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scleroderma_vic's profile picture. Supporting the Scleroderma Community in Victoria

Scleroderma Victoria

@scleroderma_vic

Supporting the Scleroderma Community in Victoria

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Scleroderma Victoria
 @scleroderma_vic
Oct 17

You’re invited to the #SclerodermaVictoriaAGM 2025! Join us on 22 Nov at the RACV Club, Melbourne, 1–4pm to connect, learn, and celebrate our community. Guest speaker: Dr Wendy Stevens Learn more here: eventbrite.com.au/e/2025-sclerod… #SclerodermaCommunity

scleroderma_vic's tweet image. You’re invited to the #SclerodermaVictoriaAGM 2025! Join us on 22 Nov at the RACV Club, Melbourne, 1–4pm to connect, learn, and celebrate our community. Guest speaker: Dr Wendy Stevens Learn more here: eventbrite.com.au/e/2025-sclerod… #SclerodermaCommunity
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Scleroderma Victoria
 @scleroderma_vic
Nov 7

You’re invited to the 2025 #SclerodermaVictoriaAGM! Join us on 22 Nov (1–4pm) at the RACV Club, Melbourne for an afternoon of learning, connection and community. Hear Dr Wendy Stevens share the latest research and clinical trial insights. Register now! eventbrite.com.au/e/2025-sclerod…

scleroderma_vic's tweet image. You’re invited to the 2025 #SclerodermaVictoriaAGM! Join us on 22 Nov (1–4pm) at the RACV Club, Melbourne for an afternoon of learning, connection and community. Hear Dr Wendy Stevens share the latest research and clinical trial insights. Register now! eventbrite.com.au/e/2025-sclerod…
scleroderma_vic's tweet image. You’re invited to the 2025 #SclerodermaVictoriaAGM! Join us on 22 Nov (1–4pm) at the RACV Club, Melbourne for an afternoon of learning, connection and community. Hear Dr Wendy Stevens share the latest research and clinical trial insights. Register now! eventbrite.com.au/e/2025-sclerod…
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Scleroderma Victoria
 @scleroderma_vic
Oct 31

JOIN US for our November #VirtualEducationSession with guest speaker from NDIA Community Engagement Team! TOPIC: Understanding the NDIS: A Community Information Session WHEN: Saturday, 08 November at 10:30 AM AEDT WHERE: Online via Google Meet ➡️eventbrite.com.au/e/understandin… #NDIS

scleroderma_vic's tweet image. JOIN US for our November #VirtualEducationSession with guest speaker from NDIA Community Engagement Team! TOPIC: Understanding the NDIS: A Community Information Session WHEN: Saturday, 08 November at 10:30 AM AEDT WHERE: Online via Google Meet ➡️eventbrite.com.au/e/understandin… #NDIS
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Scleroderma Victoria
 @scleroderma_vic
Oct 23

Did you know around 20% of people with #scleroderma also have #lupus? 💜 These crossover conditions show why awareness and early detection matter. This #NationalAwarenessMonth, let’s shine a light on this condition and those living with it.

scleroderma_vic's tweet image. Did you know around 20% of people with #scleroderma also have #lupus? 💜 These crossover conditions show why awareness and early detection matter. This #NationalAwarenessMonth, let’s shine a light on this condition and those living with it.
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Scleroderma Victoria
 @scleroderma_vic
Oct 10

Missed our latest Virtual Education Session? No worries - we’ve got you! Lawyer Ross Sottile from Maurice Blackburn explored the link between workplace exposure and #scleroderma. Read the full blog post here: sclerodermavictoria.com.au/scleroderma-an… #OccupationalScleroderma

scleroderma_vic's tweet image. Missed our latest Virtual Education Session? No worries - we’ve got you! Lawyer Ross Sottile from Maurice Blackburn explored the link between workplace exposure and #scleroderma. Read the full blog post here: sclerodermavictoria.com.au/scleroderma-an… #OccupationalScleroderma
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Scleroderma Victoria
 @scleroderma_vic
Oct 3

Your voice truly matters. When it comes to advocacy, lived experiences are powerful. By sharing your story, you help decision-makers understand the real challenges of #scleroderma and how to better support our community. #SclerodermaCommunity #AdvocacyMatters

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Scleroderma Victoria
 @scleroderma_vic
Sep 25

JOIN US for our October #VirtualEducationSession with guest speaker A/Prof Amanda Saracino! WHEN: Saturday, 11 October at 10:30 AM AEST WHERE: Online via Google Meet TOPIC: Morphoea Management COST: It's FREE! Register here: eventbrite.com.au/e/morphoea-man…?

