation for considering this for Conquer Cancer Merit Award. ascopubs.org/doi/abs/10.120…

OncoVik_G's tweet image. Happy to share our ASCO 2021 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis". Thankful to all patients and my mentor for this great opportunity. Thank you Conquer cancer foundation for considering this for Conquer Cancer Merit Award. ascopubs.org/doi/abs/10.120…
OncoVik_G's tweet image. Happy to share our ASCO 2021 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis". Thankful to all patients and my mentor for this great opportunity. Thank you Conquer cancer foundation for considering this for Conquer Cancer Merit Award. ascopubs.org/doi/abs/10.120…
OncoVik_G's tweet image. Happy to share our ASCO 2021 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis". Thankful to all patients and my mentor for this great opportunity. Thank you Conquer cancer foundation for considering this for Conquer Cancer Merit Award. ascopubs.org/doi/abs/10.120…
OncoVik_G's tweet image. Happy to share our ASCO 2021 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis". Thankful to all patients and my mentor for this great opportunity. Thank you Conquer cancer foundation for considering this for Conquer Cancer Merit Award. ascopubs.org/doi/abs/10.120…
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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jun 15, 2021

Are you a patient diagnosed with a #DesmoidTumour BEFORE or DURING #pregnancy? If your answer is YES, please consider taking part in this important study. Find out more and register via the @DesmoidI website at desmoidfoundation.org/en #DesmoidFibromatosis #SupportResearch

FioreDoc's profile picture. Expert in soft tissue sarcoma, GIST, desmoid tumors. Surgical Oncologist at Fondazione IRCCS Istituto Nazionale dei Tumori - Milan Italy. Tweets are my own.
Marco Fiore, MD, FACS, FEBSh
 @FioreDoc
Jun 11, 2021

Desmoid Fibromatosis during pregnancy: clinical study youtu.be/0y0mhSFK06Q via @YouTube @DesmoidI @DTRFoundation @sarcomapatients

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sarcomapatients's profile picture.
SPAGN
 @sarcomapatients
Jun 14, 2021

The @DesmoidI Desmoid Foundation Italy, in collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, has launched a survey to study the correlation between desmoid tumors and pregnancy. Learn more: bit.ly/3gzE5ge #desmoid #aggressivefibromatosis #pregnancy

FioreDoc's profile picture. Expert in soft tissue sarcoma, GIST, desmoid tumors. Surgical Oncologist at Fondazione IRCCS Istituto Nazionale dei Tumori - Milan Italy. Tweets are my own.
Marco Fiore, MD, FACS, FEBSh
 @FioreDoc
Jun 11, 2021

Desmoid Fibromatosis during pregnancy: clinical study youtu.be/0y0mhSFK06Q via @YouTube @DesmoidI @DTRFoundation @sarcomapatients

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DF_PC's profile picture.
DFPCUK
 @DF_PC
Jun 15, 2021

Congratulations to all who worked on this study! 🥳 #ASCO21 #DesmoidTumourAwareness #DesmoidFibromatosis #AggressiveFibromatosis #SupportResearch #RareDisease #DesmoidTumor

DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Desmoid Tumor Research Foundation
 @DTRFoundation
Jun 14, 2021

Congrats to @OncoVik_G & team for receiving a #ASCO21 @ConquerCancerFd Merit Award for their study on patient reported outcomes, comparing quality of life results from 102 #desmoid patients to 102 healthy controls. Read the abstract below. ascopubs.org/doi/abs/10.120…

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DFPCUK reposted
DTRFoundation's profile picture.
Desmoid Tumor Research Foundation
 @DTRFoundation
Jun 14, 2021

#Desmoid tumors were once again a topic of discussion & award-winning research at #ASCO21. We extend our gratitude to the physicians & scientists around the globe working to find answers. View the ASCO abstracts & presentations on #desmoid tumors at meetings.asco.org/abstracts-pres…

