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TheMyositisAssc's profile picture. The mission of The Myositis Association is to improve the lives of persons affected by myositis, fund innovative research, and increase awareness and advocacy.

The Myositis Association

@TheMyositisAssc

The mission of The Myositis Association is to improve the lives of persons affected by myositis, fund innovative research, and increase awareness and advocacy.

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The Myositis Association
 @TheMyositisAssc
7 h

Giving Tuesday takes place on Tuesday, December 2, 2025. Join the movement by supporting TMA! Donate online, share TMA membership, or tell your story at myositis.org!

TheMyositisAssc's tweet image. Giving Tuesday takes place on Tuesday, December 2, 2025. Join the movement by supporting TMA! Donate online, share TMA membership, or tell your story at myositis.org!
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The Myositis Association
 @TheMyositisAssc
9 h

🎖️ On this Veterans Day, The Myositis Association honors the strength and sacrifice of all who’ve served. We are especially grateful for the veteran community members living with myositis. You are true warriors in every sense. Your courage continues to inspire our mission.

TheMyositisAssc's tweet image. 🎖️ On this Veterans Day, The Myositis Association honors the strength and sacrifice of all who’ve served. We are especially grateful for the veteran community members living with myositis. You are true warriors in every sense. Your courage continues to inspire our mission.
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The Myositis Association
 @TheMyositisAssc
Nov 10

Join us TOMORROW for "A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results" on Tuesday, November 11 at 12:00 pm - 1:00 pm ET! RSVP today! myositis.org/event/a-potent…

TheMyositisAssc's tweet image. Join us TOMORROW for "A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results" on Tuesday, November 11 at 12:00 pm - 1:00 pm ET! RSVP today! myositis.org/event/a-potent…
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The Myositis Association
 @TheMyositisAssc
Nov 5

This year’s Nobel Prize in Physiology or Medicine was awarded to three scientists—Mary E. Brunkow, Frederick J. Ramsdell, and Shimon Sakaguchi—for discoveries that help explain why the immune system sometimes turns against the body. Read now: myositis.org/blog/nobel-pri…

TheMyositisAssc's tweet image. This year’s Nobel Prize in Physiology or Medicine was awarded to three scientists—Mary E. Brunkow, Frederick J. Ramsdell, and Shimon Sakaguchi—for discoveries that help explain why the immune system sometimes turns against the body. Read now: myositis.org/blog/nobel-pri…
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The Myositis Association
 @TheMyositisAssc
Nov 3

Conditions such as Lambert-Eaton myasthenic syndrome (LEMS), myasthenia gravis (MG), and inclusion body myositis (IBM) affect how muscles and nerves communicate, leading to muscle weakness and fatigue. Read the full article now usnews.com/news/health-ne…

TheMyositisAssc's tweet card. Understanding Autoimmune Neuromuscular Diseases: Signs, Causes & Treatment
Understanding Autoimmune Neuromuscular Diseases: Signs, Causes & Treatment
Source: usnews.com
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The Myositis Association
 @TheMyositisAssc
Oct 31

Thank you to our 2025 World Myositis Day Sponsors @AstraZeneca, @CabalettaBio, and Pfizer MyOPath!

TheMyositisAssc's tweet image. Thank you to our 2025 World Myositis Day Sponsors @AstraZeneca, @CabalettaBio, and Pfizer MyOPath!
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The Myositis Association
 @TheMyositisAssc
Oct 30

TMA and AACR urge the American people to make their voices heard in support of NIH’s lifesaving medical research. aacr.org/professionals/…

TheMyositisAssc's tweet image. TMA and AACR urge the American people to make their voices heard in support of NIH’s lifesaving medical research. aacr.org/professionals/…
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The Myositis Association
 @TheMyositisAssc
Oct 29

TMA member Lindsay Guentzel's Patient Perspectives poster was selected for presentation at the American College of Rheumatology meeting in Chicago.

TheMyositisAssc's tweet image. TMA member Lindsay Guentzel's Patient Perspectives poster was selected for presentation at the American College of Rheumatology meeting in Chicago.
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The Myositis Association
 @TheMyositisAssc
Oct 28

A heartfelt thank you goes out to our MyoCon 2025 Longhorn Sponsors: argenx - @argenxglobal, Bristol Myers Squibb - @bmsnews, and Mallinckrodt Pharmaceuticals- @MNK_Pharma. .

