Birgit Bauer
@Birgitpower
Initiatorin @DSL_Deutschland #DigitalHealth & #SocialMedia Expert #PatientExpert, blogger, HIMSSFuture50, member of @sciana, about: http://bit.ly/1s1t1bM
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📺 Rewatch the final #EHFG2024 Plenary "Democracy at work - the European Health Data Space from concept to reality", co organised with @EU_Health, here: bit.ly/3YXSB84 #EHFG2024Rewind #EHDS @marsemo @Birgitpower @BPrainsack @Nickf72
#Women with #MS face unique challenges, such as #reproductive issues and #menopause. Read the recap of our recent 3webinar feat. experts from @ClevelandClinic @cemcat_em & @DalhousieU as they discuss where research should focus its efforts first ➡️ bit.ly/48Sulsk
🔥 Hot off the press: The #EHFG2024 Conference Outcomes are here! This year’s theme, "Shifting sands of health", explored how democracy, demographics & digitalisation are reshaping health systems across Europe. Check out the key takeaways and insights 👉 bit.ly/3UJjxHm
Why do so many people open their vendors tray when there was ask to give short introduction? Instead of giving facts people start to tell a novel. Shouldn’t we use the time instead for doing a good job in Patient advocacy? #patientinvolvement
😴People with #MS are vulnerable to #sleep disturbances, which can be challenging to assess. "Before recommending polysomnographic studies..., it is essential to screen properly," says Anne-Laure Dubessy of @HopPitieSalpe. Read more about managing sleep👉 bit.ly/48LovJl
Joanna Wardzinski from @awscloud about the work aws does in the area of healthcare and #digitalisation in healthcare. Very interesting talk at the #healthcarehackathonbayern
We live in an infodemic. We have to fight disinformation just as hard as we fight pandemics! @alabriqu
💻 Rachel Dunscombe, CEO of @openEHRjoins us to discuss the future of EHR and digital health at our webinar! Join us on 16 Oct 2024. xpandh-project.iscte-iul.pt/xpandh-webinar…
🔥Hot off the press - our latest Newsletter is packed with all the highlights of ECTRIMS 2024! Discover Congress session replays, special podcasts, Patient Community Day recordings in 6 languages, must-see videos, abstracts, and more. Read it here ➡️ bit.ly/3Yd5OKV #MS
Letztens im Rathaus: Ich buche einen Termin, warte 15 Min bis der zuständige Sachbearbeiter kommt, der auf meine Erinnerung, dass wir einen Termin hätten nur mit einem Schulterzucken und "ich bin nicht digital, mit interessiert das nicht" reagiert. bitkom.org/Presse/Pressei…
Cognitive impairment and its impact on employment: A qualitative interview-based study involving healthcare professionals and people living with multiple sclerosis - Multiple Sclerosis and Related Disorders msard-journal.com/article/S2211-…
MS is thought to be rare or non-existent in Africa (tho it's not) so there is little training/awareness of it among health care professionals. So thrilled #AFRICTRIMS is now part of @ECTRIMS family. @OheneNanaBoakye,@Doxoki,@dryaredzewde, @DeannaSaylor1,@_Freda_A, @AnneHelme,
Delighted that AFRICTRIMS is represented at #ECTRIMS2024 🎉 Will be following the activities of this new committee with much interest 🌍
Just rec'd a reminder for Covid-19 & flu jabs. On Ocrevus. Timing? @GavinGiovannoni "For ppl on anti-CD20's (ocrelizumab, rituximab, ofatumumab) trying to coordinate COVID-19 & flu vaxs with ur next infusion/dose makes little sense, so go ahead &have the vax asap."
„Patients are heard.“ one of the answers about my intervention at #ehfg2024 , as a member of different councils etc. I can agree. But to hear means not always to respect etc. So patient involvement/ participation must be an active partnership.
To be honest I appreciate the theme: chronic diseases are in the discussion. It’s a discussion about patients. Great. But: where is the patient representative in this panel? @GasteinForum #ehfg2024 #nothingaboutuswithoutus
Why tackling chronic diseases in Europe. Interesting panel at #ehfg2024: needs to be a priority and needs a investment in Health to make sure to be sustainable in the future and do good prevention. #healthcare
👏👏👏 to @Anca4health from @eupatientsforum for bringing in the thinking of participation of the society in social contracts to support patients more and better. #EHFG2024
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