#chronicallyill search results
"But no matter how bad my pain is now, it will never be as bad as before because now, I have people on my side. I have people who know exactly what I am feeling and fighting." themighty.com/topic/chronic-… via @TheMightySite #ChronicPain #ChronicallyIll #Disability #MentalHealth
"It is a role that life insists upon and has selected you for, because there is no better protagonist for it. In the words of Dave Grohl, “No one is you and that is your power.”": buff.ly/ZPVNw8w #SelfWorth #spoonies #ChronicallyIll #DisabilityTwitter #MondayBlogs
"We need more disabled people in healthcare because living with a disability can feel isolating, and sometimes you need to talk to someone who gets it." myrockindisabledlife.com/2026/02/12/why… via @sarahlynn358 #Disability #ChronicIllness #ChronicallyIll
"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." brainlesionandme.com/dynamic-disabi… via @serenebutterfly #ChronicIllness #ChronicallyIll #DynamicDisability #NEISVoid
Be proud of the quiet ways you keep surviving, even if you're the only one who notices. #ChronicallyIll
"When I am having a high-pain day, it can be easy to catastrophise and feel helpless. I forget about the days when the pain is much more manageable." bezzyra.com/discover/menta… via @BezzyCommunity #ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIllness #NEISVoid
"Chronic illness management never stops being hard because it’s not a problem with a finish line — it’s something you negotiate with constantly as your body, symptoms, and circumstances keep changing." thethrivingspoonie.com/the-hidden-men… #ChronicIllness #ChronicallyIll #InvisibleIllness
thethrivingspoonie.com
The Hidden Mental Labor of Being Chronically Ill
The mental labor of managing a chronic illness is real work. It just never shows up anywhere as work you did. This post names it.
"It’s not easy to navigate an unpredictable body and the challenges that dynamic disability brings." thehealthsessions.com/dynamic-disabi… via @Health_Sessions #ChronicIllness #ChronicallyIll #DynamicDisability
Every day, I learn to coexist with unpredictability. #ChronicallyIll
“It's okay to do less when you're coping with more.” — Often, being #ChronicallyIll means that 'normal' day-to-day living takes up more #cognitive, #emotional & physical labour. That counts as energy spent & is just as real as 'real #work': buff.ly/F91wB2t #MondayBlogs
"Distractions are everywhere, and for a while, they soften the edges of what I feel. But at night, when all of that falls away, there’s nothing left to buffer it." brainlesionandme.com/painsomnia-wha… via @serenebutterfly #ChronicPain #ChronicIllness #ChronicallyIll #Painsomnia
You learn patience when even breathing feels scheduled. #ChronicallyIll
My health updates are basically weather reports: unpredictable and moody. #ChronicallyIll
I used to say yes to please others. Now I say no to protect myself. #ChronicallyIll
"They helped me feel like a human being again, not just a diagnosis. And the more I paid attention to them, the more I realised something profound: #Joy wasn’t a luxury. It was medicine." tinybuddha.com/blog/how-to-cr… via @tinybuddha #ChronicIllness #ChronicallyIll #InvisibleIllness
Be proud of the quiet ways you keep surviving, even if you're the only one who notices. #ChronicallyIll
“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” buff.ly/XnJCM36 @KimberlyJPenix #ChronicPain
Nothing is predictable when your own cells refuse to cooperate. #ChronicallyIll
When you live with chronic illness, you get used to living on pause — but you still dream in play mode. #ChronicallyIll
I can’t plan for consistency, so I plan for flexibility. #ChronicallyIll
"But no matter how bad my pain is now, it will never be as bad as before because now, I have people on my side. I have people who know exactly what I am feeling and fighting." themighty.com/topic/chronic-… via @TheMightySite #ChronicPain #ChronicallyIll #Disability #MentalHealth
"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." brainlesionandme.com/dynamic-disabi… via @serenebutterfly #ChronicIllness #ChronicallyIll #DynamicDisability #NEISVoid
"Chronic illness management never stops being hard because it’s not a problem with a finish line — it’s something you negotiate with constantly as your body, symptoms, and circumstances keep changing." thethrivingspoonie.com/the-hidden-men… #ChronicIllness #ChronicallyIll #InvisibleIllness
thethrivingspoonie.com
The Hidden Mental Labor of Being Chronically Ill
The mental labor of managing a chronic illness is real work. It just never shows up anywhere as work you did. This post names it.
