Britt Johnson aka Hurt Blogger
@HurtBlogger
Explorer of mountains both literal and metaphorical. Helping you tackle yours with humor & resilience. #Rheum #Behçets since age 7. #ChronicLife Founder.
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I have very big & bittersweet news: my husband and I have reached a crisis point with my health & life and are moving to live with family & seek new treatment. We humbly ask for your support & prayers. 🙏🏼 Love & Life for Britt J. Johnson gofundme.com/brittjohnson?p… #RareDisease
I am the kindest, most giving person to work with and usually (okay always) have undercut myself in compensation in every profession. Big fault of mine. But I am tired of healthcare professionals attempting to take advantage of patients with flattery. Times HAVE changed. Adapt.
multicenter, cross-sectional study of 1526 adult Behcets patients from Egyptian rheumatology centers shows CNS, DVT, and GI tract involvement is higher in males, while the joint dz and disease activity were increased in females. buff.ly/2WrPZ49
Holy crap... NO. THANK YOU! He’s not much of a straw user anyways, but you may have just saved us from a hospital trip, seizures, and unnecessary medical bills and toll on his health. 🙏🏼 #Celiac #CeliacDisease #Straws
For profit ‘pain blog’ asked for “my opinion in major mistakes in managing #chronicpain.” This constitutes WORK for me & clinic was “less interested in compensation as it is for readers.” Went on to imply that because I’m a ‘reader’ too asking for fair $=wrong. #DisabilityRights
Update: I did not leave a message for @MassageEnvy & told them I’d be unable to talk last night as I was at the hospital all evening. They called while I was there even though I DID NOT leave my name or number. Not cool. Today “no managers are in.” Isn’t that convenient?!
There's a vibrant #chronicillness community waiting for you on Instagram. Here are some accounts you should follow (it was so hard to choose just 12) My new article for @healthcentral bit.ly/2VGZqw8 @CaleighHaber @HurtBlogger @chronicbabe @justagoodlife @eatyourkimchi
THIS
It’s only Monday and already I’ve given an impassioned speech with tears streaming down my face to a judgemental doctor. Let’s just say he is not up to the task of managing my care.
Hello all 🤗 I’m doing better today. I’ve slept most of today. The ER looked up my OHSU rheum chart before entering my room, so they had my latest notes from my team 🙏🏼. They effectively treated my pain to stop the bad cycle I was in & talked to my rheumy to continue her plan🙏🏼
I’m checked into the ER, I listened to y’all (and my family). Thanks for the nudge and support 🙏🏼 cc: @stales et al 💙
Who says I can’t wear heels! #Onlyonmyscooter #rheum-life #chroniclife #mylife #ICan #adapt #spoonie #prettyinpink 👠👍🏼💕#scootergirl 💖💙
If only there was an ER that would come to my bed and treat me... because I’ll be damned if I’m getting outta my bed. Also, asking for a friend... how many days is too many days of toughing out the ER?
THIS
I am wary of a purported association between Bechet’s and HSV bc of rarity of former - it would be hard to get a good HSV incidence rate in #Bechets and likely to be #ascertainmentbias from higher testing rates bc of Bechet’s #ulcers. #epidemiology
Shoulder compression/support. Whatdya got? What’s the best thing to keep me from sawing my arm off? #EDS #Hypermobility #ChronicPain #rheum
After so many dr’s appointment my sense of modesty has gone a radical re-definition...
I wouldn't be doing it for a few weeks, but should I do another #ChronicLife challenge, in which I tweet every time my health impacts my day? (Challenge created by the wonderful @HurtBlogger)
8 vote · Final results
I am wary of a purported association between Bechet’s and HSV bc of rarity of former - it would be hard to get a good HSV incidence rate in #Bechets and likely to be #ascertainmentbias from higher testing rates bc of Bechet’s #ulcers. #epidemiology
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