Victoria Abbott-Fleming MBE
@CRPSguru
Speaker, author, lived experience of Complex Regional Pain Syndrome #CRPS & bilateral above knee amputation. Founder of @BNightsCRPS Opinions are my own
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Fact 5 Many cases of CRPS occur after a trauma to an arm or a leg. This can include a crushing injury or a fracture. Other major and minor traumas - such as surgery, heart attacks, infections and even sprained ankles - also can lead to CRPS. #CRPS #CRPSFacts #crpsawarenessmonth
Fact 4 Research found a greater predominance of left-handedness (21.8% vs 10% in the general population) in people with CRPS. • • • • • #BNightsCRPS #CRPS #CRPSFacts #crpsawarenessmonth #crpssupport #chronicpain #CRPSisReal #CTWO
Fact 3 The mean age at onset of CRPS symptoms was 43 years. • • • • • #BNightsCRPS #CRPS #CRPSFacts #crpsawarenessmonth #crpssupport #chronicpain #CRPSisReal #CTWO
Fact 2 A recent study examining the clinical characteristics of patients with CRPS found that approximately 73% of CRPS patients were female. • • • • • #BNightsCRPS #CRPS #CRPSFacts #crpsawarenessmonth #crpssupport #chronicpain #CRPSisReal #CTWO
Fact 1 It's estimated around 85% of people with CRPS slowly experience a reduction in their pain and some of their symptoms in the first 2 years. • • • • • #BNightsCRPS #CRPS #CRPSFacts #crpsawarenessmonth #crpssupport #chronicpain #CRPSisReal #CTWO
🧡 Join us for an exciting Volunteer Voice event on Zoom, where prospective volunteers will get the fantastic opportunity to hear from current volunteers about their experiences and ask questions! 🧡 Session 1 - bit.ly/VolunteerVoice… 🧡 Session 2 - bit.ly/VolunteerVoice…
You don’t have to be an expert to help someone open up, and you don’t need the perfect words, the ones you already have are enough. 💚
“When people ask how I am, I never tell them how I really am. People don’t want to know the real truth of someone who is #chronicallyill. When you tell the truth most are incredibly uncomfortable and don’t know what to say.” j.mp/2K6Vfjb #chronicpain
🔊An interesting survey evaluation recently published of UK Health Professional strategies for managing Plantar Heel Pain - please share with your Musculo-skeletal colleagues onlinelibrary.wiley.com/doi/full/10.10…
What is CRPS? A simplified explanation of what CRPS is and the symptoms. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal #PainAwarenessMonth
NEW BLOG POST! Read all about Mental Health struggles for CRPS Patients and Carers. The Article will dive deep into Maslow's Hierarchy of Needs. buff.ly/nMHDbPa #BNightsCRPS #CRPS #crpsawareness #crpseducationawarenessmonth #CRPSIsReal #invisiblestrength #crpsorangeday
Thought of the day Know your limits, recognize when your strength and energy is fading and take a break before you hit the wall. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal
Question of the week! "What treatments or therapies have you tried for CRPS?" Share and drop a comment to help spread awareness. #BNightsCRPS #CRPS #crpsawareness #Questionoftheweek #CRPSIsReal #invisiblestrength #crpsorangeday
🧡 Join us for an exciting Volunteer Voice event on Zoom, where prospective volunteers will get the opportunity to hear from current volunteers about their experiences and ask questions! 🧡 Session 1 - bit.ly/VolunteerVoice… 🧡 Session 2 - bit.ly/VolunteerVoice…
The next Burning Nights CRPS Support group is Tuesday 4th November at 2pm (GMT). Everyone is welcome to come along; ask questions, share tips and advice. Sign up via the link below: buff.ly/w753Wvq #BNightsCRPS #CRPS #crpsawareness #crpssupport #chronicpain #CRPSisReal
What is force tapering off pain medications and how does it affect patients with incurable diseases and cancers? #forcetaper #pain #chronicpain #cancer #disease
“Being home all day is not a dream lifestyle… I doubt they’d say, “I wish I could be home all day with #pain that no medicine can relieve” or “I wish I could be home all day with such debilitating #fatigue, I can’t concentrate on anything.” buff.ly/grrBQNi #Disability
If you are interested in this research study please email Grace Lawrence at:- : [email protected] or click this link to fill out form: eu.surveymonkey.com/r/WW558KL
We’re searching for social media volunteers! Whether you’re a pro or just starting out, this is a great opportunity to grow your skills while supporting those with CRPS! 🧡 Interested? Apply Today👇 buff.ly/GvxVyDC #BurningNightsCRPS #SocialMedia #Volunteering
The next Burning Nights CRPS Support group is Tuesday 9th September at 2pm (BST). Everyone is welcome to come along; ask questions, share tips and advice. Sign up via the link below: buff.ly/pHzLCqS #BNightsCRPS #CRPS #crpsawareness #crpssupport #chronicpain #CRPSisReal
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