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There is no peace and quiet for the sick with #spinalCSFleak Just when you get some stability you're hit with new tortures from unsuitable hospital environment.


I have a provisional date for surgery this Friday. Hopefully first thing in the morning so I will be home by the afternoon. I just need to hold on til then. #csfleak #spinalcsfleak


This invisible #spinalCSFleak will kill me one way or another 😭 It just hurts so much both physically and mentally.


This leak or several has the audacity to not leak during a myelogram I traveled for days for but leaking multiple times daily is not a problem at all. Neither are positional attacks going from 0-10 in 3 minutes. I hate #spinalCSFleak as well as my life. 😭


🆕️🔓 Critical Reappraisal and Validation of the Bern Score System for Diagnosing Spontaneous Intracranial Hypotension ℹ️ The authors assessed both sensitivity and specificity in an East Asian cohort. ✒️ Soyoun Choi et al. #spinalCSFleak #CSFleak #SIH thejcn.com/DOIx.php?id=10…


🚨Study supported by @spinalCSFleak doi.org/10.1111/head.1…🚨 Lumbar punctures are NO LONGER the standard for diagnosing spinal CSF leak! 📊 ~32% with SIH have NORMAL opening pressure. Symptoms + imaging now drive diagnosis. @WouterSchievink @ConnieDelineMD #SpinalCSFLeak #SIH


Today is #WorldMentalHealthDay, a time to raise awareness about the importance of mental health and well-being. If you are struggling, please know this:  You are not alone. We see you. Reaching out for support is a strength. #MentalHealthMatters #SpinalCSFLeak #SIH

SpinalCSFCanada's tweet image. Today is #WorldMentalHealthDay, a time to raise awareness about the importance of mental health and well-being.
If you are struggling, please know this: 
You are not alone. We see you. Reaching out for support is a strength.
#MentalHealthMatters #SpinalCSFLeak #SIH
SpinalCSFCanada's tweet image. Today is #WorldMentalHealthDay, a time to raise awareness about the importance of mental health and well-being.
If you are struggling, please know this: 
You are not alone. We see you. Reaching out for support is a strength.
#MentalHealthMatters #SpinalCSFLeak #SIH
SpinalCSFCanada's tweet image. Today is #WorldMentalHealthDay, a time to raise awareness about the importance of mental health and well-being.
If you are struggling, please know this: 
You are not alone. We see you. Reaching out for support is a strength.
#MentalHealthMatters #SpinalCSFLeak #SIH
SpinalCSFCanada's tweet image. Today is #WorldMentalHealthDay, a time to raise awareness about the importance of mental health and well-being.
If you are struggling, please know this: 
You are not alone. We see you. Reaching out for support is a strength.
#MentalHealthMatters #SpinalCSFLeak #SIH

Love to see this progress 🙌🏼 Link to the @csfleakuk Clinician Facing SIH Guideline Infographics shown in the post ⬇️ csfleak.uk/news/clinician… #HeadacheAcademy #spinalCSFleak #CSFleak #NeuroX #Neurology @RCPhysicians @Manjit_Matharu

✨ Amazing day at Headache Academy! ✨ 200+ delegates & huge interest in CSF leaks — fantastic to see so many keen to learn Our new guideline infographic was a hit ⭐️ great to hear it'll be shared in clinics to raise awareness 👁️ 🙏 thanks to all who stopped by 💙 #csfleak

csfleakuk's tweet image. ✨ Amazing day at Headache Academy! ✨
200+ delegates & huge interest in CSF leaks — fantastic to see so many keen to learn

Our new guideline infographic was a hit ⭐️ great to hear it'll be shared in clinics to raise  awareness 👁️

🙏 thanks to all who stopped by 💙

#csfleak


Grateful to be part of the Canadian Headache Society Conference (Sept 26–27, Toronto)! Thank you @CanHeadacheSoc for the opportunity to highlight our mission, raise awareness of #spinalCSFleak, and connect with dedicated physicians to improving patient care.


