RADeep Network
@RADeep_network
RADeep (Rare Anaemia Disorders European Epidemiological Platform) is a GDPR-compliant patient registry launched in 2017.
🩸🌍The RADeep Network is now live on social media! 🔎What is #RADeep? Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.
SYNTHEMA builds on strong ethical and collaborative foundations: 🩺 @ERNEuroBloodNet – Europe’s rare haematology network 📊Contributions to ENROL, EU RD Platform, and @RADeep_network 🤝Partnership with @flwrlabs - open-source federated learning for privacy-preserving AI
🎧Discover the latest episode of the @EHA_Hematology Unplugged podcast, “Point-of-care Tests for Neonatal Screening of Sickle Cell Disease”, featuring Prof. Gulbis Béatrice, Co-Coordinator of ERN-EuroBloodNet. 🎙️Listen to the full episode here: youtube.com/watch?v=OwIekj… #ERNs
youtube.com
YouTube
Point-of-care Tests for Neonatal Screening of Sickle Cell Disease...
Presenting the Charter for Optimal Transitions in #SCD at the European Parliament🌍 A collective policy framework developed with clinicians, patients, and experts across Europe to strengthen continuity of care between pediatric and adult services. 🔗bit.ly/4qk0npD
🌍At #ASCAT2025, ERN-EuroBloodNet & @RADeep_network organised a 3 day patient educational programme focused on sexual health and #SCD. Together,these discussions represent a step forward in recognising sexual health as an integral part of comprehensive,patient-centred SCD care.
🌍Last week, the RADeep team was proud to attend the #ASCAT2025! 🤝With the @ERNEuroBloodNet , we were present with a dedicated booth and, as part of the program, we were also proud to co-host the Patients Sessions: “Sexual Health Program for Patients with Sickle Cell Disease”
✅ Day 2 | ERN-EuroBloodNet & RADeep Network – #SCD Patients Session at #ASCAT2025 ! 𝗦𝗲𝘅𝘂𝗮𝗹 𝗛𝗲𝗮𝗹𝘁𝗵 𝗣𝗿𝗼𝗴𝗿𝗮𝗺 𝗳𝗼𝗿 𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝘄𝗶𝘁𝗵 𝗦𝗶𝗰𝗸𝗹𝗲 𝗖𝗲𝗹𝗹 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 🔹Today’s focus: Gender-Specific Sessions: Reproductive Health & Intimacy in SCD.
📣Keep connected and follow all the updates on the #SCD Patients Session at #ASCAT2025!
✅ Day 1 | ERN-EuroBloodNet & RADeep Network – #SCD Patients Session at #ASCAT2025 ! Sexual Health Program for Patients with Sickle Cell Disease 🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health #ERNs #hematology #RADeep #ERNeu #ASCAT2025
Through collaborations with @RADeep_network & @ERNEuroBloodNet, #SYNTHEMA aligns rare disease datasets with European standards. This ensures interoperability across registries and hospitals, strengthening the foundation for synthetic data and AI solutions in real-world healthcare
🩸The 20th Annual Sickle Cell & Thalassaemia Conference #ASCAT2025, officially kicked off today! 📍@ERNEuroBloodNet and #RADeep are proud to be present with a dedicated booth, come visit us! 🔗Stay tuned for updates and insights from the conference! #SickleCell #Thalassaemia
📣We are looking for a dedicated & detail-oriented Study Coordinator! ✅Ensure smooth communication across teams and stakeholders ✅Documentation management ✅Act as a bridge between the RADeep coordinating team, data providers & external collaborators. bit.ly/4nsaE12
✅A successful and inspiring RADeep DAC Annual Meeting! 🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron for the annual #RADeep Data Access Committee (DAC) meeting. radeepnetwork.eu
By coming together as a united community, we can advance knowledge. With collaboration at the core of our initiatives for furthering research, clinical practice, and education, we help you advance your career in #hematology. View our upcoming networking opportunities around the…
📢Exciting news! The RADeep Data Access Committee (DAC) is meeting next Thursday, the 18th, at @VHIR_ We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝 🌐radeepnetwork.eu #RADeepNetwork #RADeep #RareDiseases
🗓On April 11, #RADeep hosted an in-person Hands-On Session on Data Entry at @VHIR_ , Barcelona. 🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece. ▶️Find out more radeepnetwork.eu #RareDiseases #hematology
Interested in synthetic data, rare diseases, or AI-powered breakthroughs in hematology? Visit #SYNTHEMA’s publications section to explore work on data privacy, federated learning, AI in rare blood diseases, clinical decision-making for HSCT, and more. 👉 Start reading:…
📣 Registration and abstract submission for the 2026 #EHA Research Conference are now open. Dive into normal and malignant hematopoiesis in young and aged settings over the course of 3.5 days. #EHAReCon2026 will once more feature multiple poster walks, a social activity, and…
United States Trends
- 1. #hazbinhotelseason2 34.9K posts
- 2. Good Wednesday 19.8K posts
- 3. ADOR 34.3K posts
- 4. Northern Lights 48.8K posts
- 5. #HazbinHotelSpoilers 3,529 posts
- 6. #huskerdust 9,430 posts
- 7. Vaggie 6,742 posts
- 8. USDT 114K posts
- 9. Hump Day 7,968 posts
- 10. StandX 2,427 posts
- 11. MIND-BLOWING 35.5K posts
- 12. Hanni 11.1K posts
- 13. #chaggie 5,253 posts
- 14. #Aurora 10.6K posts
- 15. SPECTACULAR 25.6K posts
- 16. Carmilla 2,700 posts
- 17. Wike 242K posts
- 18. H-1B 40.6K posts
- 19. Superb 23.2K posts
- 20. Justified 19K posts
Something went wrong.
Something went wrong.