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stripeynerd's profile picture. #EhlersDanlos #EDS #EDSAwareness @ehlersdanlosuk

Stripey Nerd

@stripeynerd

#EhlersDanlos #EDS #EDSAwareness @ehlersdanlosuk

485المنشورات 336المتابعون 109المتابَعون
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Stripey Nerd أعاد
cheryleehouston's profile picture.
Cherylee Houston
 @cheryleehouston
١٢ فبراير ٢٠١٦ م

Pain? Dislocations? For helpful info connected to Izzy’s pain storyline in @itvcorrie see ehlers-danlos.org

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stripeynerd's profile picture.
Stripey Nerd
 @stripeynerd
٢٨ نوفمبر ٢٠١٥ م

Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7?pc=14… #eds

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stripeynerd's profile picture.
Stripey Nerd
 @stripeynerd
٢١ نوفمبر ٢٠١٥ م

Heart warming scene at EDS UK winter ball as someone bids up smart crutches then donates then back to one of the warriors of the community!

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stripeynerd's profile picture.
Stripey Nerd
 @stripeynerd
١٩ نوفمبر ٢٠١٥ م

Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7?pc=14… #eds

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stripeynerd's profile picture.
Stripey Nerd
 @stripeynerd
١٦ نوفمبر ٢٠١٥ م

Please RT & donate to help Abi get a break and get the eye surgery she needs! gofundme.com/q7ajsen7?pc=14… #eds @gofundme

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DisabilityUK's profile picture.
Focus on Disability
 @DisabilityUK
١٩ أكتوبر ٢٠١٥ م

UK to be first country facing high-level inquiry by the UN on the rights of persons with disabilities - do any good? tinyurl.com/qaxzezj

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melaniesMission's profile picture.
Melanies Mission
 @melaniesMission
١٦ أكتوبر ٢٠١٥ م

Student faces race against time to raise thousands for operation or be paralysed fb.me/25R4OYw6m

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Stripey Nerd أعاد
EDSWellnessSol's profile picture.
EDSWellness
 @EDSWellnessSol
١٦ أكتوبر ٢٠١٥ م

How do you normally stand? Left, middle, or right? #JointHypermobility #EDSFacts #EhlersDanlos #MedEd #Genetics #

EDSWellnessSol's tweet image. How do you normally stand? Left, middle, or right? #JointHypermobility #EDSFacts #EhlersDanlos #MedEd #Genetics #
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HopesoupPaley's profile picture.
Paley Hughett
 @HopesoupPaley
٦ أكتوبر ٢٠١٥ م

@stripeynerd raising awareness and hope for invisible illnesses including EDS at hopesoup.me

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Stripey Nerd أعاد
ehlersdanlosuk's profile picture.
Ehlers-Danlos Support UK
 @ehlersdanlosuk
٣ أكتوبر ٢٠١٥ م

Kay White is an inspirational member who gradually trained for & completed a triathlon buff.ly/1OaRO9B

ehlersdanlosuk's tweet image. Kay White is an inspirational member who gradually trained for & completed a triathlon buff.ly/1OaRO9B
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Stripey Nerd أعاد
scope's profile picture.
Scope
 @scope
٢٧ سبتمبر ٢٠١٥ م

"'You can walk, it’s a miracle!' Umm, no I can’t." Lucy's story: bit.ly/1VeWDiC #EndTheAwkward

scope's tweet image. "'You can walk, it’s a miracle!' Umm, no I can’t." Lucy's story: bit.ly/1VeWDiC #EndTheAwkward
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NadiaBodkin's profile picture.
Nadia
 @NadiaBodkin
٢٥ سبتمبر ٢٠١٥ م

"Cure sometimes, treat often, and comfort always." Wonderfuk quote from one of the honorees, Ang Xu, #2015ggsummit

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stripeynerd's profile picture.
Stripey Nerd
 @stripeynerd
٢٠ سبتمبر ٢٠١٥ م