"When I am having a high-pain day, it can be easy to catastrophise and feel helpless. I forget about the days when the pain is much more manageable." bezzyra.com/discover/menta… via @BezzyCommunity #ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIllness #NEISVoid
"We need more disabled people in healthcare because living with a disability can feel isolating, and sometimes you need to talk to someone who gets it." myrockindisabledlife.com/2026/02/12/why… via @sarahlynn358 #Disability #ChronicIllness #ChronicallyIll
Be proud of the quiet ways you keep surviving, even if you're the only one who notices. #ChronicallyIll
“It's okay to do less when you're coping with more.” — Often, being #ChronicallyIll means that 'normal' day-to-day living takes up more #cognitive, #emotional & physical labour. That counts as energy spent & is just as real as 'real #work': buff.ly/F91wB2t #MondayBlogs
"They helped me feel like a human being again, not just a diagnosis. And the more I paid attention to them, the more I realised something profound: #Joy wasn’t a luxury. It was medicine." tinybuddha.com/blog/how-to-cr… via @tinybuddha #ChronicIllness #ChronicallyIll #InvisibleIllness
"It is a role that life insists upon and has selected you for, because there is no better protagonist for it. In the words of Dave Grohl, “No one is you and that is your power.”": buff.ly/ZPVNw8w #SelfWorth #spoonies #ChronicallyIll #DisabilityTwitter #MondayBlogs
"Distractions are everywhere, and for a while, they soften the edges of what I feel. But at night, when all of that falls away, there’s nothing left to buffer it." brainlesionandme.com/painsomnia-wha… via @serenebutterfly #ChronicPain #ChronicIllness #ChronicallyIll #Painsomnia
"It’s not easy to navigate an unpredictable body and the challenges that dynamic disability brings." thehealthsessions.com/dynamic-disabi… via @Health_Sessions #ChronicIllness #ChronicallyIll #DynamicDisability
i miss makoto but im too exhausted to sit up (my body is a prison #chronicallyill) so im replaying persona 5 royal even though its only been a few days
I like it better than the heat but both make my body hurt #chronicallyill
“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” buff.ly/XnJCM36 @KimberlyJPenix #ChronicPain
My health has gotten worse 😞 #chronicallyill #chronicillness #chronicillnessawareness #chronicillnesslife #burntout
Hey yall! I’m a disabled and chronically ill person and out like ask for a little money to help buy groceries to just a small donation to get a a snack and a drink. Thank you! #fyp #disabled #chronicallyill #needahandup
Being #chronicallyill #disabled will show you people in a way you've never known them before, either for good or bad. Nothing has taught me boundaries, like illness has. I'd probably still be a people-pleaser and living an inauthentic life if I'd never gotten ill.
No. I was taken to hospital with a suspected blood clot (I have lung disease). My ex best friend was having a pre wedding party. I told her I couldn't make it due to the situation. Her response was 'today of all days'. I attended her wedding & sibling's funeral, then cut it off.
