Dr Mary Ann Wilmarth
@Back2backPT
#BeKind #Empathy PtDrPtAdvocate #DPT #OA #PI #CVID #PsA #Sjogrens #Arthritis #Immune #Migraine #Colitis #Endo #Zebra IG: @Docmaw_co @SunSeekerMiMi3
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It’s #WorldArthritisDay See descriptors for #arthritis @creakyjoints @back2backpt
It’s #WorldArthritisDay! We asked, and you answered: Here is how our community from all over the world describes arthritis in one word 🌎🗣🤝
CONGRESS #EULAR2023 | @AnneRegierer, @DRFZ_Berlin, discussed changes in clinical parameters in patients who received DMARDS with or without MTX. 901 pts received monotherapy and 403 pts revived combination therapy. Reasons to stop treatment were similar between the groups.
Explore healthy bones tonight at 7:00pm EDT #CreakyChats with @Doctor_Deena @bonehealthBHOF @MigraineDisordr @PCFA @MSKAust @CreakyJointsAus See you then 👍 @Back2backPT
TONIGHT! Set your #CreakyChats reminders 🚨 We'll be exploring healthy bones with an all-star lineup of guests. So join us and our friends @Doctor_Deena, @bonehealthBHOF, @MigraineDisordr, @PCFA, @MSKAust, AND @CreakyJointsAus tonight at 7:00 pm EDT.
May is #ArthritisAwarenessMonth @CreakyJoints is spreading the message: “Be kind to your joints - and your mind.” Absolutely‼️ @Back2backPT
It's #ArthritisAwarenessMonth! And over the next 31 days, we'll be highlighting the voices and feelings of our patient community. We invite you to help us in sharing your own experiences! So join us this month, as we spread the message “Be kind to your joints – and your mind.”
So true‼️ It’s not unusual to wait 3-6 months for specialty doctor appointments! 🤷♀️ As a person with #chronicillnesses this can be very problematic even with lots of planning. We need to work together to help solve #healthcare crisis in this country. @Back2backPT @CreakyJoints
If you’ve been waiting months for your next doctor’s appointment, you’re certainly not alone. Discover why this is happening and what you can do to get in sooner: creakyjoints.org/living-with-ar…
Alzheimer's is showing to be largely a lifestyle disease. A new study showing gut health may impact the potential of getting Alzheimer's. Sugar is now being shown to disrupt the highly important bacteria in our gut which governs hormones & more. Alzheimer's is now being…
Family caregivers are the backbone of our long-term care system, and they are in desperate need of more support. We applaud today’s Executive Order recognizing the need to make family caregivers a national priority. Full statement from @NancyLeaMond: spr.ly/6016OONhm
A Second Act for a Type 1 Industry Veteran diatribe.org/second-act-typ… via @diaTribeNews. Looking forward to seeing my cousin in his film #WhiskyFloats tonight @BostonInterFF
diatribe.org
A Second Act for a Type 1 Industry Veteran
A Second Act for a Type 1 Industry Veteran
A4 You know your body best. Make sure to advocate for yourself. When you’re not feeling well it helps 2bring someone w/you 2help when you’re not at your strongest. If you have rare disease, it’s harder. Be prepared. You know a lot! 😊 @Back2backPT #creakychats @CreakyJoints
A2 1/3 Frustrated is an understatement. My latest. Woke up w/excruciating L shld pn. Had to go to ED (2r/o❤️) which I avoid in part due2 #CVID #PI DX: immune deficiency+ No ❤️attack 👍Over wks: 2EDs, Ortho, Neuro, PCP, Dx imaging. Cont… @Back2backPT #creakychats @CreakyJoints
A1 I’ve experienced medical #gaslighting start in 1980’s: MD’s didn’t have answers, for ex. w/ endometriosis 🤷♀️ In >recent years I’ve had MDs see Dx: chronic… & that’s enough to gaslight me 😱 even when I lectured for some of their 🏨B4! @Back2backPT #creakychats @CreakyJoints
Hi Everyone 👋 I’m checking in from the NE coast of MA🌊 It’s strange to say that I am excited about the topic of “medical gaslighting” but I think that it needs to be discussed and addressed as it happens far too often! @Back2backPT #creakychats @CreakyJoints
Tomorrow Monday 03/27/23 7:00pm ET #CreakyChats on “Medical gaslighting” Let me count the times🤦♀️ unfortunately‼️ Join us👍 @Back2backPT @CreakyJoints #gaslighting #medical #chronicillness #RareDisease #chronicpain
🗓️ MARK YOUR CALENDARS 🗓️ Join us on Monday March 27th, for a #CreakyChats community conversation all about "medical gaslighting." We'll be kicking things off at 7:00 pm ET. We hope to see you there!