🆕️ The Diagnostic Burden of Spontaneous Intracranial Hypotension: Imaging Volume and Specialists Involvement Prior to Diagnosis ✒️ @parnian_habibi et al. via @TheAJNR 🧠💧 #spinalCSFleak #CSFleak #SIH #CSFVF #NeuroRad #NeuroX ajnr.org/content/early/…


🆕️🔓Optimizing density of intrathecal contrast at digital subtraction myelography: Evaluation of differing needle characteristics and injection rates in a phantom ✒️ @AnahitaMalvea et al. via @INR_WFITN #spinalCSFleak #INR #CSFVF #CSFVenousFistula journals.sagepub.com/doi/10.1177/15…


#WorldSuicidePreventionDay We stand with those living with #SpinalCSFLeak/#SIH Too often, patients struggle for years without care. This delay deepens suffering and increases risk.  Increased awareness, timely care & equity matter. 💜

SpinalCSFCanada's tweet image. #WorldSuicidePreventionDay
We stand with those living with #SpinalCSFLeak/#SIH 
Too often, patients struggle for years without care. This delay deepens suffering and increases risk. 
Increased awareness, timely care & equity matter. 💜
SpinalCSFCanada's tweet image. #WorldSuicidePreventionDay
We stand with those living with #SpinalCSFLeak/#SIH 
Too often, patients struggle for years without care. This delay deepens suffering and increases risk. 
Increased awareness, timely care & equity matter. 💜

Powerful artwork 💧🧠 Many patients who don’t show these features on brain MRI still experience the heavy, pulling sensation so vividly depicted in this image. Voting takes only a second, with just one confirmation email 🗳 ⬇️ #SIH #CSFleak #spinalCSFleak

MRI in spinal CSF leak often shows brain sagging, a finding that is frequently overlooked. Here, I depicted human-like creatures formed from CSF leaks, pulling the brain downward and causing sagging, which results in mammillopontine narrowing and cerebellar tonsil herniation.



An absolute pleasure to host superlative visiting Prof @iantmark to our practice @GSTTnhs @KingsCollegeNHS. We learned enormously from his stellar expertise in all things #spinalCSFleak #SIH & #pituitary imaging! Thank you for sharing expertise, AMAZING talks & new concepts!🤩👏

NeuroradLal's tweet image. An absolute pleasure to host superlative visiting Prof @iantmark to our practice @GSTTnhs @KingsCollegeNHS. We learned enormously from his stellar expertise in all things #spinalCSFleak #SIH & #pituitary imaging! Thank you for sharing expertise, AMAZING talks & new concepts!🤩👏
NeuroradLal's tweet image. An absolute pleasure to host superlative visiting Prof @iantmark to our practice @GSTTnhs @KingsCollegeNHS. We learned enormously from his stellar expertise in all things #spinalCSFleak #SIH & #pituitary imaging! Thank you for sharing expertise, AMAZING talks & new concepts!🤩👏

Had such an amazing time visiting @GSTTnhs to talk about #SIH and #Pituitary! @NeuroradLal is bringing world class #CSFLeak care to patients in the UK and it was a privilege to learn about her practice!

iantmark's tweet image. Had such an amazing time visiting @GSTTnhs to talk about #SIH and #Pituitary!  @NeuroradLal is bringing world class #CSFLeak care to patients in the UK and it was a privilege to learn about her practice!
iantmark's tweet image. Had such an amazing time visiting @GSTTnhs to talk about #SIH and #Pituitary!  @NeuroradLal is bringing world class #CSFLeak care to patients in the UK and it was a privilege to learn about her practice!


🆕️🔓 Quality of life in patients with spontaneous intracranial hypotension: A systematic review and meta-analysis ✒️ @JulienOgnard et al. #spinalCSFleak #CSFleak #CSFVF #SIH #NeuroX sciencedirect.com/science/articl…


Congratulations! 🎊 #CSFleak #spinalCSFleak #SIH

After years of dreaming, building, and doing the work, I’m proud to announce the launch of my new private practice: Clarity Brain & Spine. We’re here to bring world-class Neurointerventional care to children and adults, with precision, compassion, and purpose #NeuroIR #MedTwitter

MeshaMartinezMD's tweet image. After years of dreaming, building, and doing the work, I’m proud to announce the launch of my new private practice: Clarity Brain & Spine. We’re here to bring world-class Neurointerventional care to children and adults, with precision, compassion, and purpose #NeuroIR #MedTwitter


