DiceDoPart's profile picture. Twitch Affiliate and MS activist who is living with the disease. I use my voice, for those who are also struggling, who no longer can. My views are my own.

Dice

@DiceDoPart

Twitch Affiliate and MS activist who is living with the disease. I use my voice, for those who are also struggling, who no longer can. My views are my own.

Dice 님이 재게시함

We are living in a dangerous and unprecedented moment in American history. I’m getting a lot of calls from people who are not only upset about what’s happening, but are wondering how we best go forward. Here are my thoughts:


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The time is NOW to keep the pressure on Congress to act before the end of the year. From funding the #MSRP at the Department of Defense, to protecting and enhancing telehealth access, to passing comprehensive #PBMReform – we need you to add your voice! p2a.co/woDdFz7

MSactivist's tweet image. The time is NOW to keep the pressure on Congress to act before the end of the year. From funding the #MSRP at the Department of Defense, to protecting and enhancing telehealth access, to passing comprehensive #PBMReform – we need you to add your voice! p2a.co/woDdFz7

.@repdeliaramirez @SenatorDurbin @SenDuckworth will you support $20 million in #MSResearch funding for the MS Research Program at the Department of Defense, protecting telehealth access, and passing comprehensive #PBMReform this year? We need your support #MSActivist


Not my normal content but why does this WWE ref have Wendy’s on his shirt?!

DiceDoPart's tweet image. Not my normal content but why does this WWE ref have Wendy’s on his shirt?!

Not my normal content but: Didn’t this Roman and Solo thing happen last week already? 🤔 #SmackDown


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MSuperstars! It's an Olympic Bronze for @LinaFJNielsen & @Laviai in the women's 4X400m relay!! Both have MS. Both @QMUL grads @Laviai is taking home another Bronze from the mixed 4X400m relay.

RachelHorne19's tweet image. MSuperstars!
It's an Olympic Bronze for @LinaFJNielsen & @Laviai in the women's 4X400m relay!!
Both have MS. Both @QMUL grads
@Laviai is taking home another Bronze from the mixed 4X400m relay.

So grateful that even though I struggle to work in general, I can do things, like meet with my legislatures offices and try to help make a difference in the lives of so many other people including myself. Thank you @McgheeCorbin , @SenatorDurbin's and @SenDuckworth's office!

이 트윗은 더 이상 사용할 수 없습니다.

Dice 님이 재게시함

Chronic Illness #TermOfTheDay - CATCH 22 with a TWIST -

MSawarenessIndy's tweet image. Chronic Illness #TermOfTheDay 

                     - CATCH 22 with a TWIST -

.@repdeliaramirez @SenatorDurbin @SenDuckworth Can I count on you to pass the FY25 spending bills? These bills help fund critical #MSResearch as well as programs and services that people with MS rely on to live their best lives. #MSActivist


It’s finally infusion day!!!


Ocrevus crap gap is kicking my ass. 14 days left until infusion. Idk his I’m gonna get through these two weeks. I can hardly see properly. 🧡


It’s my annual MRI today and I’m taking a train I would have normally to the job I lost because of this disease. Still, I’m reminding myself of how powerful the NMSS’s Public Policy Conference was, listening to Rise Up by Andra Day, trying to rally for myself! 🧡🧡


just finished up the 2024 Virtual activists rally, and even got the opportunity to speak about some of my experience during. It was an honor and pleasure to be a part of, and I'm so thankful for this large community of amazing people/activisits! @MSactivist

DiceDoPart's tweet image. just finished up the 2024 Virtual activists rally, and even got the opportunity to speak about some of my experience during. It was an honor and pleasure to be a part of, and I'm so thankful for this large community of amazing people/activisits! @MSactivist

.@repdeliaramirez @SenatorDurbin @SenDuckworth can I count on you to support #MSResearch funding at the #NIH and #MSRP in fiscal year 2025? Together - we can find a cure for MS!


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It’s MS Awareness Week! Stories of life with MS are often portrayed through the everyday moments that people with MS experience. This MS Awareness Week, share your MS Moment with us: ntlms.org/uMyMSMomentCre…

mssociety's tweet image. It’s MS Awareness Week! Stories of life with MS are often portrayed through the everyday moments that people with MS experience.  
 
This MS Awareness Week, share your MS Moment with us: ntlms.org/uMyMSMomentCre…

Dice 님이 재게시함

Symptoms like brain fog, double vision and chronic pain can mark a person's MS experience. Tomorrow is the first day of MS Awareness Week – help us raise awareness by sharing your MS Moment this week.


It’s 6:15 AM local time on hill day and I am so ready! #MSPPC24 @MSactivist

DiceDoPart's tweet image. It’s 6:15 AM local time on hill day and I am so ready! #MSPPC24 @MSactivist

I’m having so much fun and learning so much at the confrence! My hotel isn’t far from the Whitehorse either. Please excuse my crazy looking hair, yesterday started at 6 AM and this was around 9 PM. Looking forward to Hill Day tomorrow! @MSactivist

DiceDoPart's tweet image. I’m having so much fun and learning so much at the confrence! My hotel isn’t far from the Whitehorse either. Please excuse my crazy looking hair, yesterday started at 6 AM and this was around 9 PM. Looking forward to Hill Day tomorrow! @MSactivist

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