DTRFoundation's tweet image. #Desmoid tumors were once again a topic of discussion & award-winning research at #ASCO21. We extend our gratitude to the physicians & scientists around the globe working to find answers. View the ASCO abstracts & presentations on #desmoid tumors at meetings.asco.org/abstracts-pres…
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DFPCUK reposted
DTRFoundation's profile picture.
Desmoid Tumor Research Foundation
 @DTRFoundation
Jun 6, 2021

Registration for the DTRF “Together We Will” Virtual Weekend (Sept 24-26) OPENS June 7th, marking the start of our summer-long #RFAVirtualChallenge fundraiser! DTRF.org/weekend Together we will… ADVANCE RESEARCH CONNECT EMPOWER OURSELVES FUND A CURE #DTRFWeekend2021

DTRFoundation's tweet image. Registration for the DTRF “Together We Will” Virtual Weekend (Sept 24-26) OPENS June 7th, marking the start of our summer-long #RFAVirtualChallenge fundraiser! DTRF.org/weekend Together we will… ADVANCE RESEARCH CONNECT EMPOWER OURSELVES FUND A CURE #DTRFWeekend2021
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JTrentMDPhD's profile picture. Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.

Jon Trent, MD, PhD

@JTrentMDPhD
alegronchi's profile picture. Chair Sarcoma Service - Department of Surgery - National Cancer Institute - Milan - Italy.

Alessandro Gronchi

@alegronchi
Winette_vdGraaf's profile picture. Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA

WinetteVanDerGraaf

@Winette_vdGraaf
herbloong's profile picture. Academic medical oncologist @ Hong Kong w/ interests in sarcoma medical oncology, thoracic oncology & phase 1 trials | Disclosures: https://t.co/sb5XXrv5zx

Herbert Loong, MBBS, FASCO

@herbloong
RichardDavidson's profile picture. Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.

Richard Davidson

@RichardDavidson
Sarcoma_UK's profile picture. We're no longer updating this account. Follow us on Facebook, Instagram, LinkedIn, YouTube and Threads to stay informed.

Sarcoma UK

@Sarcoma_UK
DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.

Desmoid Tumor Research Foundation

@DTRFoundation
sarcomapatients's profile picture. Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups

SPAGN

@sarcomapatients
pawel_sobczuk's profile picture. MD PhD, Medical Oncologist, post-doc -at @VHIO, YOC Member & Communication Committee at @myESMO 🇵🇱🏳️‍🌈

Pawel Sobczuk

@pawel_sobczuk
DrOrtizCruz's profile picture. Jefe Oncología Ortopédica: Hospital La Paz, Ruber Internacional, MDAndersonSpain. Director Bone and Soft Tissue Tumor Course Madrid. https://t.co/Pp63xAj9MN

Eduardo Ortiz Cruz

@DrOrtizCruz
schoffski's profile picture. Passionate medical oncologist with experimental + public health agenda heading the Dpt. of General Medical Oncology + Lab. of Exp. Oncology at UZ/KU Leuven (BE)

Patrick Schöffski

@schoffski
saxotomy's profile picture. Dedicated sarcoma and breast medical oncologist from Taiwan. (National Taiwan University Hospital and Cancer Center)

Tom Wei-Wu Chen

@saxotomy
SpringWorksTx's profile picture. At SpringWorks, Inc. a healthcare company of Merck KGaA, Darmstadt, Germany, we bring tenacity to work every day because patients need answers now.

SpringWorks

@SpringWorksTx
DorianGarciaMD's profile picture. Surgical Oncologist. Department Skin, Soft Tissue and Bone Tumors. National Cancer Institute (México). Sarcoma, Melanoma and rare tumors surgeon.

