Your ALS Guide
@YourALSguide
A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
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After a year of collaboration with families and professionals across the #ALS community, our new ALS Home and Daily Living Guide is now live! A special thank you to @ALSHF for their guidance and support. Visit youralsguide.com/als-daily-livi…
Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at youralsguide.com/newsletter #ALS #ENDALS
We are an educational website for families impacted by ALS. Visit us at youralsguide.com #als #endals
When living ALS, tending to your mental health can help you find peace of mind and have a renewed sense of control. Learn more about mental, emotional, social, and physical well-being at youralsguide.com/als-mental-hea… #als #MentalHealthMatters
Respite care can help #ALS family caregivers avoid burnout by providing much-needed breaks. Depending on your local resources and support network, you may be able to find caregiving help at no cost. Learn more at youralsguide.com/respite-care #NationalFamilyCaregiversMonth
If you are a Veteran who has been diagnosed with ALS, you should qualify for significant VA benefits, including medical equipment, care at VA ALS clinics, disability compensation, a home renovation grant, and an automobile grant. Learn more at youralsguide.com/veterans-with-… #ALS
Caregivers sometimes feel guilty for taking care of their own needs. But the better you care for yourself, the better caregiver you will be. Finding time for yourself can help you recharge. Learn more at youralsguide.com/taking-care-of… #NationalFamilyCaregiversMonth #ALS
We would like to recognize all of the love and energy #ALS caregivers share every single day. Our ALS Caregivers section has information about self-care, respite care, support groups, support services, care options, and more: youralsguide.com/caregivers #NationalFamilyCaregiversMonth
When living with #ALS, setting up smart home devices can help you remain more independent and have greater control over your environment. Learn more at youralsguide.com/als-smart-home #SmartHome
If you are struggling to chew or swallow, or get fatigued while eating, a feeding tube can be a safe and reliable way to get the calories and nutrients your body needs. Learn more at youralsguide.com/feeding-tubes #ALS
We are an educational website for families impacted by ALS. Visit us at youralsguide.com #ALS #ENDALS
We have created an in-depth page on genetic ALS, counseling, and testing. Learn who may be at risk, how counseling might be helpful, what to consider, how testing works, and where you can get tested. Learn more at youralsguide.com/genetic-testing #ALS #ALSGENETICS
Getting a good night’s sleep can be challenging for people living with ALS. There are strategies and devices that can help. Sleeping better can improve your mood, energy level, and overall outlook on life. Learn more at youralsguide.com/als-and-sleep #ALS
Moderate exercise can be beneficial, but you should not push yourself too hard. Learn more at youralsguide.com/exercise-and-a… #ALS
There are many dressing devices that your occupational therapist may be able to recommend to help you continue to get dressed on your own. Learn about button hooks, sock aids, dressing sticks, and more at youralsguide.com/dressing-aids #ALS
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