FDA releases new regs intended to help detect breast cancer sooner thehill.com/policy/healthc… Anyone have #densebreasttissue ❓ Add that to family history of #breastcancer & you may want to read‼️ @US_FDA
Rare Disease Day🦓 •I support #RareDiseaseDay2023 •I live w/ #raredisease every day of my life. •There are >than 7,000 rare diseases affecting Americans according 2 NIH rarediseases.org @Back2backPT @nord_rare @idfcommunity @nihgov #advocate #lightupforrare #Zebra
I’ve had major problems w/ #autorefills I noticed pharmacy was calling my doctors 2refill without my permission‼️ The names weren’t even ones I knew‼️ I also moved & called many times to transfer script’s: pharm kept filling. DANGEROUS‼️ Makes Pt look bad in MD eyes2: lose trust!
I'm gonna get real honest w/a msg to PBMs and any pharmacy that performs auto-refill of meds. (thread) Auto-refills can be and are very dangerous. It's a reasonable assumption that if the pharmacy fills the med, it's b/c the pt should be taking it. This is especially .... (1/x)
Join @CreakyJoints TONIGHT at 7PM ET for a #CreakyChats honoring Black History Month @Back2backPT
Join @CreakyJoints TONIGHT at 7PM ET for a #CreakyChats honoring Black History Month. Together we can amplify the voices and experiences of the Black patients within our community. Learn more at bit.ly/41dEbAL
Join a very special Black History Month themed #CreakyChats tonight Monday February 20th at 7:00pm EST
Join @CreakyJoints TONIGHT at 7PM ET for a #CreakyChats honoring Black History Month. Together we can amplify the voices and experiences of the Black patients within our community. Learn more at bit.ly/41dEbAL
As person dealing w/ #rarediseases & #chronicillness I’ve had 2deal w/ #medical #Gaslighting on multiple occasions‼️ Unfortunately, I have so many personal examples I could fill a book.🤦♀️I’ve heard even more from former patients, friends,etc 🤷♀️So sad🥲 @Back2backPT @CreakyJoints
What is 'medical gaslighting'? It can be dangerous if it prevents you from getting a proper care. This is especially frustrating when you’re living with an “invisible” illness that may not always manifest symptoms a doctor can see or feel. creakyjoints.org/living-with-ar…
creakyjoints.org
How to Tell If Your Doctor Is Gaslighting You — and How to Advocate for the Care You Need
Learn what medical gaslighting is, how to identify it, and ways you can advocate for yourself with chronic illness.
Thank You‼️2this #MD #PCP #kudos 👍👏 Illness esp #chronicillness involves lot >than appearances!! It’s NOT merely skin deep.👎 ChronicIllness #patients have 2function feeling like crap🤬 They often have 2 “fake it (B’ing well enuf) 2make it 2 MD appt”🤷♀️ @Back2backPT @elisa_comer
Yesterday, my PCP, working w/student, explained how I don't look sick, but I'm a great example of how you can't always tell what's going on w/pt just by the way they look. Thanks to my PCP and ALL physicians who take this approach. We appreciate you, so so much.
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