OomaVerse at bluesky
@Troevs
pwME. Disabled. Slightly anonymous in order to be free. Bluesky OomaVerse
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Had enough of people deciding on my care, quality of life & future when their knowledge of my condition & disability is so minimal #pwME
I do not need to see what happens because I know my evidence-base and I know my coroner’s inquests. Cut benefits and people will die unnecessarily in awful conditions, health will deteriorate and indirect costs - more hospital admissions, more need for social care- costing more.
The next barrier to supermarket shopping arrives in some London & SE stores. A touchscreen with a 4 stage process to open the door. Hope you are ready for the inevitable legal actions @Tesco as this is totally inaccessible to many. Equality Act⁉️ #DisabledByTheSupermarkets
MOTABILITY vs COMPANY CARS Motability: £2.8bn from benefits → new car for disabled. Demonised as "scroungers". Company cars: £3bn in tax breaks → execs in EVs. Abuse ignored. Both public money. Both can be gamed. Why target the wheelchair user but not the CEO?
Absolutely love this #MEcfs Insta reel! It's hilarious, spot-on, and a total must-watch. 1/
i can't tell if i've developed an allergy to amox-clav (another effing UTI), or if it's the ivabradine i started last week, but i'm itching like mad & have various rashes & bumps (& now scratch marks) on my arms, legs, & torso. please holler if either is familiar to you? 🙏
2) Unfortunately, the study itself doesn't warrant the hype. It comes from the company Oxford BioDynamics (OBD), that developed a new epigenetic test called EpiSwitch which they now applied to ME/CFS. There are lots of limitations...
Refork UK Kent were the DOGE flagship @Arron_banks, @LeaderofKCC, @ZiaYusufUK, @nattyfried and Councillor Brian Collins all lined up on Kent County Hall's staircase saying this would be rolled out to all Reform UK councils. Today they've announced they've barely found any…
Hugh Grant, "Politicians mistakenly believe that their entire careers and fate rely on sucking up to the owners of tabloid newspapers" "But such was the pressure of the big newspaper barons on government, and such was the cowardice of government, that they found a tiny technical…
3. this is not the moment for an incredibly expensive increase in state surveillance infrastructure to be run for profit by private tech firms just before Labour ushers in an (even more) authoritarian right wing government. FIX THE GODDAMN COST OF LIVING INSTEAD YOU FREAKS.
2. Countries that have ID cards - like the whole of Europe - still have the same irregular migration problem (you may have heard!!!) & in fact the UK has the lowest share of its economy estimated as irregular economy in Europe so if it fixes the issue WHY DIDNT IT FIX IT THERE?
Ok. They’ve pissed me off. I’m back to tell you 3 things about ID cards: 1. Migrants ALREADY HAVE biometric ID cards & govts have been trying to digitise them for years w repeated fuckups & failures causing complete chaos - they don’t work, you do not want that system for you.
Yesterday I was on BBC Radio Scotland to discuss survey results that showed two thirds of girls changed their daily behaviour due to sexual harassment. A man then texted in to say that schoolgirls shouldn’t wear short skirts if they don’t want to be harassed. Unbelievable.
Does anyone know if nattokinase can break down DVTs? The warfarin is not really doing its job. What the anticoagulants should be doing, is that they should be stopping any further clotting, so that my body can break down the existing DVT.
"“complex” patients are failing to access even basic medical diagnostics, because doctors mentally check out (or don’t have time to check in) and cannot see the forest for the trees.'
Wow, the doctor out east screening me for the clinical trial who ran all these other tests actually emailed me back late last night after getting the results 🤯 (bless him for not waiting until my follow up in December #GoodDoctors 🌟), and told me not only is the (flagged) DHEA…
Can you please paste below articles on very severe me/cfs? Both scientific and patient stories/articles. Thank you 🤍 #pwme #severeme #longcovid
This is the most spot-on explanation of what's happened to disaffected Gen Z boys in America I've heard yet. There are a shitload of Tyler Robinsons in the US. Steve Bannon, Milo Yiannopoulos, Nick Fuentes and Charlie Kirk created a Frankenstein monster that's now out of control.
Ah no going to have to face hard truth & go back to less convenience & probably more expense. Margins/balance with many supplements that help me are so fine can't mess with reliability let alone risk get exposed to gawd knows what.
Reposting this because I know the #MECFS and #LongCovid communities take so many supplements. If you can buy from somewhere else, do so. Amazon is dangerously co-mingling stocks so even if you buy the real one, they may send you a counterfeit instead.
I invite those with ME, ME/CFS, and CFS, their families, healthcare providers, and researchers to participate in a survey (link below) on case definitions and cardinal symptoms of this illness. redcap.is.depaul.edu/surveys/?s=PY7… Thank you for your assistance. Lenny Jason
Tomatoes blamed for UK Salmonella food poisoning outbreak | Times and Star southwalesargus.co.uk/news/national/…
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