Kevin Feng 님이 재게시함
Regulatory flexibility and the patient voice must be part of every decision for rare diseases. #PleaseListenFDA
Kevin Feng 님이 재게시함
95% of rare diseases have no treatment. Cameryn’s courageous story reminds us what is at stake. Share Cameryn’s story. #ataxia #KnowAtaxia #RareDisease
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