#pompë search results
When Ipswich scored against Southampton, Conor Chaplin sprinted off the bench to celebrate on the pitch 🤣. You just know it’s written in the stars for him to bag one against them next Sunday! PUP #pompe
Cardiomiopatía hipertrófica🫀 Patofisiología⏩Medicina de Precisión Etiología sarcomérica y no sarcomérica DOI 10.1161/CIRCHEARTFAILURE.123.010687 #RASopatias #Danon #Pompe #Friedreich #Fabry
New 104-week data in LOPD: Cipaglucosidase alfa + miglustat shows: ✅ Stable 6MWD ✅ Stable FVC ✅ Better biomarkers (CK, Hex4) ✅ Good tolerability Promising option for adults with limited response to previous ERT. DOI: 10.1007/s00415-024-12236-0 #LOPD #Pompe #RareDisease
Her race ends, the strides go on... Saddened at the demise of Nidhi Shirol (24) who was suffering from #Pompe disease, a rare genetic condition causing muscle weakness & breathing trouble. Nidhi was on ventilation support from the age of 12 yrs with respiratory issues. 1/3
J-391 : 1er septembre 1947, le village de Fontain acquiert une #pompe à bras réformée des sapeurs-pompiers de Besançon. Bien que dépassés ces agrès seront en service en France jusque dans les années 1970. #PompiersBesançon500ans #Pompier #Histoire #Besançon #Doubs
Benz 4143-Sany 56m camion à pompe avec bon état en vente! #benz #sany #pompe-camion Si vous avez besoin pls contactez-moi
Dutch physician Pompe van Meerdervoort introduced Japan’s first full medical lectures & founded a hospital in Nagasaki—now Nagasaki UniversityHospital. 📖 Read more on Facebook: facebook.com/EmbassyJapanNL… #JapanNetherlands425 #Pompe #NagasakiUniversity
Jour 58/90 de l’objectif pectoraux larges et développés à la maison. Pompe écartée x20 Dips chaise x20 Repos : 1 min Pompe écartée x20 Dips chaise x20 Abonnez-vous pour la suite.. #pourvous #fitness #motivation #chest #pectoraux #homeworkout #dips #pompe #discipline #santé
#ASHG2025: Roberto Araujo, MD, PhD, Senior North America Medical Director for #Fabry and #Pompe disease at @sanofi (@SanofiUS), speaking Oct. 15 at the @GeneticsSociety 2025 conference in Boston. #RareDisease #FabryDisease #PompeDisease #Sanofi
#Sénégal #PremierBaril & #SoWhat On annonce en grande #pompe la production du premier baril de pétrole du Sénégal. Une grande partie de mes concitoyens pensent à tord que tous les problèmes seront #réglés. Je ne serais surpris d’une exaspération de la tension contre les…
Mi vida depende de un medicamento que @Compensar_info se niega a entregar. ¿Hasta cuándo seguiré esperando? ¡Comparte y exijamos una solución! @supersalud @ministeriosalud @petrogustavo #Pompe #Bogotá #SOSSalud
🔴 #Pompe à #chaleur : est-ce vraiment efficace ? 🗣️@Phcharlez : "Oui, c'est efficace mais ce n'est pas une solution universelle. On ne peut pas l’appliquer partout, et ça coûte beaucoup plus cher" 📺youtu.be/5DNm5s-mOLU
After Alison was diagnosed with Pompe disease, she felt unsafe on the floors of her home. Unable to find grip socks she liked, she set up a business selling them. Her company gives 10% of its profits to organizations & projects for people living with #Pompe. #AmicusCares
At the 2025 #MDAconference, Priya Kishnani, MD, of @DukeU, delved into the transformative impact of enzyme replacement therapy on #Pompe disease, addressing its advancements, limitations, and promising innovations shaping its future. Check out the interview now online! @MDAorg
#PilarDeLaSaludEnMéxico 15 de Abril, Día Internacional de la Enfermedad de #Pompe. ¿Qué es la Enfermedad de Pompe? La enfermedad de Pompe es un trastorno genético raro que afecta los músculos y otros tejidos del cuerpo.
