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Straight away to the point blue shine on my internet screen so lived it so much balance #spoonieproblems #cfs #pain #chroniclife #spooniewarrior #spooniestrong #painsucks #autoimmune #fibromyalgia #crps #heretohelp


You know it's bad when you are pouring through anatomy books trying to find any kind of clues for your leg pain. It turns out I honed in on the right areas and was right, but how desperate is it that?! Out. Of. Control. Pain. #SpoonieProblems #RicketyBones #MySeveralWorlds


Today's high was 93 degrees - then when thunderstorms began, it rapidly went down to 68. Holy barometric pressure changes!! #Spoonies #SpoonieProblems #ChronicPain #ChronicIllness


Being a Spoonie is basically a nonstop tug-of-war: youtube.com/shorts/ACMp9I4… 🧠 Brain fog vs. fatigue 💊 Insurance battles vs. symptoms ⏰ Rest vs. productivity guilt Which side wins in your life? 👇 #SpoonieProblems #ChronicIllness #DisabilityHumor #BoatTugOfWar

wearspoonie's tweet card. Spoonie Tug-of-War: Chronic Illness in a Boat

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Spoonie Tug-of-War: Chronic Illness in a Boat


I may have made a huge mistake but I actually have some plans over the next month or two starting with tomorrow - let’s see if they actually come to fruition and life doesn’t get in the way #chronicillness #spoonie #spoonieproblems #invisibleillness


My biggest challenge is not to get ill when my mom has a health problem. She had cancer and now she is really better, but when she fell ill It was a hard time, and after her recovery, I was almost a month in the hospital. #spoonie #spoonieproblems

How many of my chronic illness friends are primary caregivers for a parent or another disabled family member (spouse, child, aunt, grandparent) ? What’s your biggest challenge? Working on a teaching conference and would find your stories helpful. Thanks for sharing.



I'm Indie Publishing A Little Less Invisible Because #5: When the cute new boy looks at you like that–all frazzled and slightly annoyed–and you thought the heart palpitations were bad before 😅 I want to see more #SpoonieProblems in books #AmWriting #YAFantasy #ChronicIllnessRep

inkwellmaisie's tweet image. I'm Indie Publishing A Little Less Invisible Because #5: When the cute new boy looks at you like that–all frazzled and slightly annoyed–and you thought the heart palpitations were bad before 😅 I want to see more #SpoonieProblems in books

#AmWriting #YAFantasy #ChronicIllnessRep

Really wish I could scrape up a few spoons so I could write and talk about my Detroit concert experience. I must be getting worse than I thought if one day’s trip can flare me and knock me out like this… 🥺😭#spoonieproblems


Recently someone told me how difficult is to have a life like mine. Everytime this is told by people I think their intentions are compassive but it feels like "are you reminding me how difficult is my life to make me feel better?" #spoonie #spoonieproblems

Just in case you needed to hear it: Telling a sick and disabled person that we’re strong because you would’ve ended your life if you had to live like us isn’t a compliment



CRAP. Y'all, if your doctor ever offers you a #Shingles vax 💉 (esp if, like me, you are immunocompromised from an autoimmune condition) FREAKING DO IT. YOU DO NOT WANT THIS MISERY. This is now my 3rd case and it FEELS LIKE I'M ON FIRE!!! 🔥 #SpoonieProblems 🥄❤️‍🩹♿🤕


Pad Thai in Pain... what would that even be about?! #SpoonieProblems 🥄❤️‍🩹♿🤕

The tired coffee podcast. Look, I could make it work.

DzintraSullivan's tweet image. The tired coffee podcast. 

Look, I could make it work.


I miss Sparks a lot cuz he was family & my best buddy 🤟... but I ALSO very much miss the freedom & safety having him gave ME! I miss being able to go out with him to the stores & traveling. It's SO hard now, if not impossible. 😭♿❤️‍🩹🤕💉🐕‍🦺💊🥄😷🩸 #SpoonieProblems #Disability

adogwatcher's tweet image. I miss Sparks a lot cuz he was  family & my best buddy 🤟... but I ALSO very much miss the freedom & safety having him gave ME! I miss being able to go out with him to the stores & traveling. It's SO hard now, if not impossible. 😭♿❤️‍🩹🤕💉🐕‍🦺💊🥄😷🩸
#SpoonieProblems #Disability

I just wish it wasn’t such a struggle to afford life and I hate hate hate relying on the help of others. Sigh. #spoonieproblems


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