Dorian Y. García-Ortega MD, MSc,PhD, FACS

@DorianGarciaMD
SuzieSiegel's profile picture. Newspaper reporter & editor b4 metastatic leiomyosarcoma. Master's in women's studies. Board member emerita of Sarcoma Alliance. urostomy colostomy

Suzie Siegel

@SuzieSiegel
jalivingston_md's profile picture. Med Peds Sarcoma Med Onc and AYA Onc at The University of Texas MD Anderson Cancer Center. My focus: #AYAcsm #sarcoma #osteosarcoma

Andy Livingston, MD MS

@jalivingston_md
JeffreyFarma's profile picture. Father of 3, Husband, Surgical Oncologist, Chair of Surgery, Professor @Foxchasecancer-Skier and Traveller

Jeffrey Farma

@JeffreyFarma
SelnetH2020's profile picture. SELNET aims to improve the diagnosis and clinical care of sarcomas through a European and Latin American network. SELNET has received funds from the EU H2020

Sarcoma European LatinAmerican Network (SELNET)

@SelnetH2020
12crc's profile picture. Consultant Orthopaedics/Sarcoma Surgeon LUHFT,Liverpool,UK. Tweets are personal views-mainly related to the profession

CR Chandrasekar

@12crc
PPSarcomen's profile picture. Patiëntenplatform Sarcomen biedt informatie over botsarcomen, wekedelensarcomen, GIST en borderlinetumoren (desmoid, reusceltumor en phyllodes).

Patiëntenplatform Sarcomen

@PPSarcomen
SarcomaEast's profile picture. One of 15 Accredited Soft Tissue Sarcoma Treatment Centres: Based at Nottingham and Leicester

East Midlands Sarcoma Service

@SarcomaEast
AmarjeetSi89838's profile picture.

Amarjeet Singh

@AmarjeetSi89838
shawneereck1's profile picture. im a devout christian i love nkotb and bsb and westlife and fishing and painting and drawing and coloring and am very nice girl and funny girl too

shawneeknightcarter

@shawneereck1
InvisibleWarr11's profile picture. I'm Ria, I owe my life to the NHS and my organ donor 💙💚- Multivisceral transplant- Desmoid tumours- Familial adenomatous polyposis - Colon cancer survivor

Invisible Warrior

@InvisibleWarr11
Cfulvio's profile picture. Daytime Emmy Nominated TV Chef Ballyknocken House & Cookery School @ballyknockenhcs Author/food writer Keynote speaker TV @rteone @netflix @recipe.tv @bbcone

Catherine Fulvio

@Cfulvio
photoga29's profile picture.

Phil Smith

@photoga29
FoxChaseSurgOnc's profile picture. Official Twitter account of the Department of Surgical Oncology at Fox Chase Cancer Center

Fox Chase Surgical Oncology

@FoxChaseSurgOnc
mauriciofribei1's profile picture. Sarcoma Medical Oncologist. Assistant Member at @moffittnews @usfhealthmed. 🎗️#sarcoma #desmoid - my tweets = my views

Maurício Ribeiro, MD

@mauriciofribei1
EORTC_QLG's profile picture. The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.

EORTC Quality of Life Group (QLG)

@EORTC_QLG
RaremindsUK's profile picture. Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…

Rareminds

@RaremindsUK
WaiteFiona's profile picture.

Fiona Waite

@WaiteFiona
ExDirRIS's profile picture. Ex. Dr. Of RIS Lachelle Semanko will set up her account days ahead. This @ will be archived. It has been good to serve our community 🌻

Janelle Calhoun

@ExDirRIS
APConley77's profile picture. Sarcoma Specialist at MDACC, Research of rare cancers: pleomorphic sarcomas, ASPS, #chordomas, & #chondrosarcomas. Views are mine. #sarcoma

Anthony P Conley

@APConley77
SABOIKOS_MD's profile picture. Academic Medical Oncologist, senior clinical program leader, Immuno-oncology, Boehringer-Ingelheim, adjunct assistant professor, Georgetown University

Sosipatros Alexander Boikos MD 🇬🇷 🌻 ⛵ 🔬

@SABOIKOS_MD
Pap_Corps's profile picture. Nonprofit since 1952 raising crucial funds for cancer research to benefit Sylvester Comprehensive Cancer Center, UM Miller School of Medicine

Pap Corps

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CheekyStartups's profile picture. Community, Education, Funding, Marketing, Mentorship, Networking & Workspace for social impact arts entrepreneurs @rupertcheek Rupert@cheekyfest.com.