It’s possible that the specific drug you’re taking for ERT can make you sick, it could mean that you need to switch to a different drug. You should never be experiencing bad side effects. #Pompe
Getting weaker is not something easy to deal with, it’s important to express yourself but more important to adjust because your life will always keep going. #Pompe
New 104-week data in LOPD: Cipaglucosidase alfa + miglustat shows: ✅ Stable 6MWD ✅ Stable FVC ✅ Better biomarkers (CK, Hex4) ✅ Good tolerability Promising option for adults with limited response to previous ERT. DOI: 10.1007/s00415-024-12236-0 #LOPD #Pompe #RareDisease
During the daylight saving change, it can be challenging to adjust, try keeping yourself on a schedule to help.#Pompe
When trying to lose weight, it is recommended to do so by eating a well balanced diet compared to starving yourself. #Pompe
It is the time to prepare for colder temperatures by making sure your heaters are working properly to prevent common cold. #Pompe
En Japón se generalizó recientemente el #CriabadoNeonatal para las #EnfermedadesLisosomales. Unos números sobre los casos detectados de patologías como #Fabry, #Gaucher, #Pompe o #MPS1 x.com/AECOMySociedad…
Japón y el cribado neonatal expandido 📊 733.838 recién nacidos → 101 diagnósticos: • 75 Fabry • 10 MPS II • 8 Pompe • 5 Gaucher • 2 MPS I • 1 ALD 📖 doi.org/10.1186/s13023… @MPSpapas @pelendinez @AEGHgenetica #RareDisease #NewbornScreening #LSD #ALD #Genetics
🔍✨ ¡Revelación impactante! ¿Sabías que miles de personas lograron escapar de Pompeya durante la erupción del Vesubio? Una investigación reciente revela sus historias de supervivencia y nuevos comienzos. No todo fue muerte en ese fatídico día. #Pompe muyinteresante.okdiario.com/historia/super…
muyinteresante.okdiario.com
Hallazgo en Pompeya: nuevas pruebas revelan que miles de personas escaparon del Vesubio y fueron...
Una nueva investigación revela que muchísimas personas escaparon de Pompeya y reconstruyeron sus vidas en otras ciudades del Imperio.
Usually when you start using a wheelchair, you’re just using it sometimes, because while you need it, you still can walk, and that’s okay. #Pompe
Happy Halloween!!! Enjoy this day anyway you like. Stay in and watch scary movies or have fun going out. #Pompe
Whenever you have to go to the ER, you should let them know you have Pompe disease, even if it’s not pompe related. #Pompe
En Japón se generalizó recientemente el #CriabadoNeonatal para las #EnfermedadesLisosomales. Unos números sobre los casos detectados de patologías como #Fabry, #Gaucher, #Pompe o #MPS1 x.com/AECOMySociedad…
Japón y el cribado neonatal expandido 📊 733.838 recién nacidos → 101 diagnósticos: • 75 Fabry • 10 MPS II • 8 Pompe • 5 Gaucher • 2 MPS I • 1 ALD 📖 doi.org/10.1186/s13023… @MPSpapas @pelendinez @AEGHgenetica #RareDisease #NewbornScreening #LSD #ALD #Genetics
When going to work becomes more of a challenge, it may be time to consider a different job because the challenge will only become more challenging eventually. #Pompe
Accepting that you are living with a muscle wasting disease is not giving up, it’s showing strength. #Pompe
Don’t be afraid to share when you’re getting weaker. It’s hard to accept but it’s important to be open about it. #Pompe
En Japón se generalizó recientemente el #CriabadoNeonatal para las #EnfermedadesLisosomales. Unos números sobre los casos detectados de patologías como #Fabry, #Gaucher, #Pompe o #MPS1 x.com/AECOMySociedad…
Japón y el cribado neonatal expandido 📊 733.838 recién nacidos → 101 diagnósticos: • 75 Fabry • 10 MPS II • 8 Pompe • 5 Gaucher • 2 MPS I • 1 ALD 📖 doi.org/10.1186/s13023… @MPSpapas @pelendinez @AEGHgenetica #RareDisease #NewbornScreening #LSD #ALD #Genetics
💡 A veces las enfermedades raras se esconden a simple vista. Un nuevo caso, una mujer con miocardiopatía hipertrófica fue finalmente diagnosticada con enfermedad de #Pompe, patología tratable. @ClubPompe @AEEPompe 📖 pubmed.ncbi.nlm.nih.gov/41111870/ #EnfermedadesRaras #Cardiología
Find peace in your diagnosis. It’s not something you should be fighting against but more so living with.#Pompe
Cardiomiopatía hipertrófica🫀 Patofisiología⏩Medicina de Precisión Etiología sarcomérica y no sarcomérica DOI 10.1161/CIRCHEARTFAILURE.123.010687 #RASopatias #Danon #Pompe #Friedreich #Fabry
#Pompe: El reto silencioso que enfrenta miles de familias en el mundo cambiodigitalnoticias.com/pompe-el-reto-… #BocaDelRío #Veracruz #México
#WMS2023 @querques2000 present the excellent work on single #RNAseq in late onset #Pompe disesse (#LOPD).