Always encouraging to see #spinalCSFleak research aimed at reducing dependence on invasive myelography 👏 Looking forward to more studies like this ⬇️ #DuralDefect #CSFLeak

This is a nice paper: Mesoscale CISS Imaging for the Detection of Dural Defects in Spinal CSF Leaks. Wegscheid et al. medrxiv.org/content/10.110…

PeterGKranz's tweet image. This is a nice paper:
Mesoscale CISS Imaging for the Detection of Dural Defects in Spinal CSF Leaks.  Wegscheid et al. 

medrxiv.org/content/10.110…


🧠 World Brain Day 🧠 On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH

SpinalCSFCanada's tweet image. 🧠 World Brain Day 🧠
On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH
SpinalCSFCanada's tweet image. 🧠 World Brain Day 🧠
On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH
SpinalCSFCanada's tweet image. 🧠 World Brain Day 🧠
On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH

Wonderful few days in Naples learning, educating, collaborating on my fave topic #SIH with amazing colleagues and friends! Thank you Mario Muto and @PeterGKranz 🇮🇹 #SIHNaples @spinalCSFleak #spinalcsfleak

NeuroradLal's tweet image. Wonderful few days in Naples learning, educating, collaborating on my fave topic #SIH with amazing colleagues and friends! Thank you Mario Muto and @PeterGKranz 🇮🇹 #SIHNaples @spinalCSFleak #spinalcsfleak
NeuroradLal's tweet image. Wonderful few days in Naples learning, educating, collaborating on my fave topic #SIH with amazing colleagues and friends! Thank you Mario Muto and @PeterGKranz 🇮🇹 #SIHNaples @spinalCSFleak #spinalcsfleak
NeuroradLal's tweet image. Wonderful few days in Naples learning, educating, collaborating on my fave topic #SIH with amazing colleagues and friends! Thank you Mario Muto and @PeterGKranz 🇮🇹 #SIHNaples @spinalCSFleak #spinalcsfleak

Progression of spontaneous subdural hematomas in a young man over a 3 month period with an untreated lateral #spinalCSFleak. Various barriers to receiving care. He requested surgical repair so he could travel overseas without worrying about the hematomas. ⁦@spinalCSFleak

WouterSchievink's tweet image. Progression of spontaneous subdural hematomas in a young man over a 3 month period with an untreated lateral #spinalCSFleak. Various barriers to receiving care. He requested surgical repair so he could travel overseas without worrying about the hematomas. ⁦@spinalCSFleak⁩

Session on "Conditions less talked -SIH" in the annual meeting of "Society of Therapeutic Neurointervention". Sharing the knowledge is spreading the awareness & caring for SIH patients! @ApolloKarnataka @csfleakaware @spinalCSFleak @csfleakuk #spinalCSFLeak #Headache #CsfLeak

SharathKumarGG7's tweet image. Session on "Conditions less talked -SIH" in the annual meeting  of "Society of Therapeutic Neurointervention". Sharing the knowledge is spreading the awareness & caring for SIH patients! @ApolloKarnataka @csfleakaware @spinalCSFleak @csfleakuk #spinalCSFLeak #Headache #CsfLeak
SharathKumarGG7's tweet image. Session on "Conditions less talked -SIH" in the annual meeting  of "Society of Therapeutic Neurointervention". Sharing the knowledge is spreading the awareness & caring for SIH patients! @ApolloKarnataka @csfleakaware @spinalCSFleak @csfleakuk #spinalCSFLeak #Headache #CsfLeak
SharathKumarGG7's tweet image. Session on "Conditions less talked -SIH" in the annual meeting  of "Society of Therapeutic Neurointervention". Sharing the knowledge is spreading the awareness & caring for SIH patients! @ApolloKarnataka @csfleakaware @spinalCSFleak @csfleakuk #spinalCSFLeak #Headache #CsfLeak

📢You don't want to miss this meeting!!!📢 Worldwide multispecialty experts in #SIH #spinalCSFleak this summer June 28-29 in Amsterdam! Register now: bit.ly/3Z86Sin

PeterGKranz's tweet image. 📢You don't want to miss this meeting!!!📢 

Worldwide multispecialty experts in #SIH #spinalCSFleak this summer June 28-29 in Amsterdam! 