"If you’re awake in pain tonight, you’re not the only one still awake." brainlesionandme.com/painsomnia-wha… via @serenebutterfly #Painsomnia #ChronicPain #ChronicallyIll #InvisibleIllness #NEISVoid
i did a lot of heavy box moving yesterday at work and i woke up sick today hahaha #chronicallyill silly chronic illness tings
"It is a role that life insists upon and has selected you for, because there is no better protagonist for it. In the words of Dave Grohl, “No one is you and that is your power.”": buff.ly/ZPVNw8w #SelfWorth #spoonies #ChronicallyIll #DisabilityTwitter #MondayBlogs
“It's okay to do less when you're coping with more.” — Often, being #ChronicallyIll means that 'normal' day-to-day living takes up more #cognitive, #emotional & physical labour. That counts as energy spent & is just as real as 'real #work': buff.ly/F91wB2t #MondayBlogs
Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms medscape.com/viewarticle/sy… Image is screenshot from AMMES July newsletter #ChronicallyIll #chronicillness
"Support Group Recap: Using Boundaries to Improve the Illness Experience" (January 21, 2025) batemanhornecenter.org/wp-content/upl… #chronicillness #ChronicallyIll
Free 15-page @Astriid_No1 booklet, "Disclosure & Discrimination In The Workplace: A Guide For People With Long-Term Health Conditions" astriid.org/news/disabilit… UK publication but a lot of the information is likely applicable in many countries. #chronicillness #ChronicallyIll
#GivingTuesday means to keep those in mind, that aren't so blessed. Our dear Hassan lives as a severe #chronicallyill in an ongoing war in #Yemen. Your donations since 2018 helped him to buy food & supplements. Please don't stop to #SaveALifeInYemen❤️🙏 gofundme.com/help4hassan
These days,I am trying to resist the feeling that I am living like dead. All I can do is waiting ,only waiting for unknown. #chronicillness #LGMD
“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” buff.ly/4cEt5d3 @KimberlyJPenix #spoonie
It's very important that you share Hassan's fundraiser. It's the only source of help for the basic things. Being #chronicallyill & bedridden is one thing. But being in war in #Yemen & without food & experienced doctors on the top, is unbearable! gofundme.com/help4hassan 🕊️
Read&share please. Help me to raise awairness about Limb Girdle Muscle Dystrophy. In this thread I will talk about limb girdle muscular dystrophy (LGMD) in some details starting with giving ideas about muscular dystrophy in general. #MuscleDystrophy #LimbGirdleMuscleDystrophy
I ask you kindly to continue to RT my #Help4Hassan campaign. I'm glad we managed to provide food & some med. supplements for Hassan until now. Life is really awful in #Yemen, especially for #chronicallyill. 🥺 Important is to get attention on the campaign. gofundme.com/help4hassan
But there were some changes here & many lovely people have left, who were always tweeting & retweeting for Hassan. Life became hard for many. But Yemen is on the brink of everything. You don't have to donate, if you can't. But please spread the campaign. 🥺🙏
Gentle reminder for whoever needs to hear this today 💞 #ChronicPain #ChronicallyIll #Spoonie #fibromialgia #MS #MultipleSclerosis #JointHypermobilitySyndrome
ME/FM Society of BC Article: When the Heat Hits: Managing Flares and Symptom Spikes mefm.bc.ca/post/when-the-… Screenshot from the Massachusetts ME/CFS & FM Association August Newsletter #chronicillness #ChronicallyIll
Thank you all for accompanying Hassan through the past years. You help to raise his voice and to get some food & medical supplements. You have to know, that families in #Yemen are struggling immensely. So especially for #chronicallyill it's so hard. gofundme.com/help4hassan 🩷
All we can do ,as chronically ill and /or disabled people is raising our voices on social media on hope that will make the difference and that's only the power we have . #chronicillness
July is Disability Pride Month 💙 #DisabilityPrideMonth #disabilityPride #chronicallyIll #chronicPain #myChronicLife #invisibleDisability #chronicPainVoices
“The unpredictability of #ChronicPain often catches me off guard… There’s also those days where we simply can’t handle anything… It’s easy to feel frustration when #ChronicallyIll… Instead of berating ourselves…attend to the feelings with #kindness.” buff.ly/4k3LQuT
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