TheMyositisAssc's tweet image. A heartfelt thank you goes out to our MyoCon 2025 Longhorn Sponsors: argenx - @argenxglobal, Bristol Myers Squibb - @bmsnews, and Mallinckrodt Pharmaceuticals- @MNK_Pharma. .
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The Myositis Association
 @TheMyositisAssc
Oct 27

TMA is exhibiting at the American College of Rheumatology, @ACRheum, meeting in Chicago. If you happen to be in the neighborhood, drop by booth 2110 and say hi!

TheMyositisAssc's tweet image. TMA is exhibiting at the American College of Rheumatology, @ACRheum, meeting in Chicago. If you happen to be in the neighborhood, drop by booth 2110 and say hi!
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The Myositis Association
 @TheMyositisAssc
Oct 27

TMA cohosted the first Collaborative Myositis Groups Summit at the American College of Rheumatology, @ACRheum, meeting in Chicago.

TheMyositisAssc's tweet image. TMA cohosted the first Collaborative Myositis Groups Summit at the American College of Rheumatology, @ACRheum, meeting in Chicago.
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The Myositis Association
 @TheMyositisAssc
Oct 24

Thank you to our MyoCon 2025 sponsor, Octapharma, for your ongoing support of TMA and the myositis community!

TheMyositisAssc's tweet image. Thank you to our MyoCon 2025 sponsor, Octapharma, for your ongoing support of TMA and the myositis community!
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The Myositis Association
 @TheMyositisAssc
Oct 23

Got questions? Our experts have answers! Explore TMA's Ask the Expert YouTube playlist and get professional insights on topics that matter to you, from treatments to daily living tips and more. Start watching now: youtube.com/playlist?list=…

TheMyositisAssc's tweet image. Got questions? Our experts have answers! Explore TMA's Ask the Expert YouTube playlist and get professional insights on topics that matter to you, from treatments to daily living tips and more. Start watching now: youtube.com/playlist?list=…
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TheMyositisAssc's profile picture.
The Myositis Association
 @TheMyositisAssc
Oct 21

Join us THIS Thursday for Ask the Expert with Elie Naddaf, MD on October 23, 2025, at 12:00 pm - 1:00 pm ET. RSVP Today! myositis.org/event/ask-the-…

TheMyositisAssc's tweet image. Join us THIS Thursday for Ask the Expert with Elie Naddaf, MD on October 23, 2025, at 12:00 pm - 1:00 pm ET. RSVP Today! myositis.org/event/ask-the-…
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TheMyositisAssc's profile picture.
The Myositis Association
 @TheMyositisAssc
Oct 17

A HUGE thank you to MyoCon 2025 Sponsor @pfizer for your ongoing support of TMA and MyoCon!

TheMyositisAssc's tweet image. A HUGE thank you to MyoCon 2025 Sponsor @pfizer for your ongoing support of TMA and MyoCon!
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The Myositis Association
 @TheMyositisAssc
Oct 16

Join us next Thursday for Ask the Expert with Elie Naddaf, MD on October 23, 2025, at 12:00 pm - 1:00 pm ET. RSVP Today! myositis.org/event/ask-the-…

TheMyositisAssc's tweet image. Join us next Thursday for Ask the Expert with Elie Naddaf, MD on October 23, 2025, at 12:00 pm - 1:00 pm ET. RSVP Today! myositis.org/event/ask-the-…
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The Myositis Association
 @TheMyositisAssc
Oct 15

Former US Congressman and former Mayor of Dallas, Steve Bartlett, served as the opening Keynote Speaker at MyoCon: TMA’s Global Myositis Patient Conference in Dallas. Read the full blog now! myositis.org/blog/bartlett-…

TheMyositisAssc's tweet image. Former US Congressman and former Mayor of Dallas, Steve Bartlett, served as the opening Keynote Speaker at MyoCon: TMA’s Global Myositis Patient Conference in Dallas. Read the full blog now! myositis.org/blog/bartlett-…
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The Myositis Association
 @TheMyositisAssc
Oct 14

Join us TOMORROW for Understanding Clinical Trials, October 15, 2025, at 12:00 PM ET / 6:00 PM CEST RSVP today: myositis.org/event/understa…

