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Falls die wieder meine #Maske ansprechen - frage ich dann, wieviele Zigaretten ich rauchen soll, um meine Krankheitsangst zu überwinden? #pwME #pwMS


How much time do you need in the morning to function? #thisisms #pwms #fatigue 🫠


Seen my dentist today. He referred me to a myofacial specialist. Have you ever been to one? For years I've dealt with a very tight jaw. And now nerve issues in my face. #trigeminal #thisisms #pwms


I spent the day in the ER after having non stop chest pains for 24hrs. 😢 Had a full work up. She did mention possibly from MS #musclespasms Diagnosis was slight Pneumonia in my right lung. Have you ever had constant stabbing chest pain from MS #pwMS #thisisms #antibiotics

ReneaLynnMN's tweet image. I spent the day in the ER after having non stop chest pains for 24hrs. 😢
Had a full work up. She did mention possibly from MS #musclespasms 
Diagnosis was slight Pneumonia in my right lung. Have you ever had constant stabbing chest pain from MS #pwMS #thisisms #antibiotics

🚨 Are you a retailer selling or hiring powered wheelchairs or mobility scooters? We provide free training that helps you recommend safer, more suitable equipment & promotes your commitment to customer care. 👉 vist.ly/3n8h8sk #MobilityScooters #PWMS #DrivingMobility


I think we can all say that this weekend was rough! 🥵 #thisisms #pwMS My MS was acting up for a week or two prior. This weekend though was the topper! I am back and forth. Desk to study and back in bed.


Do any #pwMS see a Functional Holistic Neurologist?? I do very much respect and trust my current Dr. I am though looking. One that focused on treating the body as a whole. Without the use of DMT! Maybe have both? 💁‍♀️ #thisisms

Didn't know it existed %100
Happy with treatment %0

6 vote · Final results


Chronically ill but chronically fabulous! #sillygoose #honk #Pwms facebook.com/share/p/1EprXr…


🔥 Ketones this morning! 🔥 1.5 was my starting goal for #therapeuticketosis I want to get to 2.5-3.0 I definitely can tell im running on ketones! #thisisms #pwms #keto

ReneaLynnMN's tweet image. 🔥 Ketones this morning! 🔥
1.5 was my starting goal for #therapeuticketosis 
I want to get to 2.5-3.0
I definitely can tell im running on ketones! #thisisms #pwms #keto

Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS

EthelScl's tweet image. Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS
EthelScl's tweet image. Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS
EthelScl's tweet image. Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS
EthelScl's tweet image. Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS

Happy Friday Friends! How is everyone doing? Any weekend plans? Its beautiful today in MN 🌤️ I am though, as usual, inside studying Finally out of the #ocrevus fog! 🙏 #thisisms #pwms


The findings of this trial will be vital in guiding the future treatment of #MultipleSclerosis to lower the risk of secondary health complications and, therefore, improve treatment outcomes. Sofía’s PhD research is sponsored by @MS_Australia and the NCNED. #MS #pwMS #2025AAN


Sofía’s poster shared preliminary findings from a clinical trial investigating the potential role of combined alemtuzumab and rituximab therapy in reducing the incidence of secondary autoimmunity among people receiving treatment for #MultipleSclerosis. #MS #pwMS #2025AAN


NCNED PhD Candidate, Ms Sofía Jimenez Sanchez, presented at the 2025 American Academy of Neurology in San Diego, California last week. 📖 Read Sofía’s abstract in the conference journal here: doi.org/10.1212/WNL.00… @SJimenezS__ #MultipleSclerosis #MS #pwMS #AANConference2025


When I’m in a car - i wear a seatbelt. When I’m riding a bike - i wear a helmet. When I’m on the tube - i wear a mask. Simple as that. Keeps me safer. Keeps my brain safer. Does not make me invincible. Does not mean I live my life in fear. #MaskUp #pwME #pwMS #easy


Das Leben der anderen geht weiter. Wâhrend meines pausiert. Ich bin froh, dass Friends sich noch melden, also sage ich nicht, wie neidisch ich bin. Aus Angst, dass sie sich dann nicht mehr melden. #pwME #pwMS #fatigue #chronical


Happy Sunday Friends ☕️ #pwMS How are we all doing? I'm fighting fatigue DAILY! It's been a beast! #crapgap Coming off #ocrevus #thisisms


Was a Lumbar Puncture (spinal tap) part of your diagnosis? Did you have oligoclonal bands present in your spinal fluid? #thisisms #pwMS

A study reported that oligoclonal bands in cerebrospinal fluid were linked to a higher relapse risk in patients with #MOGAD, suggesting oligoclonal bands positivity could be an independent relapse risk factor. #MultipleSclerosis neurologylive.com/view/oligoclon…



Montag: Bin ich vielleicht nur faul? Könnte ich nicht doch vielleicht arbeiten? … Mittwoch: verbringe den Tag mit geschlossenen Augen im Bett. #pwMS #fatigue #ChronischKrank #chronicillness


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