Register now: bit.ly/3Z86Sin

One of the very few centers in the country to offer Digital subtraction Myelography (DSM) @ApolloKarnataka for the Spinal CSF leak patients by our team @SavithKumarINR good news to our patients in India @SpinalCSFCanada @spinalCSFleak @CsfLeakIreland @csfleakinfo #SpinalCsfLeak

SharathKumarGG7's tweet image. One of the very few centers in the country to offer Digital subtraction Myelography (DSM) @ApolloKarnataka for the Spinal CSF leak patients by our team @SavithKumarINR good news to our patients in India @SpinalCSFCanada @spinalCSFleak @CsfLeakIreland @csfleakinfo #SpinalCsfLeak
SharathKumarGG7's tweet image. One of the very few centers in the country to offer Digital subtraction Myelography (DSM) @ApolloKarnataka for the Spinal CSF leak patients by our team @SavithKumarINR good news to our patients in India @SpinalCSFCanada @spinalCSFleak @CsfLeakIreland @csfleakinfo #SpinalCsfLeak
SharathKumarGG7's tweet image. One of the very few centers in the country to offer Digital subtraction Myelography (DSM) @ApolloKarnataka for the Spinal CSF leak patients by our team @SavithKumarINR good news to our patients in India @SpinalCSFCanada @spinalCSFleak @CsfLeakIreland @csfleakinfo #SpinalCsfLeak
SharathKumarGG7's tweet image. One of the very few centers in the country to offer Digital subtraction Myelography (DSM) @ApolloKarnataka for the Spinal CSF leak patients by our team @SavithKumarINR good news to our patients in India @SpinalCSFCanada @spinalCSFleak @CsfLeakIreland @csfleakinfo #SpinalCsfLeak

Welcome to #LeakWeek, our annual awareness week for spinal CSF leak! Join us w @SpinalCSFCanada & @csfleakuk as we raise awareness about this debilitating condition. First up: What is a spinal CSF leak? #leakweek2023 #spinalcsfleak #becauseyourduramaters

spinalCSFleak's tweet image. Welcome to #LeakWeek, our annual awareness week for spinal CSF leak! Join us w @SpinalCSFCanada & @csfleakuk as we raise awareness about this debilitating condition. First up: What is a spinal CSF leak? 

#leakweek2023 #spinalcsfleak #becauseyourduramaters
spinalCSFleak's tweet image. Welcome to #LeakWeek, our annual awareness week for spinal CSF leak! Join us w @SpinalCSFCanada & @csfleakuk as we raise awareness about this debilitating condition. First up: What is a spinal CSF leak? 

#leakweek2023 #spinalcsfleak #becauseyourduramaters
spinalCSFleak's tweet image. Welcome to #LeakWeek, our annual awareness week for spinal CSF leak! Join us w @SpinalCSFCanada & @csfleakuk as we raise awareness about this debilitating condition. First up: What is a spinal CSF leak? 

#leakweek2023 #spinalcsfleak #becauseyourduramaters

Wide range of sizes of ventral dural tears in the experience of @WouterSchievink #SIH2023 #spinalCSFleak

ConnieDelineMD's tweet image. Wide range of sizes of ventral dural tears in the experience of @WouterSchievink #SIH2023 #spinalCSFleak

That’s a great demonstration! I’ve also found resisted inspiration really helpful. The 1st CTM, in end inspiratory breath hold was negative. I later repeated the CTM during resisted inspiration & this CVF filled really well #SIH #spinalCSFleak

brainscandan's tweet image. That’s a great demonstration! I’ve also found resisted inspiration really helpful. The 1st CTM, in end inspiratory breath hold was negative. I later repeated the CTM during resisted inspiration & this CVF filled really well #SIH #spinalCSFleak

Symptomatic Type 1A spinal CSF leak due to bony spur. SIH score 9/9, treated with EBP and hopefully it will offer some long term benefits! #sih #SpinalCSFleak #headache #EBP @spinalCSFleak @The_ASSR @SpinalCSFCanada @CarolinaIten

