#pwms ผลการค้นหา
~7 yrs ago I had 1st symptoms of CIS/#RRMS. Had 8 mo old & my🌎turned upside⬇️. Impt things said to me early on/helped me/have been true that I think all #PwMS should 👂/try to let sink in, & be reminded of frequently by❤️ones/care team (esp.early days after getting diagnosed):
👍Anty, appreciate the reminder to others that there is a *whatever* ... Anticd20 meds slow progression of my MS but deplete my B cells, making me IC so i mask. I deal w/ hostility EVERY DAY by ppl w/ mask fetish triggers. If so annoyed by #PwMS trying to stay well get therapy!
Calling all scientists interested to what it is like to have #MS What question would you like me to put to our community of people with MS #pwMS in the CCMR symposium? Reply here or DM @CentreMyelin @mssocietyuk @MStranslate @MSTrust @CamNeuro @Pluchinolab @Cambridge_Uni
Seen my dentist today. He referred me to a myofacial specialist. Have you ever been to one? For years I've dealt with a very tight jaw. And now nerve issues in my face. #trigeminal #thisisms #pwms
#ABNINA23 @ChuckiBlu presenting the results of @mssocietyuk funded longitudinal study of a digital resilience trading programme for #pwMS to reduce work instability @LTHTResearch
There is much to learn about what makes us unwell. A lot of overlap for triggers, mechanisms + treatment. But who notices that #PwMS leave work bc THEY CANT WORK? Few get private #LTD or public #disability. Yeah, why is that? Because dx +functional deficits dont actually matter💔
I spent the day in the ER after having non stop chest pains for 24hrs. 😢 Had a full work up. She did mention possibly from MS #musclespasms Diagnosis was slight Pneumonia in my right lung. Have you ever had constant stabbing chest pain from MS #pwMS #thisisms #antibiotics
Interesting that in a review of outcomes in exercise trials in #pwMS there were 15 different outcomes used to measure fatigue! @LornaPaul
🔥 Ketones this morning! 🔥 1.5 was my starting goal for #therapeuticketosis I want to get to 2.5-3.0 I definitely can tell im running on ketones! #thisisms #pwms #keto
I'm not sure I want to get into herbal remedies but could be an interesting read considering she has #MultipleSclerosis #pwms #thisisms I need to watch the season she was on. #alone
Listening to Bernie Porter MBE talking @neuroresponse at the #PrimaryCareConference for #pwMS in Scotland. #Innovation #Improvement @Sue_NHiS @mssocietyuk @MSTrustforHPs @TheNeuroAcademy @MSTrust @MS_Together_
So grateful for this amazing team of neurologists, nurses, physio, neuropsychologists, scientists and researchers that provide care for #pwMS @AlfredHealth. Missing a few people, and a cold day in Melbourne but we still managed to smile! @LouiseRath2 @MasturaMonif @HelmutButz
Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS
Very exciting! #Truvada to possibly slow EBV replication in a small group of #pwMS. #MS #EBVcausesMS @GavinGiovannoni
BIG NEWS! Solving MS has FULLY FUNDED a Harvard MS Clinical Trial entitled: Effects of Antiviral Therapies on Epstein-Barr Virus Replication. Details will be in our formal press release that is soon to come. classic.clinicaltrials.gov/ct2/show/NCT05…
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