#usemydata search results
@HDR_UK #Midlands Webinar Alert @C_Carrigan presents #useMYdata. Discover what @useMYdata is and how it can help. Fri @ 12.30pm. Sign up: hdrmidlands.org.uk/data-grand-rou… #datasaveslives
Monica Jefford from UseMyData emohasising inportance of collecting data safely and effectively "Data should be given willingly to help others knowing effective safeguards in place." #usemydata #bladdercancer
#AMMF’s CEO, Helen Morement, discusses “The Power of Data”, and its importance to the rare and less common cancer community, with Chris Carrigan, Expert Data Adviser, #UseMyData, at #BigCancer52Conversation #cholangiocarcinoma #bileductcancer #cancer52org
Richard Stephens has been explaining what #useMYdata members and patients want to see happening in research #Transparency #itsgoodtoshare #patientdata
All set for #CRUKDataConf24 today & tomorrow #Manchester @CR_UKresearch. Come say hello to #useMYdata Members, learn more about using our #PatientDataCitation in your work. #itsgoodtoshare
"use MY data is a fantastic patient advocacy organisation." @natalie_banner gets the panel discussion underway "Exploring the promise and addressing the challenges of AI-powered genomics" at #GERS20. Ceri Steele bringing the voice of #useMYdata Members to the conversation.
Looking forward to meeting #patient advocates and researchers at #HDRUKConference this week. Visit our stand to learn about the benefits of #useMYdata membership and our work promoting the trustworthy use of patient data to save lives and improve outcomes. #healthdata #research
Next up at #CRUKDataConf24 #useMYdata members Richard Stephens @DebbieKeatley on "Designing data research to create patient and public benefit." @mhairi_aitken @deemtembo @NielsPeek #AntonisAntoniou #PatientDataCitation #itsgoodtoshare #patientdata #patientadvocates #transparency
📢SAVE THE DATE 🗓️ 24 June 2025 📍Leeds UK The UK’s first NATIONAL PATIENT DATA DAY ℹ️ Agenda set by patients for patients and the public 📈Stakeholders from across the patient data world bit.ly/3WtjIaI #NPaDD2025 #useMydata
To stay in touch with #useMYdata head over to our LinkedIn page: bit.ly/3AKdhrH To watch recordings of our Education Sessions visit: bit.ly/3X8UH3Z To join use My data visit: bit.ly/3AUUzgM
Ceri will be putting the patient's perspective in this afternoon's AI and Genomics panel discussion, "Exploring the promise and addressing the challenges of AI-powered genomics" (14:25-15:00). #useMydata #research
Looking forward to the panel discussion at #Cancer52’s Big Conversation today when I’ll be speaking with Chris Carrigan, #UseMyData, on The Power of Data !!! #cholangiocarcinoma #livertwitter
The #AMMF team is heading to Canary Wharf this morning to take part in #Cancer52’s Big Conversation. On the agenda - the power of data and the power of collaboration! #cholangiocarcinoma. #bile duct cancer
#useMYdata Member @PJohnMarsh99 will be bringing the patient perspective to the panel: "Examining the future of data management, integration and the Federated Data Platform" @wfpevents Westminster Health Forum on 22 May. #transparency
Discover the Next steps for patient records in the NHS and use of patient data in England with Westminster Health Forum on the 22nd of May, with speakers including @ndgoffice @UniofOxford @acumentice and more! Conference info & registration: westminsterforumprojects.co.uk/conference/Pat…
We're looking forward to being part of @Cancer52org's #BigConversation tomorrow. Our Data Adviser @C_Carrigan will be discussing "The power of data" with @HelenMorement, CEO @CharityAMMF #useMydata #SavingLivesTogether
Incredibly excited to be hosting the #BigCancer52Conversation tomorrow - Wed 19th June at @Level39CW, bringing together the wider rare and less common cancer community to progress outcomes #Level39
"Say what you do; do what you say!" #useMYdata is doing "fantastic work to develop meaningful transparency." Chuffed to have the efforts of uMd Members recognised with a ringing endorsement from @NDGoffice Dr Nicola Byrne #HDRUKConference #transparency #patientdata @C_Carrigan
Our February guest blog by use MY data explains why transparency and plain language are critical to public trust in commercial use of patient data: tinyurl.com/2p9ekcwc #useMYdata #transparency #PatientVoice
#useMYdata member @PeteWheatstone is a guest on the latest episode of the @BowelResearch podcast. Pete discusses the often completely overlooked topic of dealing with a cancer diagnosis when you are #selfemployed.