SharathKumarGG7's tweet image. Symptomatic Type 1A spinal CSF leak due to bony spur. SIH score 9/9, treated with EBP and hopefully it will offer some long term benefits! #sih #SpinalCSFleak #headache #EBP @spinalCSFleak @The_ASSR @SpinalCSFCanada @CarolinaIten
SharathKumarGG7's tweet image. Symptomatic Type 1A spinal CSF leak due to bony spur. SIH score 9/9, treated with EBP and hopefully it will offer some long term benefits! #sih #SpinalCSFleak #headache #EBP @spinalCSFleak @The_ASSR @SpinalCSFCanada @CarolinaIten
SharathKumarGG7's tweet image. Symptomatic Type 1A spinal CSF leak due to bony spur. SIH score 9/9, treated with EBP and hopefully it will offer some long term benefits! #sih #SpinalCSFleak #headache #EBP @spinalCSFleak @The_ASSR @SpinalCSFCanada @CarolinaIten

Fantastic morning session from the pioneers of spinal CSF leak care @WouterSchievink @marcelmaya @PeterGKranz @JrgenBeck @CedarsSinai #SIH symposium #spinalcsfleak awesome talks and discussion 🤩🤩👏🏾👏🏾👏🏾

NeuroradLal's tweet image. Fantastic morning session from the pioneers of spinal CSF leak care @WouterSchievink @marcelmaya @PeterGKranz @JrgenBeck @CedarsSinai #SIH symposium #spinalcsfleak awesome talks and discussion 🤩🤩👏🏾👏🏾👏🏾
NeuroradLal's tweet image. Fantastic morning session from the pioneers of spinal CSF leak care @WouterSchievink @marcelmaya @PeterGKranz @JrgenBeck @CedarsSinai #SIH symposium #spinalcsfleak awesome talks and discussion 🤩🤩👏🏾👏🏾👏🏾
NeuroradLal's tweet image. Fantastic morning session from the pioneers of spinal CSF leak care @WouterSchievink @marcelmaya @PeterGKranz @JrgenBeck @CedarsSinai #SIH symposium #spinalcsfleak awesome talks and discussion 🤩🤩👏🏾👏🏾👏🏾
NeuroradLal's tweet image. Fantastic morning session from the pioneers of spinal CSF leak care @WouterSchievink @marcelmaya @PeterGKranz @JrgenBeck @CedarsSinai #SIH symposium #spinalcsfleak awesome talks and discussion 🤩🤩👏🏾👏🏾👏🏾

For #LeakWeek day three, we’re discussing causes of spinal CSF leak. Here are some examples of types of spontaneous leaks. spinalcsfleak.org/leakweek-2023-… #leakweek2023 #spinalcsfleak #becauseyourduramaters

spinalCSFleak's tweet image. For #LeakWeek day three, we’re discussing causes of spinal CSF leak. Here are some examples of types of spontaneous leaks. 

spinalcsfleak.org/leakweek-2023-… 

#leakweek2023 #spinalcsfleak #becauseyourduramaters

🆕️💧Spontaneous intracranial hypotension – a spinal disease 🔗thieme-connect.de/products/ejour… 'Spontaneous intracranial hypotension (SIH) remains an underdiagnosed condition despite increasing awareness due to recent scientific advances.' ✒️@ZanderCharlotte et al. #SIH #spinalCSFleak

KerenLeah's tweet image. 🆕️💧Spontaneous intracranial hypotension – a spinal disease 🔗thieme-connect.de/products/ejour…

'Spontaneous intracranial hypotension (SIH) remains an underdiagnosed condition despite increasing awareness due to recent scientific advances.' 
✒️@ZanderCharlotte et al.
#SIH #spinalCSFleak

For Brain Awareness day four, we’re discussing the impact of spinal CSF leak on cranial nerves spinalcsfleak.org/brain-awarenes… #brainawarenessweek #becauseyourduramaters #spinalcsfleak

spinalCSFleak's tweet image. For Brain Awareness day four, we’re discussing the impact of spinal CSF leak on cranial nerves 
spinalcsfleak.org/brain-awarenes… #brainawarenessweek #becauseyourduramaters #spinalcsfleak

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