#EDS charity ball! 21st November at the Basingstoke Country Hotel, get tickets now by emailing [email protected]

stripeynerd's tweet image. #EDS charity ball! 21st November at the Basingstoke Country Hotel, get tickets now by emailing edszebraball@gmail.com
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stripeynerd's profile picture.
Stripey Nerd
 @stripeynerd
١٩ سبتمبر ٢٠١٥ م

#EDS charity ball! 21st November at the Basingstoke Country Hotel, get ticket now by emailing [email protected]

stripeynerd's tweet image. #EDS charity ball! 21st November at the Basingstoke Country Hotel, get ticket now by emailing edszebraball@gmail.com
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genericpanic's profile picture.
Wednesday
 @genericpanic
٨ سبتمبر ٢٠١٥ م

New #EDS Awareness Brochure. 2015 estimates put possibility at 1/500. and Fibro possibly a form of type 3 #axschat

genericpanic's tweet image. New #EDS Awareness Brochure. 2015 estimates put possibility at 1/500. and Fibro possibly a form of type 3 #axschat
genericpanic's tweet image. New #EDS Awareness Brochure. 2015 estimates put possibility at 1/500. and Fibro possibly a form of type 3 #axschat
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helenriceshow's profile picture. Writer-performer combining spoken word with music to explore important things like: grief, sex, being a #disabled #stepmum and bread. Mostly #bread TBH.

Helen Rice is Showing Off (Purl Power)

@helenriceshow
consentistt's profile picture. UCD law graduate advocating for social change. she/her. #blacklivesmatter #proabortion #sexworkiswork #abolishprisons #ibelieveher (consentistt@gmail.com)

consentistt

@consentistt
ConnieGarvie's profile picture. I'm 60 years old and I have bright purple hair! I have 4 children and two grandchildren I adore! I'm active in my church, love Sci-fi, all crafts, She/Her.

@purplegrandmavapes

@ConnieGarvie
nicholneto's profile picture. #Mom #Catoholic #ChronicPainPatient #RSD #CRPS #Lupus #spoonie

Nichol Neto

@nicholneto
EosAdvocacyLtd's profile picture. High quality advocacy & support service working with leading solicitors, charities, families & national media #falseallegations #Fii #education #EDS #autism #ME

Eos Advocacy Ltd

@EosAdvocacyLtd
TheDigitalRad's profile picture. Director of Site Success EU• 1st Research Delivery Digital Lead• Therapeutic Radiographer• NIHR ALP 2019• My views are my own

Marie-Claire Flavin

@TheDigitalRad
bestlifewithEDS's profile picture. Living with Hypermobile Elher Danlos Syndrome, mum of three, loves art, food and wine. Tying to find the me in this debilitating chronic illness

EDS Warrior

@bestlifewithEDS
TeamTeer's profile picture. Intractable Pain Warrior, CRPS, Arachnoiditis, Autoimmune,SCI, Scoliosis, Sjogrens, AS, Migraines, Rare,♿️ https://t.co/sngEWbRzQh

ChronicPerserverance

@TeamTeer
MajoVieiraH's profile picture. Consejera en Lactancia Materna 🤱 Entrenadora de porteo con meitai CHCC 💚💜🌈 🦓 hEDS #EhlersDanlosSyndrome 💙 Nurse #NursesWhoTweet ❤ Mom 👦👧👶 IG @mj_vieira

Mariajosé Vieira

@MajoVieiraH
Alicia97377240's profile picture. Chronically ill. POTS - EDS - MCAS- Fibromyalgia- TCS

Chronically ill thoughts

@Alicia97377240
lndavis87's profile picture. I was officially diagnosed with #eds #pots #dysautonomia and 30 other diagnosis’s after a 32 yr diagnosis process. patient advo read my story/blog. link in bio

sufferinginsilence

@lndavis87
RNadvocating's profile picture. retired after 30yrs of nursing. advocating & educate ppl that ppl in chronic pain need access to pain meds. denying access to pain meds is inhumane.