Episode 11 of Can I Butt In? is now available! This week, host and PPI manager, Sam Alexandra Rose is joined by Pete Wheatstone to discuss his experiences of having bowel cancer while being self-employed. Tune in now! You can listen directly on PodBean > canibuttin.podbean.com
@HDR_UK #Midlands Webinar Alert @C_Carrigan presents #useMYdata. Discover what @useMYdata is and how it can help. Fri @ 12.30pm. Sign up: hdrmidlands.org.uk/data-grand-rou… #datasaveslives
To stay in touch with #useMYdata head over to our LinkedIn page: bit.ly/3AKdhrH To watch recordings of our Education Sessions visit: bit.ly/3X8UH3Z To join use My data visit: bit.ly/3AUUzgM
📢SAVE THE DATE 🗓️ 24 June 2025 📍Leeds UK The UK’s first NATIONAL PATIENT DATA DAY ℹ️ Agenda set by patients for patients and the public 📈Stakeholders from across the patient data world bit.ly/3WtjIaI #NPaDD2025 #useMydata
"use MY data is a fantastic patient advocacy organisation." @natalie_banner gets the panel discussion underway "Exploring the promise and addressing the challenges of AI-powered genomics" at #GERS20. Ceri Steele bringing the voice of #useMYdata Members to the conversation.
Ceri will be putting the patient's perspective in this afternoon's AI and Genomics panel discussion, "Exploring the promise and addressing the challenges of AI-powered genomics" (14:25-15:00). #useMydata #research
We're excited to be @GenomicsEngland #GERS2024 today. #useMYdata members, Ceri Steele and Yvonne Adebola are looking forward to meeting attendees and answering questions. Stop by to say hello and find out more about our work. #PatientData #Transparency
The team have been working hard in preparation to welcome you all to the 2024 Genomics England Research Summit tomorrow, we can't wait to get stuck into the action! #GERS2024
#AMMF’s CEO, Helen Morement, discusses “The Power of Data”, and its importance to the rare and less common cancer community, with Chris Carrigan, Expert Data Adviser, #UseMyData, at #BigCancer52Conversation #cholangiocarcinoma #bileductcancer #cancer52org
Looking forward to the panel discussion at #Cancer52’s Big Conversation today when I’ll be speaking with Chris Carrigan, #UseMyData, on The Power of Data !!! #cholangiocarcinoma #livertwitter
The #AMMF team is heading to Canary Wharf this morning to take part in #Cancer52’s Big Conversation. On the agenda - the power of data and the power of collaboration! #cholangiocarcinoma. #bile duct cancer
We're looking forward to being part of @Cancer52org's #BigConversation tomorrow. Our Data Adviser @C_Carrigan will be discussing "The power of data" with @HelenMorement, CEO @CharityAMMF #useMydata #SavingLivesTogether
Incredibly excited to be hosting the #BigCancer52Conversation tomorrow - Wed 19th June at @Level39CW, bringing together the wider rare and less common cancer community to progress outcomes #Level39
The review of the #NHS Constitution includes a question on health data in research. We are gathering the views of our Members to submit a collective response. #useMydata #transparency #patientdata
We're keen to hear whether you feel the NHS Constitution reflects the experiences you have and gives you the support you need in your care and your working lives. Share your views in our consultation: gov.uk/government/con…
#useMYdata Member @PJohnMarsh99 will be bringing the patient perspective to the panel: "Examining the future of data management, integration and the Federated Data Platform" @wfpevents Westminster Health Forum on 22 May. #transparency
Discover the Next steps for patient records in the NHS and use of patient data in England with Westminster Health Forum on the 22nd of May, with speakers including @ndgoffice @UniofOxford @acumentice and more! Conference info & registration: westminsterforumprojects.co.uk/conference/Pat…
"Say what you do; do what you say!" #useMYdata is doing "fantastic work to develop meaningful transparency." Chuffed to have the efforts of uMd Members recognised with a ringing endorsement from @NDGoffice Dr Nicola Byrne #HDRUKConference #transparency #patientdata @C_Carrigan
Looking forward to meeting #patient advocates and researchers at #HDRUKConference this week. Visit our stand to learn about the benefits of #useMYdata membership and our work promoting the trustworthy use of patient data to save lives and improve outcomes. #healthdata #research
📢Let's hear it for the #PatientDataCitation created by #useMYdata members. Patient data underpins research. Remember to acknowledge patients in any published work that would not have been possible without access to their patient data:➡️ bit.ly/3OYPHvs #CRUKDataConf24
My favourite part of #CRUKDataConf24 was Richard Stephens offering "redemption stickers" to all those attendees with posters who hadn't yet found time/space to acknowledge the contribution of the people & data about them that underpinned their research & its insights.