TheMyositisAssc's tweet image. Join us TOMORROW for Understanding Clinical Trials, October 15, 2025, at 12:00 PM ET / 6:00 PM CEST RSVP today: myositis.org/event/understa…
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TheMyositisAssc's profile picture.
The Myositis Association
 @TheMyositisAssc
Oct 10

I just got back from MyoCon25, and honestly? I’m still recovering—in a good way. For those of us living with a rare disease like inclusion body myositis (IBM), this kind of conference is more than just PowerPoints and name tags. It’s a lifeline. Read more: myositis.org/blog/myocon-we…

TheMyositisAssc's tweet card. Linda Thomas is still recovering—in a good way. For her, MyoCon was more than just PowerPoints and name tags.
MyoCon: We are not alone - The Myositis Association
Source: myositis.org
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The Myositis Association
 @TheMyositisAssc
Oct 9

💙 Giving Spotlight: Running with Purpose 👟 Lauren Logeman is lacing up for the Chicago Marathon on 10/12/25, raising over $3,000 for The Myositis Association in honor of her friend and mentor, Brian Hoban. Donate today: donorbox.org/fundraise-for-…

TheMyositisAssc's tweet image. 💙 Giving Spotlight: Running with Purpose 👟 Lauren Logeman is lacing up for the Chicago Marathon on 10/12/25, raising over $3,000 for The Myositis Association in honor of her friend and mentor, Brian Hoban. Donate today: donorbox.org/fundraise-for-…
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thenation's profile picture. Founded by abolitionists in 1865. Committed to progressive journalism. Subscribe: https://t.co/iJh9hpMCwv.

The Nation

@thenation
MHarrisLove1's profile picture. Professor @CUPhysTher | Associate Dean @CUPhysMed | Lab Director @EasternCoGrecc | Applied research re: muscle, aging + sarcopenia ▪︎ Imported from Detroit ▪︎

Michael Harris-Love

@MHarrisLove1
MyositisMikeMan's profile picture. Watch me kick some #myositis butt. I have statin induced Necrotizing Myositis HMGCR and Dysphagia. There is no doubt that I will beat both!

MyositisMikeMan

@MyositisMikeMan
WIRheum's profile picture. Rheumatology, immunology, virology enthusiast. Patient advocate.

D White

@WIRheum
ldeardoff's profile picture.

ldeardoff

@ldeardoff
myositiswarrior's profile picture. Superheroes are common in San Diego at Comic Con. Rare disease superheroes for Myositis, not so much. Building awareness!

Myositis Warrior

@myositiswarrior
SuzGamboa's profile picture. @NBCNews I am a senior writer covering Latinos, politics, news, a proud Chicana with roots in Texas and Mexico and a big fan of the right to vote.

Suzanne Gamboa

@SuzGamboa
Brogan_Driscoll's profile picture. Writer & Editor | Toddler twin mum | Sea swimmer, yoga lover 💫 Formerly: Senior Editor (Commercial Partnerships & Life), @HuffPostUK

Brogan Driscoll

@Brogan_Driscoll
GordonMiyoshi's profile picture. Humanitarian|MultiAward-WinningAuthor|Advocate|Speaker| #TouchingLivesOneAtATime

Dr. Miyoshi Gordon DHum

@GordonMiyoshi
ke_skiles's profile picture. Avid homebrewer. Fighting sIBM

Kenneth Skiles

@ke_skiles
MaricarmeOchoa's profile picture. Internista-Reumatóloga- Bioetista-Docente de la Universidad del Azuay. Honro la vida, amo lo que hago y soy felíz.

María del Carmen Ochoa

@MaricarmeOchoa
MargaritaGromo8's profile picture. Rheumatologist, physician, assistant of the department. PhD. Pirogov Russian National Research Medical University (RNRMU)

Margarita Gromova

@MargaritaGromo8
msokolova_rheum's profile picture. Rheumatology resident at @UKSH_KI_HL, past @EMEUNET Subcommitee member. Alumnus @MoscowStateuniv @uniFAU. Current Interest in synovial research and irAE.