scleroderma_vic's tweet image. JOIN US for our October #VirtualEducationSession with guest speaker A/Prof Amanda Saracino! WHEN: Saturday, 11 October at 10:30 AM AEST WHERE: Online via Google Meet TOPIC: Morphoea Management COST: It's FREE! Register here: eventbrite.com.au/e/morphoea-man…?
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Scleroderma Victoria
 @scleroderma_vic
Sep 18

Up to 95% of people with #scleroderma have gut symptoms💛 Reflux, bloating + swallowing issues can appear long before skin changes - but early care helps! Dr Alannah Quinlivan shares key tips + support in our latest blog: sclerodermavictoria.com.au/scleroderma-an… #GutHealth

scleroderma_vic's tweet image. Up to 95% of people with #scleroderma have gut symptoms💛 Reflux, bloating + swallowing issues can appear long before skin changes - but early care helps! Dr Alannah Quinlivan shares key tips + support in our latest blog: sclerodermavictoria.com.au/scleroderma-an… #GutHealth
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Scleroderma Victoria
 @scleroderma_vic
Sep 11

Scleroderma Victoria is seeking a caring and organised volunteer to join our committee. What’s involved? Helping with agendas, minutes, records, events, and keeping our committee connected. Experience is a bonus, but not essential–we’ll support you along the way! Get in touch.

scleroderma_vic's tweet image. Scleroderma Victoria is seeking a caring and organised volunteer to join our committee. What’s involved? Helping with agendas, minutes, records, events, and keeping our committee connected. Experience is a bonus, but not essential–we’ll support you along the way! Get in touch.
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Scleroderma Victoria
 @scleroderma_vic
Sep 4

#Scleroderma (systemic sclerosis) is more than a skin condition. It’s a chronic autoimmune disease that can affect the lungs, heart, kidneys & digestive system. Awareness leads to understanding, early detection & better support. Learn more here: sclerodermavictoria.com.au/what-is-sclero…

scleroderma_vic's tweet image. #Scleroderma (systemic sclerosis) is more than a skin condition. It’s a chronic autoimmune disease that can affect the lungs, heart, kidneys & digestive system. Awareness leads to understanding, early detection & better support. Learn more here: sclerodermavictoria.com.au/what-is-sclero…
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scleroderma_vic's profile picture.
Scleroderma Victoria
 @scleroderma_vic
Aug 28

JOIN US for our September #VirtualEducationSession with guest speaker Ross Sottile! TOPIC: #Scleroderma and Workspace Exposure WHEN: Saturday, 13th September at 10:30 AM AEST WHERE: Online via Google Meet COST: It's FREE! ➡️eventbrite.com/e/scleroderma-… #SclerodermaAwareness

scleroderma_vic's tweet image. JOIN US for our September #VirtualEducationSession with guest speaker Ross Sottile! TOPIC: #Scleroderma and Workspace Exposure WHEN: Saturday, 13th September at 10:30 AM AEST WHERE: Online via Google Meet COST: It's FREE! ➡️eventbrite.com/e/scleroderma-… #SclerodermaAwareness
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Scleroderma Victoria
 @scleroderma_vic
Aug 21

Dermatologist-approved #tips for #scleroderma skin care. From moisturising + sun protection to managing itch + anti-ageing, Associate Professor Amanda Saracino shares practical advice for sensitive, scleroderma-affected skin. Read more here: sclerodermavictoria.com.au/understanding-…

scleroderma_vic's tweet image. Dermatologist-approved #tips for #scleroderma skin care. From moisturising + sun protection to managing itch + anti-ageing, Associate Professor Amanda Saracino shares practical advice for sensitive, scleroderma-affected skin. Read more here: sclerodermavictoria.com.au/understanding-…
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Scleroderma Victoria
 @scleroderma_vic
Aug 14

People living with #scleroderma, whether limited or diffuse, deserve to feel their best! Here are some AWESOME self-care tips for people living with scleroderma! Check out the full blog post 'Self-care with scleroderma' to learn more! sclerodermavictoria.com.au/self-care-with…

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Scleroderma Victoria
 @scleroderma_vic
Aug 7

In our latest #VirtualEducationSession, Virginia Hickey shared how OMERACT is transforming rheumatology trials-focusing on outcomes that truly matter to patients and raising the bar for global, patient-centred care. Read the full blog post here: sclerodermavictoria.com.au/ves-scleroderm…

scleroderma_vic's tweet image. In our latest #VirtualEducationSession, Virginia Hickey shared how OMERACT is transforming rheumatology trials-focusing on outcomes that truly matter to patients and raising the bar for global, patient-centred care. Read the full blog post here: sclerodermavictoria.com.au/ves-scleroderm…
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Scleroderma Victoria
 @scleroderma_vic
Jul 31