How to ensure #patients benefit from the wealth of academic research? Thought provoking discussion co-chaired by @markowetzlab and #useMYdata member @GumbsJo with panel and delegates #CRUKDataConf24 #transparency #patientdata #sharingisgood #AI
💡How much added value do AI tools have for patient benefit? Join the debate with our co-chairs @markowetzlab (@CRUK_CI) & patient advocate Jo Gumbs and speakers @CataVallejosM (@EdinburghUni) & @cwcyau (@UniofOxford) at our #CRUKDataConf24 (AB)
Richard Stephens has been explaining what #useMYdata members and patients want to see happening in research #Transparency #itsgoodtoshare #patientdata
Next up at #CRUKDataConf24 #useMYdata members Richard Stephens @DebbieKeatley on "Designing data research to create patient and public benefit." @mhairi_aitken @deemtembo @NielsPeek #AntonisAntoniou #PatientDataCitation #itsgoodtoshare #patientdata #patientadvocates #transparency
All set for #CRUKDataConf24 today & tomorrow #Manchester @CR_UKresearch. Come say hello to #useMYdata Members, learn more about using our #PatientDataCitation in your work. #itsgoodtoshare
Our February guest blog by use MY data explains why transparency and plain language are critical to public trust in commercial use of patient data: tinyurl.com/2p9ekcwc #useMYdata #transparency #PatientVoice
@HDR_UK #Midlands Webinar Alert @C_Carrigan presents #useMYdata. Discover what @useMYdata is and how it can help. Fri @ 12.30pm. Sign up: hdrmidlands.org.uk/data-grand-rou… #datasaveslives
Webinar @useMYdata #usemydata Using Our Voice - how our members are encouraging the use of health data to benefit others
#AMMF’s CEO, Helen Morement, discusses “The Power of Data”, and its importance to the rare and less common cancer community, with Chris Carrigan, Expert Data Adviser, #UseMyData, at #BigCancer52Conversation #cholangiocarcinoma #bileductcancer #cancer52org
SOCIAL NETWORKS HAVE THE BEST DATA TO FIGHT #covid19 #fightit #usemydata #verybodycanhelp #datafactories #bebrave #makesomgood linkedin.com/embed/feed/upd…
Monica Jefford from UseMyData emohasising inportance of collecting data safely and effectively "Data should be given willingly to help others knowing effective safeguards in place." #usemydata #bladdercancer
Looking forward to co-chairing a fantastic Bowel Cancer Intelligence UK meeting at the University of Leeds on this beautiful bright day with @C_Carrigan #UseMyData #BowelCancerData #LeedsInstituteForDataAnalysis
Great to hear @RebNichells talk about the Yorkshire and Humber Local Health and Care Record Exemplar #LHCRE at the #usemydata workshop in Leeds. @LeedsCareRecord @nhsleeds
What is health data and how is it used for research? Find out more from @HDR_UK's website bit.ly/34cxkLv #HealthDataTogether #DataSavesLives #UseMyData #HealthData @CambridgeBRC bit.ly/2HJPYCV @Gutreaction_Hub @CambridgeBRC
Richard Stephens has been explaining what #useMYdata members and patients want to see happening in research #Transparency #itsgoodtoshare #patientdata
Got questions about health data research? Take a look at @HDR_UK's Frequently Asked Questions to find out about types of data used for research, how it’s kept safe and more: hdruk.ac.uk/what-is-health… #HealthDataTogether #DataSavesLives #UseMyData @Gutreaction_Hub @CambridgeBRC
Why is it important to safely & securely gather & share health data? This short video from @Patient_Data explains how health data helps the NHS and improves healthcare: youtu.be/fJ2hyXCOOyQ #HealthDataTogether #DataSavesLives #UseMyData @HDR_UK @Gutreaction_Hub @CambridgeBRC
“When you need treatment you will be very glad that those that went before allowed their data to be used for research!” - Patient voice on the use of patient data – we all benefit from the data of those who came before us & we can all help those who come next. #usemydata
.@C_Carrigan on embracing the data opportunity. We need to remove some of the blockers to be able to use patient data more effectively. #usemydata #ABPIConf
Next up at #CRUKDataConf24 #useMYdata members Richard Stephens @DebbieKeatley on "Designing data research to create patient and public benefit." @mhairi_aitken @deemtembo @NielsPeek #AntonisAntoniou #PatientDataCitation #itsgoodtoshare #patientdata #patientadvocates #transparency
"use MY data is a fantastic patient advocacy organisation." @natalie_banner gets the panel discussion underway "Exploring the promise and addressing the challenges of AI-powered genomics" at #GERS20. Ceri Steele bringing the voice of #useMYdata Members to the conversation.
We’re taking a little seasonal Twitter break & look forward to returning in 2023. We'll be continuing our work bringing patient voices to discussions about patient data & promoting the benefits of using data - to save lives & improve outcomes for those who come next. #usemydata
Using #healthdata responsibly - the topic for today's webinar. Ever wondered what the difference is between anonymisation and pseudonymisation? Or how we create secure environments for data access? Follow along for answers to these questions & more 🧵⬇️ #useMYdata #DataSavesLives
“As a cancer patient, I want, nay DEMAND that my data is used safely & securely for research & patient benefit.”- #usemydata Members recognise the value of using their patient data to help the next generation of patients - just as they've been helped by those who came before.
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