FMD-Be
@FmdBe
Fibromuscular Dysplasia Patient Association in Belgium/Association belge de patients atteint de dysplasie fibromusculaire/ FMD Groep België
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📈New study finds high prevalence (8.3%) of cervical fibromuscular dysplasia in aneurysmal subarachnoid hemorrhage patients 🧠⭕️No clear differences in aneurysm severity and internal carotid artery elongation compared to those without journals.sagepub.com/doi/abs/10.117…
Join our Strand of Strength during the FMDSA's Annual Appeal! Every donation—big or small—adds a ‘bead’ to our Strand of Strength. Add your bead today at fmdsa.org/donation-form/ and help us reach our goal to keep making an impact! #StrandOfStrength #FMDSAStrong #fmdsa
Virtual #FMD support group led by @heatherlgornik of @HarringtonHVI in collaboration with @pdmace2 of @FMDarteryis garnering the participation of patients worldwide. uhhospitals.org/for-clinicians…
#FMDgenetics study update with @DrJeffreyWOlin1 and @kovacic_jason is available on our YouTube channel! youtube.com/watch?v=fcGTbC… #fibromusculardysplasia #fmdresearch #supportfmdresearch #geneticsoffmd
youtube.com
YouTube
FMD and New Genetic Findings. Presented by Drs. Jeffrey Olin & Jason...
The research update webinar video is available on our YouTube channel. Thank you @DrJeffreyWOlin1 and @kovacic_jason for updating our patient community on this research! #FMD #FibromuscularDysplasia #mtsinainyc @MountSinaiNYC @VictorChangInst youtube.com/watch?v=fcGTbC…
#fibromusculardysplasia #FMD included as a possible cause of chronic mesenteric ischemia in this @ClevelandClinic journal of medicine article. ccjm.org/content/91/9/5…
A major driver of FMD has been identified by a team of scientists incl our Director Prof @Kovacic_Jason. The @NatureCVR study could help lead to new treatments for the disease which effects ~5% of adults and can cause stroke, heart attack + kidney failure: victorchang.edu.au/news/cause-fmd…
We're excited to share this @MountSinaiNYC @IcahnMountSinai press release about the paper published today in @Nature tinyurl.com/yc664pat "the team said changes in the gene UBR4 played an important role as a key driver of FMD" @DrJeffreyWOlin1 @kovacic_jason
@UHhospitals FMD and Arterial Dissection support group webinar "Celebrating FMD Awareness Month and Misconceptions about Fibromuscular Dysplasia: The Most Important Facts Learned from the US Registry" with @heatherlgornik and @DrJeffreyWOlin1 youtu.be/t1CUBIaUU6w?si…
youtube.com
YouTube
Misconceptions about Fibromuscular Dysplasia: The Most Important...
In honor of #WorldHypertensionDay, we share a classic Patient Information Page on #hypertension, including diagnostics, meds, and more! Image shows correct positioning for measuring blood pressure doi.org/10.1177/135886… Written by @shireen_khoury @evratchford
In the latest issue: Dr. Kądziela and colleagues share short- and long-term outcomes of renal artery angioplasty versus stenting in patients with fibromuscular dysplasia. #FibromuscularDysplasia buff.ly/49Hi9dh
#ImagesinVascMed - 68-year-old female with presented with chest/back pain. Imaging revealed 5.5cm abdominal aortic aneurysm. During endovascular repair, ‘string-of-pearls' renal arteries noted, consistent with fibromuscular dysplasia. @TobyRichardsUCL buff.ly/3NWma4W
Fibromuscular dysplasia, or #FMD, is a condition in which abnormal cell development in the artery wall can lead to serious health consequences. The FMD registry, which is managed by @mcorrp at @umichmedicine, has now expanded to international centers: prunderground.com/the-fibromuscu…
Cardiology Grand Rounds this Friday. Daniella Kadian-Dodov, MD of @IcahnMountSinai presents "Fibromuscular Dysplasia: Looking Beyond the String-of-Beads" -in person and via Zoom. #CME available. Register here: texasheart.org/event/texas-he… #GrandRounds #Cardiology #FMD @DKadiandodov
Congratulations @tinachrysochou and all those behind the #ukfmdstudy 🥳 Great news for our #fmd community in the UK, we know it’s taken a lot of you and your teams time and effort!
Great to be offering our UK patients with Fibromuscular Dysplasia the opportunity to join this research collaboration. The UKFMD study is the UK arm of #FEIRI. Now recruiting! @NCAresearchNHS @FmdsUk @FmdBe @FMDartery. #BIHS2023
A Bendigo nurse is on a mission to raise awareness of fibromuscular dysplasia (FMD) after losing her only sister to the rare disease and receiving her own life-changing diagnosis. abc.net.au/news/2023-07-1… @BendigohealthI
Terrific Grand Rounds @SmidtHeart by @EstherSHKimMD on #FMD 📌prevalence 4-6% 💃🏻disproportionately affects women 💔multi focal most common 🧩present as HTN, stroke, tinnitus & seen in #SCAD ✅>50% multivessel involvement
SCAD AND MENTAL HEALTH – CONTRIBUTE TO RESEARCH! Edinburgh Napier University study to investigate the prevalence of mental health issues in SCAD patients. If you are a UK-based SCAD patient, please fill in this questionnaire before 31 July. survey.napier.ac.uk/n/zz8ba.aspx.
LIVE STREAMING Mayo Clinic Presentation 6/16 @ 7:30pm (CDT) on SCAD Research Inc. FB page. Drs. Hayes & Tweet will present research w Q&A: Before 7:30pm (CDT) click facebook.com/events/3507787… Note: Although not required to log in to watch, you must log in to ask questions online.
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iSCADregistry
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@DrJeffreyWOlin1 -
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