Cheeky Startups

@CheekyStartups
reininsarcoma's profile picture. Rein in Sarcoma is a Minnesota based non-profit organization dedicated to sarcoma patient support, research, and education

Rein in Sarcoma

@reininsarcoma
_angiedrach's profile picture. Graphic designer based in NW Indiana/Chicago. Currently freelancing, doing what I do well, keeping chaos organized for corporate teams.

Angie Drach

@_angiedrach
samankeshavarz3's profile picture. dubai

saman

@samankeshavarz3
Carolyn35777545's profile picture.

Carolyn Black

@Carolyn35777545
Bsg2022's profile picture. Annual conference for all things Gerontology in the UK

British Society of Gerontology Conference 2022

@Bsg2022
HiBarksdale's profile picture. bitch, please…I’m from Detroit 🤛🏿

Hawaii Barksdale

@HiBarksdale
Jitendr96086524's profile picture.

Jitendra Kumar garg

@Jitendr96086524
LGCW2025's profile picture. A catalyst to improve global cancer outcomes by encouraging collaboration, raising awareness and convening.

London Global Cancer Week

@LGCW2025
VBarros76's profile picture.

Vera Barros

@VBarros76
ArtigasVicenc's profile picture.

vicenç artigas

@ArtigasVicenc
SPHMedical's profile picture. SPH Medical is a leading provider of solutions focused on reducing risk of injury to patient handling staff, and reducing hospital acquired infections.

SPHMedical

@SPHMedical
umeshar's profile picture. Working since last one decade for blood donation, thalassemia awareness & Care of thalassemia. Eradicate thalassemia ensure availability of safe & fresh Blood

Umesharorafdb

@umeshar
carolkanti's profile picture. oi

Quiró

@carolkanti
urvashi_pant's profile picture.

Urvashi Pant

@urvashi_pant
val_yang's profile picture. Good friends and great science ftw!

Valerie Yang MBBChir PhD

@val_yang
pulseinfoframe's profile picture. Accelerating science and research with real world evidence, from real patients, in real time. #realworldevidence #raredisease #cancer

Pulse Infoframe

@pulseinfoframe
OncoVik_G's profile picture. Medical Oncology Fellow, Princess Margaret Cancer Center, Toronto, Canada 🇨🇦 🍁. Alumini Medical Oncology, BRAIRCH AIIMS, New Delhi, India 🇮🇳

Vikas Garg

@OncoVik_G
DebbieArtisPT's profile picture. Specialist Sarcoma Physiotherapist @leedshospitals @Sarcoma_UK @BCRT Tricia Moate Award 2021/ BSG board member

Debbie Artis

@DebbieArtisPT
shankusingh11's profile picture. Stay focused on future

ਡਾਕਟਰ ਵਹਿਮਾਂ ਦਾ

@shankusingh11
AthinasRide's profile picture. Athina's Ride is a virtual cycling event raising funds for the Desmoid Tumour Foundation of Canada.

Athina's Ride

@AthinasRide
PrimePEPtalks's profile picture. PEP=Patient Engagement Practices! We amplify the patient voice to deliver a triple win for patients, Pharma, and society. - Prime Patient of @PrimeGlobalBuzz

PEP Talks

@PrimePEPtalks
lymcheung's profile picture. Physiology & Biophysics, SUNY Stony Brook

Leonard Cheung

@lymcheung
SarcomasHULP's profile picture. Unidad multidisciplinar experta en el diagnóstico y tratamiento de los tumores óseos y de partes blandas en adultos y niños. CSUR Sarcomas infantiles

Sarcomas Hospital La Paz

@SarcomasHULP
TracyGFallon's profile picture. Animal lover & cruelty hater!! Trapped in an office somewhere in North Yorkshire.

