D.R.E.S.S. Syndrome Foundation
@DRESSFoundation
Here to connect patients, families, and the medical community with resources and information about the severe adverse drug reaction, D.R.E.S.S. Syndrome.
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New JAMA Dermatology study on SJS/TEN survivors shows lasting physical & emotional impacts — similar to what many DRESS survivors report. Study: ow.ly/HRRl50XqQX2 #DRESS #SJS #TEN #SCARs
Meet Meghan! 🌟 Meghan is the newest member of our Patient and Family Advisory Panel. She’s the mother of Imperial, a pediatric DRESS Syndrome survivor. Our Patient and Family Advisory Panel is an integral community of DRESS Syndrome patients and loved ones with firsthand…
What have we learned about DRESS Syndrome from patients? Check out our newest blog, “What We’ve Learned About DRESS Syndrome: Insights From Our Register Your Case of DRESS Survey” Since 2019, we’ve been collecting patient-reported data about their experiences with having DRESS…
Today is World Mental Health Day! The effects of developing DRESS Syndrome is more than skin deep. Mental health is an important — but often overlooked — component for DRESS patients. And they can experience these challenges long after recovery from their acute event. In fact,…
Are you a loved one or caregiver of someone with DRESS Syndrome? Join us for our next DRESS Support Meetup on October 15! We're hosting an open discussion on the unique experience of being a caregiver. In next week's meetup, you'll have a chance to connect with others who…
Today is World Patient Safety Day! Supporting the safety of patients is essential for ensuring they can heal and recover. And one critical way we can support patients’ safety is by listening to them! Patients are the ones closest to the pain they're feeling, the symptoms…
Which medical specialists are most likely to recognize and diagnose DRESS Syndrome? This question is at the heart of care many people with DRESS ask themselves. As an uncommon disease, many within the medical community haven’t yet heard of — or seen a case of — DRESS Syndrome.…
Want to connect with others in the DRESS Syndrome community? Join us for two upcoming DRESS Support Meetups: One for our patient community, and the first meetup for our caregiver community! DRESS Support Meetups are virtual gatherings that give DRESS Syndrome patients, loved…
Do you know the symptoms of DRESS Syndrome and the medications that commonly cause it? Lamotrigine is a frequent culprit. @nytimes #MedTwitter #DermTwitter #DRESSsyndrome The Redness and Itching Wouldn’t Stop. Then Things Got Dangerous. nytimes.com/2025/09/05/wel… via @NYTimes
“5 Things I Wish I’d Known Before DRESS Syndrome Turned My Life Upside Down” Our next blog is live! DRESS Syndrome survivor Christina Ledford continues her blog series and shares what she wishes she’d known before DRESS changed her life. Her personal insights reflect…
Our next DRESS Support Meetup is September 17! DRESS Support Meetups are virtual gatherings for DRESS Syndrome patients, loved ones, and caregivers. In September's meetup, we're hosting an open discussion about having DRESS Syndrome. Here, you'll find a welcoming space for…
Want to learn more about DRESS Syndrome? Our “Faces of DRESS” webinar is now available to watch! This virtual session took place on July 16, National DRESS Syndrome Day. The panel features medical researchers and clinicians focusing on DRESS, and DRESS Syndrome survivors and…
Thank you for nominating your 2025 DRESS Hero! Our annual DRESS Hero awards recognize medical professionals who excel at treating and caring for DRESS Syndrome patients. Patients and loved ones nominated physicians, pharmacists, and more who are helping people with DRESS…
Having an uncommon illness can make receiving a timely diagnosis and treatment difficult. And too often, these patients can experience medical teams downplaying their symptoms and disregarding their pain. For DRESS Syndrome survivor Christina Ledford BSN, RN, this threat to her…
Want to learn about DRESS Syndrome & Stevens-Johnson syndrome? 💊 Join us on Aug. 9: “Countdown to SCAR 2026: A Community-Focused Preview.” EVENT DETAILS👇 Hosted by Vanderbilt University Medical Center, this open discussion is in preparation for the larger, global SCARs…
Dr. Bridges’ message is clear: Keep DRESS visible. Keep fighting for early diagnosis. #FacesOfDRESS #DRESSsyndrome #DrugAllergy #NationalDRESSSyndromeDay #ResearchMatters #DRESSresearch
DRESS can look different on darker skin — redness may appear purple, grey, or deep brown. Too often, this means misdiagnosis or delayed care. Representation in med ed matters. Awareness closes the gap. #DRESSsyndrome #FacesOfDRESS#HealthEquity #NationalDRESSSyndromeDay
🧬 “We need to better understand the role of viruses in DRESS Syndrome.” Dr. Descamps is helping uncover how reactivated viruses like HHV-6 may worsen DRESS — and why research is key to saving lives. #FacesOfDRESS #DRESSsyndrome #HHV6 #ResearchMatters
Who’s your DRESS Hero? Our 2025 DRESS Hero awards are open for nominations! This annual event recognizes medical experts who excel at treating and caring for DRESS Syndrome patients. Nominations are open worldwide. Entries close today at 11:59 pm. ow.ly/PWHr50WqNct
“We need to improve early detection, treatment, and mental health support for those facing DRESS.” Dr. Cathryn Sibbald shares why awareness and research are essential. #NationalDRESSSyndromeDay #FacesOfDRESS #DRESSsyndrome #ResearchMatters #MedTwitter #DermTwitter
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