AngieandRuby's profile picture. Ruby is 16 and has a rare genetic condition called Stromme Syndrome. Angie is her momma and cheerleader. 😻 Most active on Instagram @angieandruby

Angie and Ruby

@AngieandRuby

Ruby is 16 and has a rare genetic condition called Stromme Syndrome. Angie is her momma and cheerleader. 😻 Most active on Instagram @angieandruby

Angie and Ruby reposted

Normalize using “Children with Disabilities” Normalize using “Children with Disabilities” Normalize using “Children with Disabilities” NOT special needs, NOT physically impaired, NOT differently abled, NOT special abilities— DISABILITY, USE IT.


We had a blast chatting with Chris of @chrisulmer, plus we finally "met" Alyssa and Noodle! Thanks for including us in this awesome project, Chris! And please, check in with your loved ones and #stayhome! #SocialDistancing

During this hectic time, I believe it is vital to check in on the mental health of our friends and family. This is the first episode of our new “How Are You?” series. I called my friends Ruby and Angie to make sure they were well. Full interview at youtu.be/J_FYR8pJBMU



In our latest video, Ruby's the boss and told me what to film for the last two days! She talks about her dentist visit, trip to the eye doctor, one of her dreams, and we pretend like we're in a hotel in Tokyo. It's super random and super silly. 😜 youtu.be/De46FFsg-dg

AngieandRuby's tweet card. The Most Random Video We've Ever Made ~ Directed By Ruby 😂🤭

youtube.com

YouTube

The Most Random Video We've Ever Made ~ Directed By Ruby 😂🤭


Aww shucks, thank you! 😊

During this hectic time, I believe it is vital to check in on the mental health of our friends and family. This is the first episode of our new “How Are You?” series. I called my friends Ruby and Angie to make sure they were well. Full interview at youtu.be/J_FYR8pJBMU



I can’t believe this was filmed exactly 2 years ago! Where does the time go @chrisulmer?! This gives me all the valentines feels! ♥️

Ruby is 1 of 12 people in the world known to have Stromme syndrome and is blind. "A Day in the Life" a new SBSK series, followed her around for a day at school. This full SBSK original documentary can be viewed at youtu.be/SkcakBySs18.



Please join us tomorrow, 1/23 for a great live conversation at 12 pm ET! ❤️ youtube.com/user/caregivin…

So excited to connect with @AngieandRuby on 1/23 at Noon ET! Angie will share how a viral video changed her life and her life's work. We'd love for you to join us for this caring talk show episode. Details: caregiving.com/talk/

caregiving's tweet image. So excited to connect with @AngieandRuby on 1/23 at Noon ET! Angie will share how a viral video changed her life and her life's work. We'd love for you to join us for this caring talk show episode. Details: caregiving.com/talk/


Truly amazing ♥️

Zaid's story is now being shared around the world and the fundraiser for his medical expenses is at over $314,000 in a little over a week. Our advocacy also forced Facebook to remove a graphic warning over his face and promise to better train their staff. Thank you everyone!



If you’ve ever been curious as to how tall Ruby is—well, she’s about eye level to a Great Dane. 😂 Toby the giant came for a visit this weekend while his mom is out of town and we love having him here but still… instagram.com/p/B2-ZhtdnVzU/…


My friend’s daughter, Rylynn! What a ⭐️ #girlpower

6-year-old Rylynn with the hands! 🙌 (🎥 IG/bowling_mermaid)



Angie and Ruby reposted

Whoever started the SBSK TikTok please contact me. Im grateful you spread out mission and would like to take over the account. We were about to expand and realized someone already is posting our videos there and accumulated about 80k followers. Not mad! Just contact me please.


Our Instagram account is back up! Thank you to everyone who retweeted and signed our petition. You guys rock! ❤️

AngieandRuby's tweet image. Our Instagram account is back up! Thank you to everyone who retweeted and signed our petition. You guys rock! ❤️

Our Instagram account has been disabled for supposedly violating terms. I have no idea what we could have done. If you know us, you know our account is family friendly and full of love and joy. Can anyone help me?


😡

6-year-old Rylynn with the hands! 🙌 (🎥 IG/bowling_mermaid)



Angie and Ruby reposted

Strange man petting me. Mum: "Please don't touch her , she's working" man (in an angry voice) "How was I supposed to know that?" Mum: "from the large print neon-yellow sign on her harness saying 'please don't distract me, I am a working guide dog'" Man storms off mumbling.


This makes me so sad. It's happened to us as well. I don't understand how the @YouTube system works, but clearly something is very broken. ☹️

Tonight I shared an interview of an adult with ALS. Within minutes out comments were once again disabled. I screenshot a few of the comments before this happened. @YTCreators why are you so dedicated to preventing this type of dialogue? Please advise.

chrisulmer's tweet image. Tonight I shared an interview of an adult with ALS. Within minutes out comments were once again disabled. I screenshot a few of the comments before this happened. @YTCreators why are you so dedicated to preventing this type of dialogue? Please advise.
chrisulmer's tweet image. Tonight I shared an interview of an adult with ALS. Within minutes out comments were once again disabled. I screenshot a few of the comments before this happened. @YTCreators why are you so dedicated to preventing this type of dialogue? Please advise.
chrisulmer's tweet image. Tonight I shared an interview of an adult with ALS. Within minutes out comments were once again disabled. I screenshot a few of the comments before this happened. @YTCreators why are you so dedicated to preventing this type of dialogue? Please advise.
chrisulmer's tweet image. Tonight I shared an interview of an adult with ALS. Within minutes out comments were once again disabled. I screenshot a few of the comments before this happened. @YTCreators why are you so dedicated to preventing this type of dialogue? Please advise.


Maya is the cutest, sweetest, silliest little girl! We adore her! ♥️

Maya is diagnosed with cerebral palsy and gets upset when people rush to help her with every task. She wants the opportunity to try things independently so she can reach her full potential. Full interview at youtu.be/cCRIdR7HG1w.



Our hearts are broken for @Nataliew1020 and her entire family. #sweetsophia was such a bright light in this world. 💜

Our #SweetSophia left this earth last night as she spent every day of her life, surrounded by love & adoration. In lieu of flowers, we ask that you donate to sophias-voice.com Once we pull ourselves from this shattering pain we will continue to help others in her memory

Nataliecweaver's tweet image. Our #SweetSophia left this earth last night as she spent every day of her life, surrounded by love & adoration. 

In lieu of flowers, we ask that you donate to sophias-voice.com 

Once we pull ourselves from this shattering pain we will continue to help others in her memory


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