Tracy Fawcett

@TracyGFallon
healthcareOS's profile picture. Operating System for Healthcare Institutions

Healthcare Operating System

@healthcareOS
VCarterAMR's profile picture. #AntimicrobialResistance Patient Advocate • Chair @WHO Taskforce of AMR Survivors • @AfricaCDC Civil Society Champion • Founder of @theAMRnarrative

Vanessa Carter AMR 🇬🇧🇿🇦

@VCarterAMR
KrisVleminckx's profile picture. Cell and Developmental Biologist @Ghent University | Xenopus aficionado | Human genetic disease modeling | Cancer and Rare Diseases

Kris Vleminckx

@KrisVleminckx
giulia_buizza's profile picture. Medical imaging | Data scientist. Views are my own.

Giulia Buizza

@giulia_buizza
pfthurley's profile picture. #Desmoid survivor | #ChronicPain | #Disabled #MAiD Supporter | ex-Christian | #Philosophy | #ADHD | https://t.co/vnEkeaVOrW | @pfthurley on all platforms

Peter Thurley

@pfthurley
MariannaCoppo15's profile picture. BI Product Manager Biologist - Interested in #rarediseases #nutrition Desmoid Foundation ONLUS #patientadvocate Love books, animals, nature!

Marianna Coppola

@MariannaCoppo15
Uzairhussain00's profile picture.

uzair Hussain

@Uzairhussain00
SunaguaMarcelo's profile picture. Revalidado🇧🇴 🇧🇷//📍Zona Leste SP UMSA➡️UFMT-➡️HFSE➡️AC➡️OC // Español, Portugues, Ingles, Frances

Marcelo Sunagua Aruquipa, Oncologista

@SunaguaMarcelo
JTrentMDPhD's profile picture. Associate Director @SylvesterCancer. Director #Sarcoma and #GIST. Telemedicine and in-person clinics are open. Tweets are my own.

Jon Trent, MD, PhD

@JTrentMDPhD
alegronchi's profile picture. Chair Sarcoma Service - Department of Surgery - National Cancer Institute - Milan - Italy.

Alessandro Gronchi

@alegronchi
Winette_vdGraaf's profile picture. Medical Oncologist @NKI_nl Amsterdam. Sarcoma; AYA cancer. Prof. @ErasmusMC President of @EORTC, chair @AYAzorgnetwerk @COMPRAYA_study @strong_AYA

WinetteVanDerGraaf

@Winette_vdGraaf
herbloong's profile picture. Academic medical oncologist @ Hong Kong w/ interests in sarcoma medical oncology, thoracic oncology & phase 1 trials | Disclosures: https://t.co/sb5XXrv5zx

Herbert Loong, MBBS, FASCO

@herbloong
RichardDavidson's profile picture. Chief Executive of Sarcoma UK. Chair of SameYou. Devon, via North London and County Durham. All views my own.

Richard Davidson

@RichardDavidson
Sarcoma_UK's profile picture. We're no longer updating this account. Follow us on Facebook, Instagram, LinkedIn, YouTube and Threads to stay informed.

Sarcoma UK

@Sarcoma_UK
DTRFoundation's profile picture. DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.

Desmoid Tumor Research Foundation

@DTRFoundation
DCalleMD's profile picture. Sarcoma surgeon @IstTumori, Milan, Italy | Former Surg Onc fellow @UofT

Dario Callegaro

@DCalleMD
DrLizConnolly's profile picture. Medical Oncologist @PeterMacCC | Proteomics @ ProCan @CMRI_AUS | @anzsarcoma Sarcoma Research Fellow | @myESMO YOC | @ausyoungoncs YOGA 🇦🇺🇮🇪

Liz Connolly

@DrLizConnolly
sarcomapatients's profile picture. Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups

SPAGN

@sarcomapatients
pawel_sobczuk's profile picture. MD PhD, Medical Oncologist, post-doc -at @VHIO, YOC Member & Communication Committee at @myESMO 🇵🇱🏳️‍🌈

Pawel Sobczuk

@pawel_sobczuk
bvantine1's profile picture. Prof of Medicine and Pediatrics, Medical Oncologist, Washington University in St. Louis Sarcoma Doctor, Phase 1 Director, and tumor metabolism researcher.

