Cushing's Support & Research Foundation
@CSRFnet
Supporting patients in all ways; direct peer contact, trustworthy science-supported resources, community events, access to patient voice research opportunities.
You might like
New post on CSRF: Sandra M. - Embrace the Journey csrf.net/patient-storie…
New post on CSRF: Lauren I. csrf.net/patient-storie…
New post on CSRF: CSRF Interviews One of Its First Members: Neddy Zaleski csrf.net/patient-storie…
New post on CSRF: Bridget H. csrf.net/patient-storie…
New post on CSRF: Cushing's and Blood Sugar - What's the Connection? csrf.net/doctors-articl…
New post on CSRF: Doctors' Answers csrf.net/doctors-answer…
New post on CSRF: Three Takes on the COVID-19 Pandemic csrf.net/coping-with-cu…
New post on CSRF: Medications for Cushing's - Old and New: Part One in a Two-Part Series csrf.net/coping-with-cu…
A breakdown of the new Medicare law, by our partner @PAN_Foundation panfoundation.org/pan-foundation…
We feel seen! Sharon Terry of Genetic Alliance goes hard for rare patients everywhere and makes the ENTIRE case for registries led by patient organizations. forbes.com/sites/ashoka/2…
We are relieved and encouraged when we see efforts like this to educate and connect people to how Cushing's affects everything and everyone in our lives far beyond the clinical data captured in the office setting. @MedStoriesTV medicalstories.tv/title/cushings…
medicalstories.tv
Cushing's Disease | Medical Stories
Today Alyssa is back to her demanding athletic training and managing very well despite having Cushing’s Disease. Here is her story.
Great information for patients facing transsphenoidal surgery by Drs. Raj Mukherjee and Nick Rowan (Johns Hopkins) youtu.be/rIzWWLJ-B7g
youtube.com
YouTube
Optimizing Post-Surgical Outcomes in Cushing's Disease
In honor of Cushing's Awareness Day, a patient video from Recordati Rare Diseases. youtu.be/vKGvwLG9KI4
youtube.com
YouTube
Recordati Rare Diseases 2022 Cushing's Awareness Day video
Today is Cushing's Awareness Day! Hug a Cushie, and help us work toward faster diagnosis, better prognosis, and kinder understanding.
New post on CSRF: Michelle B zpr.io/Wg3pJtQYBKhw
New post on CSRF: Kate W zpr.io/zbPL4F3LzrZ4
New post on CSRF: Amanda P zpr.io/XYrYAzpUiYjE
New post on CSRF: Joanna zpr.io/F8FqDJFdyBFk
New post on CSRF: Tina L zpr.io/4VgFChhHgYjN
New post on CSRF: Jaci H. zpr.io/t2BJqDv7pLYQ
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