Western Canadian with CCI
@MrkStdngr
#ME #CFS #CCI #POTS #MCAS
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It really really shows.
Wow — new AI-made articles online are already outnumbering human-generated content.
Plane crashes in Fort Worth, Texas, multiple vehicles on fire.
NEW: 53 participants involved in the Vyvgart trial for #LongCOVID are calling on the government to fund research for the drug after they saw significant improvements that the study design didn’t capture. thesicktimes.org/2025/10/10/vyv…
Has anyone ever gotten IVIG in Canada for Long COVID, ME/CFS, etc? I’ve never heard of it happening. Do I even have a chance if I ask for it?
Guys this is my GofundMe, I am in the deepest trouble. 28 yo bedridden and non verbal. If you could help means a lot. Thank you! Much love!❤️ gofund.me/a8d042ec9
1) It seems that glutamate is becoming a very important concept for both #LongCOVID and #MECFS. A recent study (see end of thread) found increased AMPA receptors and increased excitotoxicity risk. #networkanalysis and #machinelearning previously identified this
Yesterday unable to do anything else I was “writing” with my finger on my bed mattress “HELP”. I wrote it so many times. Feel lost in the void. Much worse than a prisoner. Nobody here listens. Dont know what else to do. #severeme #pwme #mecfs #longcovid
PEM series preview BH2 + BH4 decreased after PEM in our patient These cofactors are crucial for neurotransmitter synthesis and blood vessel dilation Depletion suggests oxidative stress overwhelms the system, possibly contributing to vascular, cognitive, and immune dysfunction
Is there anything like a patient advocate in Greece? Please I need help as a very severe me/cfs and co. Patient. #severeme #pwme #mecfs #greece
If you have Hummingbirds where you live, please get a feeder. They have such high metabolisms they can die in hours without food. I noticed some near my apartment and got one. Now I have like 14-15 all day at the feeder. Clearly not enough feeders around anymore.
Orcas ramming and sinking boats might just be a sign they’re pissed about climate change. Water temperatures are skyrocketing, they’re probably pretty hot. Reality of normal.
Not all of it is COVID, but a lot of it is. Sad everyone has fallen for the its mild.
1. Worth noting that low haptoglobin is commonly associated with Babesia infection. Babesia is a parasite that in a chronic capacity can drive fatigue, body aches, headaches and other symptoms often experienced by patients with an ME/CFS diagnosis pmc.ncbi.nlm.nih.gov/articles/PMC53…
New study on PEM! After a mild stress challenge, people with ME had a sharp drop in haptoglobin (Hp), a blood protein that protects the body from damage when red blood cells break down. Low Hp correlated with worse PEM & cognition. …nslational-medicine.biomedcentral.com/articles/10.11… 1/ #LongCovid #pwme
Condo price collapse so far by city
It’s really crazy where we are at with this. ACT Test Scores in the USA have hit a 30 year low, it wasn’t the lockdowns, it was the Brain Damage and Viral Persistence in the Brain.
My ME/CFS, LC situation has been so nightmarish I’d never be same again. I’d live in a tent or trailer in middle of nowhere North America the rest of my life. It’s just destroyed my opinion of people. To help a disease this tragic get overlooked has destroyed my faith in humanity
Heartbroken to hear about @Bridget_OShea. I spoke to her on Spaces many times and she was a truly lovely woman. (This was her flyer we handed out on LC Awareness Day) #LongCovid and #MECFS kill!!!
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