Brian Van Tine

@bvantine1
DrOrtizCruz's profile picture. Jefe Oncología Ortopédica: Hospital La Paz, Ruber Internacional, MDAndersonSpain. Director Bone and Soft Tissue Tumor Course Madrid. https://t.co/Pp63xAj9MN

Eduardo Ortiz Cruz

@DrOrtizCruz
schoffski's profile picture. Passionate medical oncologist with experimental + public health agenda heading the Dpt. of General Medical Oncology + Lab. of Exp. Oncology at UZ/KU Leuven (BE)

Patrick Schöffski

@schoffski
FioreDoc's profile picture. Expert in soft tissue sarcoma, GIST, desmoid tumors. Surgical Oncologist at Fondazione IRCCS Istituto Nazionale dei Tumori - Milan Italy. Tweets are my own.

Marco Fiore, MD, FACS, FEBSh

@FioreDoc
saxotomy's profile picture. Dedicated sarcoma and breast medical oncologist from Taiwan. (National Taiwan University Hospital and Cancer Center)

Tom Wei-Wu Chen

@saxotomy
SpringWorksTx's profile picture. At SpringWorks, Inc. a healthcare company of Merck KGaA, Darmstadt, Germany, we bring tenacity to work every day because patients need answers now.

SpringWorks

@SpringWorksTx
RLRandallMD's profile picture. I am so fortunate to serve as Chair of the storied Department of Orthopaedic Surgery at the University of California, Davis. Tweets are my own.

R. Lor Randall

@RLRandallMD
A_Duensing's profile picture. Division Head, Precision Oncology of Urological Tumors, University Hospital Heidelberg

Anette Duensing

@A_Duensing
DorianGarciaMD's profile picture. Surgical Oncologist. Department Skin, Soft Tissue and Bone Tumors. National Cancer Institute (México). Sarcoma, Melanoma and rare tumors surgeon.

Dorian Y. García-Ortega MD, MSc,PhD, FACS

@DorianGarciaMD
Worldsource24's profile picture. 🚨Covering news from around the 🌎 Worldwide Current Affairs! If you would like to support the page you can donate at https://t.co/OUeqwwhtVO

World Source News

@Worldsource24
AirAssistApp's profile picture. 📱🚁 AirAssist App official account | The worlds best app for tracking air ambulances, police helicopters and coastguard aircraft | App by @ernstmul

AirAssist

@AirAssistApp
oceanblue11oct's profile picture. Palliative care counselor! Cancer conquerer! Patient advocate.A daughter, sister,wife,a mother! Born to a fauji married to one. Proud Indian

Vandana Mahajan

@oceanblue11oct
UKRI_News's profile picture. We support world-leading research to push the frontiers of knowledge and generate economic, social, environmental & cultural benefits for all. Learn more 👇

UK Research and Innovation

@UKRI_News
OncoVik_G's profile picture. Medical Oncology Fellow, Princess Margaret Cancer Center, Toronto, Canada 🇨🇦 🍁. Alumini Medical Oncology, BRAIRCH AIIMS, New Delhi, India 🇮🇳

Vikas Garg

@OncoVik_G
rutkowskip1972's profile picture. surgical oncologist, researcher, President of Polish Oncological Society. Maria Sklodowska-Curie National Research Institute of Oncology Warsaw Poland.

