Valerie Cullari
@FullSpectrumMom
Mom of 2 amazing #Neurodiverse Kiddos♥️ Award Winning #Author of Children's Books on #Diversity 💕 Full Spectrum Mom #Blogger❤️
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Blog Entry: Even If It's Only A Whisper Life has a way of challenging us beyond measure. In recent times, I’ve faced profound trials— finding my health is at a standstill, the loss of my beloved dog, the heart-wrenching decision to place my child in a residential facility, the…
Blog Entry: I Love You More “I love you more.” Those simple yet profound words resonate deeply, especially when spoken by those who are usually unable verbalize. This sentiment holds a special place in my heart, having heard it from my son, Rocco. A boy who communicates in his…
Blog Entry: Outcome May Vary “This sense of solitude amplifies when you yourself fall sick, battling a chronic illness. It’s not just about feeling unwell; it’s the disconnect that deepens with each passing day....The weight of this solitude is crushing, as the reality of your…
Today. A day enveloped in miracles. When I say miracles I mean shout out to the world in celebration. Not only one, but two incredible joyous, monumental milestones. For those that know our Rocco, whom is profoundly autistic, his greatest pleasure, most cherished routine, deepest…
Blog Entry: NOT ME, WHO? “...As a parent of profoundly autistic children, one of the most daunting fears I grapple with is a question that looms large in my mind: What happens when I’m no longer here? When I can’t fight for my child, when my voice is gone, who will fill the void?…
Today, we will gather as our little family, I even made Rocco’s favorite feast of chips and lemonade, surrounded by love and laughter. It’s a day of joy as we celebrate with family, most excitedly, Lily WAS INVITED to a Fourth of July party! It was with extended family, but she…
4th of July is a reminder to sensory sensitive families like ours that we have another day to get through, only harder. Not just because of the noise, both fireworks and parties, but also a grave reminder of the wholesome family holidays we miss out on. I see you and good luck.…
"I’m trying to teach my son basic life skills, how to go on the toilet, get him out of diapers, how to brush his hair and teeth, learn how to dress himself, I know we’re pushing it, but adding in deodorant and body spray. He’s nine. He should be going to his first sleepovers,…
Some of our children are so profoundly autistic we can hardly leave our homes, they need 24/7 care. Few reach out to see how we’re doing. Other parents simply ignore us even if we have other children. That or they only acknowledge one child. Parenting is hard to begin with,…
Sometimes the journey feels lonely when raising special needs children. With friendships fading into the background and invitations becoming rare, it's easy to feel isolated. But remember, you're not alone. Each step we take is significant, even if the path seems quiet.…
"This isn't just any sunflower; it's a symbol of the culmination of hard work, dedication, hope, and dreams..." Check out my post here!!! facebook.com/share/p/1B33XF…
Blog Entry: The whirlwind "In the midst of this whirlwind, I strive to engage with Rocco—playing, teaching, and nurturing him—but I am pulled in different directions, answering emails and spending precious time with my daughter, Lily. It often feels like I am tethered to multiple…
Blog Entry: Support Not Advice "What they confirmed, however, is that I continue to grapple with superior mesenteric artery syndrome (SMAS), a rare, life-threatening condition that the majority of doctors and surgeons find daunting and have little experience with." Click the link…
#profoundautism #autism #inclusion #Education #acceptance #hope #walkinmyshoes #ROCCOSJOURNEY #thefullspectrummom #fullspectrummom
Blog Entry: Sit In Silence Loudly In Love "... I’m haunted by memories of your laughter, your curiosity, and your once-vibrant presence..." Read the rest in bio! #profoundautism #autism #neurodiversity #ROCCOSJOURNEY #hope #inclusion #acceptance
Check us out in USA News! CREATING A LEGACY OF HOPE: MY JOURNEY WITH ROCCOSJOURNEY FOUNDATION usanews.com/newsroom/Creat… #autism #neurodiversity
Blog Entry: Me And My Shadow "I exercised regularly and took care of my body. But now, when I looked at my shadow, I saw only bones. The sharp edges of my hip bones jutted out, and the curves that had once defined my figure had vanished." Click the link in bio! #profoundautism
Check us out in Insider Weekly! theinsiderweekly.com/award-winning-… #profoundautism #author #Neurodiversity
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