AngelmanSyndrome
@AngelmanIRE
Rare Disorder 1 in 20,000. Information & support for families, caregivers & service providers. Collaborate with international scientists to advance treatments.
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We are kindly beneficiaries of Saturdays gala ball. As a lot of our families are also supported by Jack & Jill all funds raised will be helping our children. Please support our fundraising goals which will be ensuring our participation in exciting... gofundme.com/6urdyao?pc=ot_…
Gentle reminder - Sunday IAD family meet up in playground. Closest entrance is the one on Whitechurch road - parking etc. Main entrance takes you closer to Market, coffee shops. All welcome 1-3. visitdublin.com/see-do/details…
visitdublin.com
Marlay Park
Marlay Park
For Galway and west families facebook.com/story.php?stor…
Hi can you take time to vote for Angelman uk film which the very talented lotti fox has made. A quick register to vote then scroll down charities to Angelman uk. That’s it. facebook.com/angelmansyndro…
Delighted if we help support a great night where ASI will benefit as well. facebook.com/angelmansyndro…
350,000 EURO FOR RESEARCH ON ANGELMAN SYNDROME Call for Applications for Research Grants into Angelman Syndrome Deadline 4th January 2019 Angelman Syndrome is a rare neurogenetic disorder, resulting from the loss of function of a single gene,... angelmanalliance.org
For latest summary of alliance research kindly put together by Annette in more family friendly terms see web site - angleman.ie angleman.ie
Best of luck to Annette Kent one of our board members - wishing you all sunshine. facebook.com/angelmansyndro…
Emails asking for us to keep your details and send you updates making their way. I appreciate everyone has full inboxes but its the EU law and we have to make contact. Replies appreciated and required.
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