Piotr Rutkowski

@rutkowskip1972
lymcheung's profile picture. Physiology & Biophysics, SUNY Stony Brook

Leonard Cheung

@lymcheung
SarcomasHULP's profile picture. Unidad multidisciplinar experta en el diagnóstico y tratamiento de los tumores óseos y de partes blandas en adultos y niños. CSUR Sarcomas infantiles

Sarcomas Hospital La Paz

@SarcomasHULP
TracyGFallon's profile picture. Animal lover & cruelty hater!! Trapped in an office somewhere in North Yorkshire.

Tracy Fawcett

@TracyGFallon
breelynwilkyMD's profile picture. Director, Sarcoma Oncology, @CUCancerCenter. Immunotherapy translational researcher. Tweets reflect my own opinions.

Breelyn Wilky, MD 🎗

@breelynwilkyMD
SarcomaOma's profile picture. Our mission is to educate and assist #Sarcoma patients in their search for treatment options and help fund their travel-related expenses when appropriate.

Sarcoma-Oma

@SarcomaOma
ivanmarinol's profile picture.

Ivan Mariño

@ivanmarinol
VCarterAMR's profile picture. #AntimicrobialResistance Patient Advocate • Chair @WHO Taskforce of AMR Survivors • @AfricaCDC Civil Society Champion • Founder of @theAMRnarrative

Vanessa Carter AMR 🇬🇧🇿🇦

@VCarterAMR
KrisVleminckx's profile picture. Cell and Developmental Biologist @Ghent University | Xenopus aficionado | Human genetic disease modeling | Cancer and Rare Diseases

Kris Vleminckx

@KrisVleminckx
precisionforum's profile picture. The organiser of Nordic 2024 #Digitalhealth #Data #AI #Precisionmedicine https://t.co/wU8gQ7kf0L

Precision Medicine Forum

@precisionforum
giulia_buizza's profile picture. Medical imaging | Data scientist. Views are my own.

Giulia Buizza

@giulia_buizza
MariannaCoppo15's profile picture. BI Product Manager Biologist - Interested in #rarediseases #nutrition Desmoid Foundation ONLUS #patientadvocate Love books, animals, nature!

Marianna Coppola

@MariannaCoppo15
pulseinfoframe's profile picture. Accelerating science and research with real world evidence, from real patients, in real time. #realworldevidence #raredisease #cancer

Pulse Infoframe

@pulseinfoframe
anna_kruczynska's profile picture. BMBS Medicine University of Nottingham, BSc Human Genetics University of Nottingham Interested in Surgical Medical Education Scuba Diving and Hiking

Anna Kruczynska

@anna_kruczynska
alvaropdutra's profile picture. “A vida não é sobre fazer, mas sobre ser”

alvarodeBHemBarretos

@alvaropdutra
pneandme's profile picture. Pudendal Nerve Entrapment (PNE) from prolapse surgery (NO mesh!) and NHS Biomedical Scientist (Virology). Own opinions.

PNEandME

@pneandme
SunaguaMarcelo's profile picture. Revalidado🇧🇴 🇧🇷//📍Zona Leste SP UMSA➡️UFMT-➡️HFSE➡️AC➡️OC // Español, Portugues, Ingles, Frances

Marcelo Sunagua Aruquipa, Oncologista

@SunaguaMarcelo
ElephantsTea's profile picture. Elephants & Tea is a magazine for #AYA, written by #AYAcancer patients/survivors/caregivers telling their #stories in their own words. #JoinTheHerd #Cancer

Elephants and Tea

@ElephantsTea
Carolyn69709741's profile picture.

Carolyn Black

@Carolyn69709741
DrMBoudioni's profile picture. Expert Patient and Public Involvement, Engagement & Empowerment, Research, Transformational Change

Dr Markella Boudioni

@DrMBoudioni
PittSaRC's profile picture. The official account of Pittsburgh Sarcoma Research Collaborative (PSaRC) #sarcoma #UPMC #Pitt

PSaRC

@PittSaRC
JCloutierMD's profile picture. Dermatopathologist, Bone / Soft Tissue Pathologist. Assistant Professor of Pathology at Dartmouth Geisel School of Medicine.