Maria Sokolova, MD PhD

@msokolova_rheum
MichaelOmbrello's profile picture. Fun loving husband father & rheumatologist-scientist hunting for cures to systemic arthritis #Stills #sJIA #AOSD #curesjia Opinions are my own

Rain Man

@MichaelOmbrello
FigueRamirez's profile picture. Medico Internista Reumatologo, EX-Presidente Asociacion Colombiana de Reumatologia

javier ramirez figue

@FigueRamirez
Grandmarnie25's profile picture. Christian, loving mother, grandmother, great-grandmother and very concerned citizen.

Grandmarnie

@Grandmarnie25
DBHolcomb's profile picture. Saying yes to life!

Diane Holcomb

@DBHolcomb
Dasani605's profile picture. You Only Have One Life! Roll It To The Wheels Fall Off!

Lakeisha Jenkins With A Bad Hair Weave!!!

@Dasani605
wstfcure's profile picture. Our mission is to educate the world about the disease Syringomyelia and Chiari malformation.

wstfcure

@wstfcure
DDoskaliuk's profile picture. #MD, #PhD_student with interests in the field of #rheumatology and particularly #pathophysiology of #systemicsclerosis,@EMEUNET member, regular #reviewer

Dana Doskaliuk

@DDoskaliuk
MartinGrec0's profile picture. #Reumatólogo #Autoinmunidad #Deporte #VidaSana

Martin Greco

@MartinGrec0
cougarkristi's profile picture. I am a mommy living with Dermatomyositis. I fight this disease every day to live the best life I can with my boys.

Kristi Folsom

@cougarkristi
kyliemclean7's profile picture. Lifelong learner determined to find a cure for #dermatomyositis. Bacon fanatic. #lowcarb chemical-free lifestyle with #Youngliving. NY Jets fan. Believe.

Kylie McLean

@kyliemclean7
SujataGanguly17's profile picture. Rheumatologist l Writer I Eternally in search of good food. @UHL NHS Trust I DM Clinical Immunology and Rheumatology @SGPGI LKO

Sujata Ganguly

@SujataGanguly17
seminarthrheum's profile picture. Publishing high-quality clinical, therapeutic and translational research for the practicing Rheumatologist. Impact factor 5.431. An Elsevier journal.

Seminars in Arthritis and Rheumatism

@seminarthrheum
BeyondRheumatol's profile picture. Official Journal of CReI (Collegio dei Reumatologi Italiani) #OpenAccess, peer-reviewed journal focused on new discoveries on #rheumatism and allied conditions.

BeyondRheumatology

@BeyondRheumatol
evenworsecop's profile picture. Liberal, Democrat, Secular, European, Physics Ph.D. Slava Ukraini (Слава Україні!) (Skeptic, occasional cynic. Fluent sarcasm.)

Lucy Fair 🇪🇺🇺🇦

@evenworsecop
JK77775's profile picture. Rheumatologist #Digitalhealth #Myositis Researcher @rheumadocs @digital_rheuma

Johannes Knitza

@JK77775
_BrightFocus's profile picture. BrightFocus funds groundbreaking research to discover cures for Alzheimer's, macular degeneration and glaucoma. Also posting on Bluesky.

BrightFocus Foundation

@_BrightFocus
AiimsCnmd's profile picture. AIIMS Comprehensive Neuromuscular Disorders Center (AIIMS-CNMD) is a virtual centre for AIIMS CNMD Clinic @AiimsNeurology

AIIMS-CNMD

@AiimsCnmd
Rushrheum's profile picture.

Rush Rheumatology

@Rushrheum
OffScripHealth's profile picture. 🎙 Making podcasts solely focused on #consumerhealth and #patientengagement. Building community & empowering people to become advocates for their own health.

OffScrip Health

@OffScripHealth
PARareDisease's profile picture. To improve the quality of life for all those affected by rare diseases in Pennsylvania.

PA Rare Disease Advisory Council

@PARareDisease
KruscheMartin's profile picture. Rheumatologist/ special interest in eHealth, autoinflammatory diseases, vasculitis & medical teaching/ views are my own

Martin Krusche

@KruscheMartin
ajerezlienas's profile picture. Internal Medicine & Autoimmune Diseases. HUMT @Mutua_Terrassa Unitat de Malalties Autoimmunes Sistèmiques @UMAS_Mutua @GTGEASSEMI @SociedadSEMAIS #EAS #POCUS

A. Jerez

@ajerezlienas

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