#pcosappg search results
Today we attended the launch of the All Party Parliamentary Group on Polycystic Ovary syndrome (PCOS) at the Houses of Parliament - a landmark moment for PCOS recognition in UK policy. #PCOSAPPG @APPG_PCOS (1/3)
The groundbreaking report: Breaking the Cycle Addressing Systemic Failures in PCOS Diagnosis and Management highlighted pressing needs for action to improve the lives of those affected by this complex, lifelong, multi-system, cardiometabolic health condition. #PCOSAPPG 🧵
Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
In support of constituents suffering from Polycystic Ovary Syndrome (PCOS) I went to the @APPG_PCOS report launch. It shows just how urgently we need reform in diagnosis, treatment and support. Millions are impacted. We must do better. [pcosappg.co.uk/2025-report-br…] #PCOSAPPG
Read the report here pcosappg.co.uk/2025-report-br… It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2
“Testimonies heard by the APPG reveal … its mental health impacts are frequently ignored, misunderstood, or deprioritised.” #PCOSAPPG 🧵
“PCOS is often dismissed as a gynaecological/reproductive issue, or reduced to lifestyle advice, reinforcing a cycle of neglect and minimisation.” #PCOSAPPG 🧵
“The mental health burden of PCOS, including anxiety and depression, is significant yet often ignored.” #PCOSAPPG 🧵
"More research is needed into alternative, holistic, and culturally relevant care options.” #PCOSAPPG 🧵
“Patients internalising blame for their symptoms, particularly around weight...called for a culture shift towards validating and listening to patients without judgment.” #PCOSAPPG 🧵
As a psychologist, with lived experience of PCOS and severe anxiety and depression, I was particularly pleased to see psychological aspects of the condition recognised as a priority. #PCOSAPPG 🧵
“Just 3% of patients felt supported and informed by their healthcare provider.” #PCOSAPPG 🧵
“Patients often feel dismissed, misinformed, or unsupported following diagnosis, with 86% reporting they know more about PCOS than their GP.” #PCOSAPPG 🧵
“Patients are often left to manage the condition alone, with little information, guidance, or follow-up support, forcing them to navigate complex symptoms without the tools or resources they need.” #PCOSAPPG 🧵
“Many individuals described symptoms such as hirsutism and alopecia as among the most distressing aspects of their condition, compounding feelings of isolation and mental strain.” #PCOSAPPG 🧵
"More research is needed into alternative, holistic, and culturally relevant care options.” #PCOSAPPG 🧵
“PCOS is often dismissed as a gynaecological/reproductive issue, or reduced to lifestyle advice, reinforcing a cycle of neglect and minimisation.” #PCOSAPPG 🧵
“Patients internalising blame for their symptoms, particularly around weight...called for a culture shift towards validating and listening to patients without judgment.” #PCOSAPPG 🧵
“Patients often feel dismissed, misinformed, or unsupported following diagnosis, with 86% reporting they know more about PCOS than their GP.” #PCOSAPPG 🧵
“Just 3% of patients felt supported and informed by their healthcare provider.” #PCOSAPPG 🧵
“Patients are often left to manage the condition alone, with little information, guidance, or follow-up support, forcing them to navigate complex symptoms without the tools or resources they need.” #PCOSAPPG 🧵
“Many individuals described symptoms such as hirsutism and alopecia as among the most distressing aspects of their condition, compounding feelings of isolation and mental strain.” #PCOSAPPG 🧵
“Testimonies heard by the APPG reveal … its mental health impacts are frequently ignored, misunderstood, or deprioritised.” #PCOSAPPG 🧵
“The mental health burden of PCOS, including anxiety and depression, is significant yet often ignored.” #PCOSAPPG 🧵
As a psychologist, with lived experience of PCOS and severe anxiety and depression, I was particularly pleased to see psychological aspects of the condition recognised as a priority. #PCOSAPPG 🧵
The groundbreaking report: Breaking the Cycle Addressing Systemic Failures in PCOS Diagnosis and Management highlighted pressing needs for action to improve the lives of those affected by this complex, lifelong, multi-system, cardiometabolic health condition. #PCOSAPPG 🧵
In support of constituents suffering from Polycystic Ovary Syndrome (PCOS) I went to the @APPG_PCOS report launch. It shows just how urgently we need reform in diagnosis, treatment and support. Millions are impacted. We must do better. [pcosappg.co.uk/2025-report-br…] #PCOSAPPG
Read the report here pcosappg.co.uk/2025-report-br… It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2
Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
Today we attended the launch of the All Party Parliamentary Group on Polycystic Ovary syndrome (PCOS) at the Houses of Parliament - a landmark moment for PCOS recognition in UK policy. #PCOSAPPG @APPG_PCOS (1/3)
Today we attended the launch of the All Party Parliamentary Group on Polycystic Ovary syndrome (PCOS) at the Houses of Parliament - a landmark moment for PCOS recognition in UK policy. #PCOSAPPG @APPG_PCOS (1/3)
In support of constituents suffering from Polycystic Ovary Syndrome (PCOS) I went to the @APPG_PCOS report launch. It shows just how urgently we need reform in diagnosis, treatment and support. Millions are impacted. We must do better. [pcosappg.co.uk/2025-report-br…] #PCOSAPPG
The groundbreaking report: Breaking the Cycle Addressing Systemic Failures in PCOS Diagnosis and Management highlighted pressing needs for action to improve the lives of those affected by this complex, lifelong, multi-system, cardiometabolic health condition. #PCOSAPPG 🧵
Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
Read the report here pcosappg.co.uk/2025-report-br… It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2
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