Jeffrey Cloutier, MD, PhD

@JCloutierMD
Zestofyou's profile picture. Intercultural #Menopause Transition Coach@zestofyou #BehaviourChangeInsight; connecting, empowering & advocating for DIVERSE MidLIFE women #AntiHealthBias

Ola Fagbohun - Loud, Visible and Unapologetic!

@Zestofyou
marklewismd's profile picture. Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.

Mark Lewis, MD, FASCO

@marklewismd
Greg_Charville's profile picture. Surgical pathologist @stanfordpath | Sarcoma and GI-Liver pathology

Greg Charville

@Greg_Charville
RadiographyJour's profile picture. Published by Elsevier for the Society & College of Radiographers, it is the official journal of the European Federation of Radiographer Societies.

Radiography Journal

@RadiographyJour
RADMagazine's profile picture. For 50 years RAD Magazine has been a leading publication for medical imaging, radiotherapy and oncology professionals.

RAD Magazine

@RADMagazine
immunosarc's profile picture. Steven T. Rosen Prof Cancer Bio Cncr ImmunoTx Co-lead @NUFeinbergMed @NorthwesternMed Dir. Sarcoma Prgm @LurieCancer #immunotherapy for #sarcoma #cures

Seth M. Pollack

@immunosarc
RDStudentVoice's profile picture. Closed for entries! Annual, international essay competition for medical & nursing students focused on rare diseases📝💊🩺 Run by @RareBeacon & @M4RareDiseases

The Student Voice Prize

@RDStudentVoice
MacmillanLLR's profile picture. Supporting individuals & families impacted by #cancer across LLR. We provide specialist benefits advice & support up to tribunal representation. 0300 456 8400.

CitaL Macmillan Welfare Benefits Service

@MacmillanLLR
Afterumbrage's profile picture. After Umbrage exists to care for carers,we offer free short breaks for carers at our holiday cottages. Contact via website 💚 Registered Charity 1153922

Care for those who care 🧡

@Afterumbrage
RajaGup39725933's profile picture. I love my faith and sincerity

Raja Gupta

@RajaGup39725933
dazzle4rare's profile picture. Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5

dazzle4rare

@dazzle4rare
GettingonBoard's profile picture. Ceased operations. Thank you to everyone (staff, associates, volunteers, funders) who helped make our mission a reality.

Getting On Board

@GettingonBoard
anzsarcoma's profile picture. The Australia and New Zealand Sarcoma Association is the peak body for the sarcoma community. ANZSA is formerly known as ASG and ASSG.

Australia and New Zealand Sarcoma Association

@anzsarcoma
rarediseasefdn's profile picture. Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL

RareDiseaseFdn

@rarediseasefdn
metofficeSWEng's profile picture. Met Office weather warnings for SW England, with additional information from Met Office advisors and meteorologists. For questions, tweet @metoffice

Met Office - SW England

@metofficeSWEng
prog_2's profile picture. You will find regular updates here for all things Prog in the Park 2.0 related.

Prog in the Park 2.0

@prog_2
rarecare's profile picture. Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views

Denis Costello

@rarecare
MSKSarcoma's profile picture. For more than 135 years, we have been united by a singular purpose: to find cures for sarcomas. 1-844-923-0361 (new pts) | ReferAPatient@mskcc.org (doctors)

Sarcoma Service at Memorial Sloan Kettering

@MSKSarcoma
TARareDisease's profile picture. A SAGE gold open access journal | Publishing high-quality articles in the field of rare disease | Launched in 2020 | #TARareDisease

Therapeutic Advances in Rare Disease

@TARareDisease
swasthya8's profile picture. Swasthya - International Health journal for professionals Health is unique, necessary, universal, basic human right Our aim is to promote health&share knowledge

swasthya

@swasthya8

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