RN advocating

@RNadvocating
felixkitten82's profile picture. ME/CFS, HSD/hEDS, POTS +more fighter. My world is full of acronyms. Crazy Cat Lady. STP lover. Ex-aspiring medic, ex-singer, ex-mostthingsrightnow.

JJ

@felixkitten82
AmyDiazHollis's profile picture. Multicreative indepenuer working to make the world a better place. #ZEBRASTRONG

Amy Diaz Hollis

@AmyDiazHollis
Jodie71848368's profile picture.

Jodie

@Jodie71848368
theDiva3D's profile picture. Fine artist, Fiber artist, Calligrapher. Chronic Pain Patient: Ehlers Danlos Syndrome 3, CTE, Failed Cervical fusions, 5thr, PTSD. Advocate.

Diva-3D

@theDiva3D
fiightback's profile picture. Fiightback offers support for those wrongly accused of FII/Munchausen by Proxy. We also aim to fight the current epidemic of false accusations.

Fiightback

@fiightback
bettyflorence23's profile picture. Passed away from stomach cancer 18th June 2020, fed through a JEJ. also fighter of #EhlersDanlosSyndrome

Liz the Stomach #fuckCancer Warrior 👊🦸‍♀️👩‍🦽👫

@bettyflorence23
millionsmilesx's profile picture. A Happy tree hugging rat Momma 🐀🐁 #Spoonie #Bats 🦇 #Nature #TheMoon 🌒🌕🌘 Small toilet space hater. 🧜🏻‍♀️ Tweets R my own🕊

Autumn Observer 🍂

@millionsmilesx
whatapain_blog's profile picture. 🇬🇧 Rachel • Writer • Blogger • Mum • Wife • Foodie An honest account of life with multiple chronic illnesses, allergies, motherhood and everything inbetween.

What a Pain

@whatapain_blog
SSalomon5's profile picture. Avid learner. Relying on a meat & water #keto diet for improved health. #hEDS, #POTS, #MCAD, #Resist, #Pokemon, #gardening

Salomsl

@SSalomon5
EDSCanadaFnd's profile picture. EDS Canada Chronic Pain and Ehlers Danlos Charitable Foundation

EDS Canada Foundation

@EDSCanadaFnd
RogueWolf2001's profile picture. Southern woman whose not Red or Blue living in a deep Red VERY conservative state. Living w/EDS, dysautonomia, Chronic migraines, chronic pain, etc 1 day@time.

RogueWolf

@RogueWolf2001
rkumaryyc's profile picture. Founder & CEO @deltabrewery | Married to @anjunc08 |CSRS Board| Past-Neuroscientist| ALSA Board| HBITO Edu Director| PhD Neuro| UCalgary, Canada| 🧠to🍻

Ranjan Kumar

@rkumaryyc
Kindacalm's profile picture. social and disability activist; supports equity and respect for all people; feminist values; interests in aged care issues, childrens issues; & small business

Linda

@Kindacalm
robyndarcey5's profile picture. Advocate for my daughter’s #hEDS #PoTS #MCAS #thyroidcancer 🦋 #ovariancancer #BRCA1 🩵 Supporting families wrongly accused of Fii/MSbP/PP #FalseFiiAllegations

Caroline

@robyndarcey5
DinkyKt's profile picture. 😊40, makeup lover💄vlogger & EDS🦓Awareness. Follow me on here, fb page, inshttps://www.youtube.com/user/KatieMarieWebhttp://www.worldofdinky.co3yl.uktvGz1Wx3

Katie Wearing

@DinkyKt
Debtauscheck's profile picture. RA and fibromyalgia patient, love my life and family. I’m very appreciative of all the CPP advocates. we shouldn’t be denied access to life changing medication

