Richard Corliss
@richcomms
Director, EU Public Affairs, Takeda. I tweet about health policy, politics, EU. All opinions are my own and do not necessarily represent Takeda's views.
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Today is #RareDiseaseDay! We stand together with people living with a rare disease, their families, and their carers! #ShowYourRare #RareDiseases
#RareDiseaseDay 30 million people in #EU concerned by rare #diseases and all those working to make their lives better are in our hearts today. ❤️ #RareDisease #ShowYourRare
Today is #RareDiseaseDay 2019! Events are taking place in 90+ countries around the world to raise awareness of the impact of rare diseases. Find an event near you rarediseaseday.org/events/world #ShowYourRare
#WeWontRest until people with #rarediseases get faster access to medicines, based on innovative access models and use of real-world evidence #PatientEngagement @Shireplc bit.ly/2OiALtP
Looking forward to the discussion!
On 28 March we'll be joining forces with Cristian Buşoi to host the launch of the ATLAS Programme, aimed to improve standards of care for chronic intestinal failure. For more info visit bit.ly/2FBpVaR #chronicdiseases, #rarediseases, #EuropeanReferenceNetworks #ERN
Prof. Rolf Heuer, German particle physicist and former DG of @CERN is coming to speak at the chamber! Register here: bit.ly/2zfeYII
How can we improve access to care and diagnosis for #RareDiseases? We are kicking off our discussion ⚡️ #FoEHealth
To ensure that innovation potential is fully realised, health systems will need to prepare in 5 areas #efpia2016
Missed the first session of #efpia2016? Here's a visual summary!
"Patient Groups have been the driving force of change over the past decade" Emmanuel Chantelot #ECRD2016 @RareX_2016
Prats Monné "#EuropeanReferenceNetworks are the most excellent representation of what the #EU can do for citizens" #ECRD2016 @EU_Health
Learn about the challenging journey to diagnosis many patients with #RareDiseases face bit.ly/1mXKqnK @Shireplc #RareDiseaseDay
#RareDisease Platform team members including EURORDIS staff raise & join hands for #RareDiseaseDay @rarediseaseday
RT: @Shireplc Happy Birthday to us! Celebrating 30 years and looking forward to what's next! bit.ly/1V1sUup #Shire30
Have you seen the new @RareDiseaseDay 2016 poster? Download it and share it with family & friends! ow.ly/XdIgg #RareDiseaseDay
New EPC Policy Brief on health outcomes & pharma innovation builds on @epc_eu @Shireplc initiative 'Transformations' bit.ly/1Nl2PE9
RT: @epc_eu Towards better #health outcomes - What role for pharmaceutical innovation? epc.eu/pub_details.ph… … @AnnikaAhtonen
WEEKEND READS | Towards better #health outcomes - What role for pharmaceutical innovation? epc.eu/pub_details.ph… @AnnikaAhtonen
Best wishes to all campaigners on #WorldPrematurityDay! Keep up the great work! @EFCNIwecare
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