Aprendiendo sobre Enfermedades Raras de los mejores! #Fabry #Pompe #EnfermedadesRaras #MPS #Gaucher #AMSD #Rareview23
Hay entre 6 y 8.000 #enfermedadesraras Me he propuesto nombrar todas las que pueda para dar visibilidad #EERR #sindiagnostico #visibles #invisibles #dificildiagnostico #gaucher #pompe #sindromeasia #fabry #marfan #esclerosistuberosa #renduoslerweber #miastemiagravis
[#Guadeloupe] #incendie : Une #voiture a pris #feu juste devant une #pompe a #essence dans la station-service Vito, à Baie-Mahault, face au centre commercial, ce jeudi 9 mai 2024 vers 14 heures. Les occupants ont pu être évacués. Aucune victime n’est à déplorer. Les soldats du…
![JCSamyde's tweet image. [#Guadeloupe] #incendie : Une #voiture a pris #feu juste devant une #pompe a #essence dans la station-service Vito, à Baie-Mahault, face au centre commercial, ce jeudi 9 mai 2024 vers 14 heures. Les occupants ont pu être évacués. Aucune victime n’est à déplorer. Les soldats du…](https://pbs.twimg.com/media/GNLBY2EXoAAGWHC.jpg)
En verano no se para. Nuestra pizarra formativa de hoy. A cargo de Manuel Rouco, sobre actualización en #pompe
Benz 4143-Sany 56m camion à pompe avec bon état en vente! #benz #sany #pompe-camion Si vous avez besoin pls contactez-moi
Two smiling father's who have lost their hope in the jeorney but not hope for the cause we work. Met Mr Aanand after a long time. He asked me how are you. I smilled and said we are in the same boat. We understood how we are. #pompe #dmd #cure #treatment #raredisease
J-391 : 1er septembre 1947, le village de Fontain acquiert une #pompe à bras réformée des sapeurs-pompiers de Besançon. Bien que dépassés ces agrès seront en service en France jusque dans les années 1970. #PompiersBesançon500ans #Pompier #Histoire #Besançon #Doubs
Belle association Liberpomp sur l initiation de la #pompe à #insuline pour les patients avec #diabete en libéral #endocrinologie #diabetologie #nutrition
Contactez-nous pour les #Surpresseurs d'Eau et une #Electricité sans interrompue 24h/24 7j/7 #afrika #afrique #africa #turkey #turquie #türkei #istanbul #perpa #import #export #energy #electric #electricity #solar #surpresseur #pompe #eau #water #pump #hydrophore #moteur #motor
'Pompe Disease' -Also called Glycogen Storage Disease Type II, A rare Genetic Disorder caused by deficiency of the enzyme Acid Alpha Glucosidase #GAA ,No cure as of now. :Details #Pompe #GeneticDisorder #EnzymeReplacementTherapy #raredisease #healthcare #UPSC Source: IE
Celebrating the Resilient Life A Letter of Gratitude and Hope from Nidhi Shirol #Pompe #patient #RareDisease @MoHFW_INDIA @NITIAayog @mansukhmandviya @Swasticharan @spsinghbaghelpr @narendramodi @PMOIndia @iapindia @PTI_News @ManipalHealth
Dutch physician Pompe van Meerdervoort introduced Japan’s first full medical lectures & founded a hospital in Nagasaki—now Nagasaki UniversityHospital. 📖 Read more on Facebook: facebook.com/EmbassyJapanNL… #JapanNetherlands425 #Pompe #NagasakiUniversity
Her race ends, the strides go on... Saddened at the demise of Nidhi Shirol (24) who was suffering from #Pompe disease, a rare genetic condition causing muscle weakness & breathing trouble. Nidhi was on ventilation support from the age of 12 yrs with respiratory issues. 1/3
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