EndoEdition
@EndoEdition
🔅 Reliable endometriosis facts, research, and awareness 🔅 Advocating the largest women's health crisis of our time, also affecting trans & non-binary.
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BLOG #5 QUESTION: IF ‘COMPLETE EXCISION’ IS THE GOLD STANDARD FOR ENDOMETRIOSIS TREATMENT, WHY IS IT SO UNCOMMONLY OFFERED? topendodoc.com/2017/08/22/blo…
31,000 more signatures needed before Jan 29th. We need #MentrualLeave debated in parliament. Introduce Statutory Menstrual Leave for People with Endometriosis & Adenomyosis petition.parliament.uk/petitions/7323…
Menstrual leave campaigner: 'At 23 I was hospitalised three months in a row' Campaigner Michelle Dewar tells @skysarahjane that women who have a medical diagnosis related to severe period pain should be entitled to paid menstrual leave. 📺 Sky 501 trib.al/Ldqpoo4 #SJUK
We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in Portugal in 2025. Help us get to 100,000 signatures 📝 petition.parliament.uk/petitions/7323…
This is our pain. Powerful speech, thank you @PearseDoherty. Post via @Kathleen_M_King. #endometriosis #adenomyosis
We’ve listened to thousands of women suffering with endometriosis across Ireland who shared their stories and experiences - struggling in silence and denied proper healthcare at home. The Minister let these women down tonight. We won’t stop until proper healthcare is delivered.
Working women are too often left to deal with endometriosis alone. But big changes could be coming... Via @Kathleen_M_King theconversation.com/working-women-…
theconversation.com
Working women are too often left to deal with endometriosis alone. But big changes could be coming
Left unsupported, endometriosis can bring misery for the women who suffer it – and it can damage their careers and workplace wellbeing.
Endometriosis: 'I'm disgusted with the NHS after our daughter took her own life' news.stv.tv/east-central/f…
I spoke with the amazing @AnitaNnekaJones about her long journey with endometriosis as says she was ‘gaslit by doctors for 14 years’ independent.co.uk/life-style/hea…
waited 18+ months for a referral, diagnosed with a serious mental illness, had to move in with my parents because I wasn’t able to work enough to pay rent, move meant I was dropped from local services & am back at square one & can work less than ever. what a worm this man is
Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.
If you think PIP is "too easy" to get, I suggest you take a look at a PIP claim form. Then look up how hard it is to get enough "points" to qualify. Finally, take a look at any welfare rights forum to see how many people with serious illness and disability have been turned down.
So excited to be starting the next stage of my PhD which will involve interviewing those with a lived experience of #endometriosis about their interactions with primary health care physicians. If you are interested please drop a message to email on poster or scan the QR code 🎗️
Annalise Weckesser "UK folks - if know a young person (10-18 years) who experiences *period pain* - there is this amazing study being conducted by my friend and colleague @UniofOxford....." @EndoSRN @VQ_Birmingham phc.ox.ac.uk/research/group…
"Studies of how quickly doctors interrupt patients find that the median time is 11 seconds. Nobody feels listened to in 11 seconds." @Richard56 discusses the healing power of being listened to bmj.com/content/385/bm…
A life well lived. Rest Jahmby🕊️
Deeply saddened to hear Fyah Mummah Jahmby Koikai @JahmbyKoikai has passed away. An incredible person whose advocacy and dedication will continue to inspire us all. 🕊 For more advocacy regards endometriosis beyond the pelvis follow @XtraNotRare. This is a whole body disease.
Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.
BREAKING NEWS Njambi (Jahmby) Koikai alias Faya Mama has passed away😢💔 Mary Jahmby Koikai passed away following a long fight with endometriosis. Her friends and family have confirmed that she died in hospital on Tuesday morning. Rest In Peace🕊️
Research Opportunity👇👇 This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis. Those living with either or both conditions are invited to take part at: forms.office.com/pages/response… #UniversityOfLiverpool #TEPEAstudy
forms.office.com
Microsoft Forms
Microsoft Forms
Do you have #endometriosis or #adenomyosis? You are invited to take part in research on treatments for endometriosis and adenomyosis, conducted by the #UniversityofLiverpool. This is an online questionnaire that will take 15 minutes to complete: forms.office.com/e/1QY213rJPy #TEPEA
forms.office.com
Microsoft Forms
Microsoft Forms
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