MARK YOUR CALENDARS for our August #VirtualEducationSession, where we’ll be joined by #DrAlannahQuinlivan. TOPIC: Scleroderma and Gut Research WHEN: Saturday, 109 August at 10:30 AM AEST WHERE: Online via Google Meet COST: It's FREE! Register today! eventbrite.com/e/scleroderma-…

scleroderma_vic's tweet image. MARK YOUR CALENDARS for our August #VirtualEducationSession, where we’ll be joined by #DrAlannahQuinlivan. TOPIC: Scleroderma and Gut Research WHEN: Saturday, 109 August at 10:30 AM AEST WHERE: Online via Google Meet COST: It's FREE! Register today! eventbrite.com/e/scleroderma-…
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Scleroderma Victoria
 @scleroderma_vic
Jul 28

You're invited! Join us for a night of fun, fundraising, and inspiration at Mulgrave Country Club as we support vital scleroderma research in Victoria 💙 🗓 Monday 25 August 2025 | 6–11 PM Buy your tickets now! trybooking.com/events/landing…

scleroderma_vic's tweet image. You're invited! Join us for a night of fun, fundraising, and inspiration at Mulgrave Country Club as we support vital scleroderma research in Victoria 💙 🗓 Monday 25 August 2025 | 6–11 PM Buy your tickets now! trybooking.com/events/landing…
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Scleroderma Victoria
 @scleroderma_vic
Jul 25

Get ready to laugh for a cause! Join us Fri 8 Aug for #ComedyForACause - featuring top acts from the Sydney & Melbourne Comedy Fests, all supporting Scleroderma Victoria Enjoy performances by: ✨Doug Chappel ✨Billy Stiles ✨Nick Quon ✨Evan Hocking comedyforacause.net/event/SV25

scleroderma_vic's tweet image. Get ready to laugh for a cause! Join us Fri 8 Aug for #ComedyForACause - featuring top acts from the Sydney & Melbourne Comedy Fests, all supporting Scleroderma Victoria Enjoy performances by: ✨Doug Chappel ✨Billy Stiles ✨Nick Quon ✨Evan Hocking comedyforacause.net/event/SV25
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scleroderma_vic's profile picture.
Scleroderma Victoria
 @scleroderma_vic
Jul 17

#ComedyForACause is BACK! Get ready to laugh ‘til it hurts - all for a great cause! 📅 Fri 8 Aug 2025 📍 Freccia Azzurra Club, Braeside 🎟️ $40 | All proceeds to Scleroderma Victoria 🕖 Doors 7PM | 18+ only Laugh loud. Give back. Make a difference. 🔗sclerodermaaustralia.com.au/scleroderma-vi…

scleroderma_vic's tweet image. #ComedyForACause is BACK! Get ready to laugh ‘til it hurts - all for a great cause! 📅 Fri 8 Aug 2025 📍 Freccia Azzurra Club, Braeside 🎟️ $40 | All proceeds to Scleroderma Victoria 🕖 Doors 7PM | 18+ only Laugh loud. Give back. Make a difference. 🔗sclerodermaaustralia.com.au/scleroderma-vi…
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Scleroderma Victoria
 @scleroderma_vic
Jul 10

In our latest #VirtualEducationSession, world-renowned rheumatologist Professor Susanna Proudman unpacked the under-recognised but life-altering effects of skeletal and cardiac muscle involvement in #scleroderma.⁣ Learn more here: ⁣sclerodermavictoria.com.au/muscle-involve… . . . . #Awareness

scleroderma_vic's tweet image. In our latest #VirtualEducationSession, world-renowned rheumatologist Professor Susanna Proudman unpacked the under-recognised but life-altering effects of skeletal and cardiac muscle involvement in #scleroderma.⁣ Learn more here: ⁣sclerodermavictoria.com.au/muscle-involve… . . . . #Awareness
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Scleroderma Victoria
 @scleroderma_vic
Jul 4

DID YOU KNOW that #scleroderma doesn’t just affect women? While women are around 7 times more likely to be diagnosed, men can develop scleroderma too & when they do, it’s often more severe. Hear Bruce’s powerful story as he shares his personal journey living with scleroderma.

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SclerodermaCAN's profile picture. Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.

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srfcure's profile picture. America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.

SRFCure

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SclerodermaCO's profile picture. The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.

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scleroderma_sso's profile picture. We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease

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SclerodermaCAN's profile picture. Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.

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SclerodermaCO's profile picture. The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.

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SclerodermaTS's profile picture. We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC

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