Deborah Tauscheck

@Debtauscheck
RANotjustjoints's profile picture. Rheumatoid arthritis - an autoimmune condition that affects joints & other body systems. Find out more..... Tweets by @Medicastra, @rheumsupport, @twofishnocat

RA - Not just joints

@RANotjustjoints
fireflyrn84's profile picture. RN/full time pt, advocate, #raredisease blog @PatientsLikeMe TOA Alumni @WEGOHealth Patient Leader/Expert #BreakthroughCrew Ambassador #SavvyPatient #pinksocks

Kimberly Amelia

@fireflyrn84
RCHPublications's profile picture. Publications that raise awareness. Our book 'Understanding hypermobile Ehlers-Danlos syndrome & hypermobility spectrum disorder.' is now available.

RCH Publications

@RCHPublications
scootnscooters's profile picture. Helping Disabled Individuals be Able to be Independent With Their Pets.

Scooter

@scootnscooters
james4eds's profile picture. James' Journey is a non-profit organization for awareness and research for a rare genetic disorder, Ehlers-Danlos syndrome (EDS) in memory of James Kayler.

James' Journey EDS

@james4eds
AcerTherapeutic's profile picture. Focused on the acquisition, development and commercialization of therapies for serious rare and life-threatening diseases with significant unmet medical needs.

Acer Therapeutics

@AcerTherapeutic
EDSlookslike's profile picture. with awareness comes hope for the future... #thisiswhatEDSlookslike #EhlersDanlosSyndrome

whatEDSlookslike

@EDSlookslike
ZebrasParade's profile picture. 🧬🏳️‍🌈♿️⚖️ADVOCATE #TestDontGuess #EDS #POTS #TBI #PatientsNotProfits #MedicalKidnap #PrecisionMedicine #Genomics #RareDisease #JustinasLaw #ZebrasOnParade

ZebraStar

@ZebrasParade
StarDeSoul's profile picture. 🦓MOM💞#Advocate🎤#Vocalist👽#Research🔬#RareDisease🧬#Genomics #PRIONS #SPOONIE #TBI #CTD #EDS #GP #POTS #Dysautonomia #Autism #TestDontGuess #ZebrasOnParade✌️

Star Squires

@StarDeSoul
OhSmeenk's profile picture.

Olivia Smeenk

@OhSmeenk
TheEDSociety's profile picture. The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

The Ehlers-Danlos Society

@TheEDSociety
MyEhlersDanlos's profile picture. The Ehlers-Danlos syndromes are a group of inherited disorders that affect collagen structure and function. Wants to help raise awareness!

EhlersDanlosChic

@MyEhlersDanlos
TimeToTalkMH's profile picture. MHFA & Studying BSc (hons) Psychology wth Counselling. Advocate: mental&chronic illness. Crime Fiction author - A Scars Pathway GO TO: @CharLathwell43

TimeToTalkMH&Chronic

@TimeToTalkMH
Stick_30's profile picture. Nananananananana

Michelle

@Stick_30
invisable_aware's profile picture.

butterfly

@invisable_aware
alwaysinhope's profile picture.

Always in Hope

@alwaysinhope
GoSmittie's profile picture. mum of three beautiful children. Author, poet, philosophist. Coming to terms with EDS and limitations it's brings. Always searching for positives!

Nicky Smith

@GoSmittie
PursuitLoveBlog's profile picture. Bringing you the real life dating stories of a single girl. All Enquiries- Pursuitofloveblog@outlook.com

Pursuit Of Love Blog

@PursuitLoveBlog
EDSwarriors's profile picture. Gina has EDS- hypermobility type

Three-Legged Zebra

@EDSwarriors
LaraBloom's profile picture. President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️‍🌈Gay•She/Her• Views my own

Professor Lara Bloom

@LaraBloom
SophieEDaws11b's profile picture.

Sophie E. Daws (LLB)

@SophieEDaws11b
AliceWithEDS's profile picture. Photographer, 24, EDS type 3

alice

@AliceWithEDS

United States الاتجاهات

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