#decodeme search results
Day 2 of #decodeME making the news. This time in Korean and Greece. A few in the Netherlands, Russia, Belgium and one in Arabic. Bit less than yesterday but still more coverage than #pwme are used to seeing.
Earlier this summer, the ME Association awarded @DecodeMEStudy the 2025 Howes-Goudsmit Award for their extensive work and commitment to their genome-wide association study. Donate the Decode ME: actionforme.org.uk/research-campa… #MECFS #pwME #DecodeME
research.ed.ac.uk/en/publication… Ich habe den #DecodeME Preprint jetzt mehrfach zum Zwecke der Inspiration gelesen, habe selbige aber nur sparsam verspürt. Was wären denn translationale Aspekte (mit allen gebotenen Vorbehalten), die wir mit mglw. 1/5
Wow – die ersten 1.000 € sind schon zusammen! 💙 Danke an alle, die schon gespendet oder geteilt haben – ihr seid großartig. Lasst uns gemeinsam das Ziel knacken und MECFS ein Stück weiter entschlüsseln #WirSindSarah #LearnAboutME #DecodeMe Die Spenden gehen komplett an die…
This festive season, we’d like to encourage those with a loved one w/ME to gift an act of kindness. Ask what would be most helpful and comforting to them, what may seem small to you could be immensely helpful & meaningful to someone living with ME #DecodeME #RandomActsOfKindness
The main thing to takeaway from #DecodeME is that every single one of the significant genes found (and the ones below that threshold) directly correlate with the symptoms patients report and the years of biological findings in the immune system and nervous system. Cant fake DNA
This trial has funding to analyse 25000 samples but is well short. To register/find more info, go to: decodeme.org.uk/portal Please tell others. This article explains why the study is important: healthrising.org/blog/2023/10/0… #MyalgicEncephalomyelitis #DecodeME #MEcfs #CFS #PwME
#DecodeME is now closed for the holidays! Thank you for everything you have helped us achieve together this year & for your continued support. We are now deep into the exciting stage of analysing the data & anticipate the DNA analysis to be complete by the middle of 2025 #MECFS
Top associated genes in #pwME according to #DecodeME in their role Chromosome: 1q25.1 Gene(s): RABGAP1L Proposed Role: Intracellular response to infection Chromosome: 6p22.2 Gene(s): BTN2A2 Proposed Role: T-cell mediated immunity Chromosome: 6q16.1 Gene(s): FBXL4…
This #WorldMEday, #DecodeME hopes that by building recognition, fostering global cooperation and sharing research findings, we can help accelerate research towards possible diagnostic tests and treatments for #MECFS. #GlobalVoiceForME
Thanks to the thousands of #pwSevereME who took part in #DecodeME, we know that being female, older & having #ME for 10+ years = more likely to have #SevereME. During genetic analyses, we hope to make further discoveries & direct future research toward treatments/cure for #pwME
This #WorldMEday we want to take a pause & recognise the challenges, stigma & neglect that many #pwME face. We hope that #DecodeME can pave the way forward in accelerating research into M.E./CFS & will help to set a standard in research to include voices of pw lived experiences.
Only 2 days to wait for #pwME Good to have received warning. #DecodeME will be posting their initial results 🙏🤞💙
This World ME Day, I reflect with pride on the Patient and Public Involvement (PPI)...this is research done differently – because we deserve better.” - Sian Leary. PPI is at the heart of #DecodeME, providing lived experience & expertise to ensure #pwME have their voices heard.
Inmunitarios, teniendo XUECs de autoinmunes, varios CSURs, el VHIR, etc. Y que aún estén con SSC y permeabilidad intestinal, viendo los avances del #DecodeME etc.... Ayyy...
Me being social, asking you to read my body language. I'm dropping hints like breadcrumbs in a social game of charades. Ready to guess the message? 🕵️♂️💬 #DecodeMe #BodyLanguage #scarlettscabaret
And back here in the UK, here's the lead for #DecodeME denying harassment of scientists. 👏👏👏👏 Sure it was a crowd-pleaser at the time, but it's horseshit. 🐴💩 Absolute horseshit.
Day 2 of #decodeME making the news. This time in Korean and Greece. A few in the Netherlands, Russia, Belgium and one in Arabic. Bit less than yesterday but still more coverage than #pwme are used to seeing.
We have now entered the 12 Hour Countdown to the #DecodeME Largest #MECFS Study #pwME #MECFSResearch
Well this is a bit exciting; #DecodeME are DNA sampling 25,000 people in the UK with ME/CFS to see if a genetic link can be found, and from that better treatment/preventative options🤞 It'd be rude not to try and do my bit, even if all forms of spitting are loathsome!😂
This trial has funding to analyse 25000 samples but is well short. To register/find more info, go to: decodeme.org.uk/portal Please tell others. This article explains why the study is important: healthrising.org/blog/2023/10/0… #MyalgicEncephalomyelitis #DecodeME #MEcfs #CFS #PwME
Wow – die ersten 1.000 € sind schon zusammen! 💙 Danke an alle, die schon gespendet oder geteilt haben – ihr seid großartig. Lasst uns gemeinsam das Ziel knacken und MECFS ein Stück weiter entschlüsseln #WirSindSarah #LearnAboutME #DecodeMe Die Spenden gehen komplett an die…
Earlier this summer, the ME Association awarded @DecodeMEStudy the 2025 Howes-Goudsmit Award for their extensive work and commitment to their genome-wide association study. Donate the Decode ME: actionforme.org.uk/research-campa… #MECFS #pwME #DecodeME
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