FMD Alerts/Awareness Vancouver
@AlertsFmd
Fibromuscular Dysplasia news - resource for new literature + research, advocacy, and events! Based in Vancouver, CA
You might like
The Fibromuscular Dysplasia Society of America #FMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). fmdsa.org
Did you know we offer My Chronic Brain editions in PDF and ePub formats completely for free? And we’re getting ready to release Kindle versions soon too! Download now to access information relevant to your life with Chronic Migraine: MyChronicBrain.com
One of the best parts of the job is teaching, mentoring, & working w brilliant, hard working women. Spectacular crew in my vasc med clinic today w vasc med fellow & 2 IM residents. Proud to be @VUMC_heart @VUMChealth @DrJohnMcP @JoshuaBeckmanMD @AaronAdayMD @AlderMadeleine
Faces of FMD Meet fibromuscular dysplasia patient advocate and #FMDSA hero, Cheryl. Cheryl served on the #FMDSA Board for a number of years and continues to be active behind the scenes as a volunteer. Cheryl also volunteers her time as the New Jersey FMDSA Support Group Leader.
This has been my view 4 last 24h. I've been unable 2 get out of bed @ all Calls made 2 Drs but this=the reality of living w a #RareDisease w no @FDA approved treatments #Patients deserve more than just wishing tomorrow will B better. I deserve the science 2 know how 2 make it so
The FMDSA is honored to introduce you to, Rosie Miklavcic. Rosie is one of our new Directors-At-Large. Rosie has beeen an active volunteer for a number of years and is the FMDSA Kentucky support group leader.
With great pleasure please join us in welcoming the new Vice President of #FMDSA, Carol Rogers. Carol has served as a Director-At-Large for several years. Carol also volunteers as the North Carolina FMDSA support group leader. We appreciate Carol's ongoing service.
Welcome new #FMDSA Director-At-Large, Sally Albrigo. Sally has volunteered with FMDSA and will be assisting @pdmace2 with the marathon walkers and runners at the @clevemarathon 2021.
Behind every stroke is a story. She is mRS 5 at baseline (left hemiplegia), but who are we to judge others' quality of life? She could talk, smile and kiss her husband, how do you not treat her? Who cares about your "mRS 0-2" statistics, it's all about the patient. Always
the findings that extra-coronary FMD is detected commonly in SCAD patients and both have a genetic predisposition to their aetiology suggest that they share at least some of the same molecular mechanisms underlying their pathophysiology.eprints.victorchang.edu.au/1017/1/Iismaa_…
This week we #Dazzle4Rare in honor of the more than 7,000 #rarediseases & the #patients, #caregivers & allies who fight 2 raise awareness for them We R a community that is united through our differences & who seeks 2 remind people “U R never alone in this,we will B here 4 U”
Faces of FMD Meet Carol from NC referred to a vascular dr for carotid stenosis due to plaque. US tech suspected FMD. Angio confirm carotid & renal fibromuscular dysplasia. Angioplasty R renal & open clip clip aneurysm. Sister & mom fmd. 2 brothers w/ Aortic artery aneurysm
Faces of FMD "My name is Michele, 44 year s old. DX w/renal fibromuscular dysplasia discovered during surgery for something else. My journey began w/ toes & fingers turning white & painfully numb when chilled. They have found 3 aneurysms on my renal gland. I only have one kidney.
Faces of FMD Meet fibromuscular patient advocate and hero, Karen. Karen is from Massachusetts. "I am enrolled in the FMD research database so that my experience with FMD can help me and others with the disease." #FMDSA
Last Thursday night we were blessed to have great weather and a wonderful turn out (including 4 new folks) for our #maine #brainaneurysm Support Group meeting. Please read Heidi’s “Brain Blog” entry about how meaningful the discussion was: heidisbrainblog.com/2020/07/30/per…
Thank you @AmHeartAdvocacy @American_Stroke for sharing Breanna's spontaneous coronary artery dissection #SCAD and fibromuscular dysplasia #FMD story. #FMDSA heart.org/en/affiliates/…
Chronic Migraine doesn’t just hit you physically, it also hits you emotionally. Can you relate? Read more about Angie (@winedarkme) and her journey as a patient and advocate in the latest edition! Free download: mychronicbrain.com
Faces of FMD Meet fibromuscular dysplasia patient advocate and hero, Michelle. "I am from North Carolina. 3 #SCADS then diagnosed with fibromuscular dysplasia #FMD" #FMDSA
Images in Vascular Medicine: Peripheral artery thrombosis in critically ill patients with #COVID19 ow.ly/BwbE50AOMDA
The first consensus-based nomenclature for arterial and venous waveforms has been published! ow.ly/9nKC50AOMGW @SAGEClinMed @EurekAlert Access the guidelines here: journals.sagepub.com/doi/full/10.11…
United States Trends
- 1. FINALLY DID IT 1,63 Mn posts
- 2. Myles Garrett 10,4 B posts
- 3. Giants 37,7 B posts
- 4. Riley Leonard 4.936 posts
- 5. The PENGU 241 B posts
- 6. Cam Little 6.744 posts
- 7. The AsterDEX 94,7 B posts
- 8. Bengals 11,5 B posts
- 9. The BONK 174 B posts
- 10. The Jupiter 279 B posts
- 11. The WET 32,7 B posts
- 12. Joe Burrow 2.693 posts
- 13. #DawgPound 2.824 posts
- 14. Alec Pierce 2.023 posts
- 15. JJ McCarthy 2.303 posts
- 16. Max Brosmer N/A
- 17. #Browns 2.755 posts
- 18. Joe Milton N/A
- 19. Saints 37,6 B posts
- 20. Chelsea 219 B posts
Something went wrong.
Something went wrong.