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When your former and new worlds collide 🤯 @EuropeanMGA @AllUni #MGAwarenessMonth #MyastheniaGravis
What is it like living with an invisible chronic disorder? Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, to talk about just that. On the next BloodStream. bit.ly/thebloodstream… Sponsor: #Takeda It’s a Whole New World brought to you by @csl
It's an early wrap up for #ISTH2023 and about to ✈️ back home. Thanks @isth for the useful travel tips!
Can't believe it's been a year already! Looking forward to and feeling privileged to join eminent scientists at #ISTH2023 in Montreal to learn about the latest medical developments in haemostasis, particularly for bleeding disorders! The programme looks promising.
See you soon at #ISTH2023! You can still register for in-person or virtual attendance at isth2023.org
An appropriate talk to finish #ISTH2022 -sport injuries in haemophilia - seeing attending the full Congress feels like 🏃♀️ a marathon! But what great opportunity to learn on advances in research and clinical practice in rare bleeding disorders! @EHC_Haemophilia @Amanda_Bok
Thanks to the whole @eupatientsforum for a great first edition of their #EPFCongress19! Also shout out to @MairElliott1 for her terrific moderation of the event! Really impressive! 💪
Words of wisdom from Cees Smit giving the opening address at the #EPFCongress19. Delighted to see how the haemophilia community can help other patient groups in #patientadvocacy
Starting the day/week with a patient advocacy hackaton 💪- only missing @YNatsis in our team to get things started! #EPFCongress2019 @EHC_Haemophilia
Great presentation from @ipopi_info vice-chair highlighting importance of meaningful patient involvement in @WHO work
#plasmaproducts are subjected to @EMA_News & @US_FDA approval. Risk of new virus requires increased surveillance #WHA70 #bloodsafety
The side meeting on blood safety at #wha70 supported by @EHC_Haemophilia and @ipopi_info is about to start!
Looking forward to the meeting on "Safeguarding blood safety for multi- transfused patients" supported by @ipopi_info and @EHC_Haemophilia
#PLUS members arriving at @WHO in Geneva @pergentmartine @Amanda_Bok @LeireSolis @EHC_Haemophilia @thalassaemiaTIF @wfhemophilia @marrow
Looking frward to hear results of #PRIME after 1st yr of implementation in particular for gene therapy in #haemophilia
First anniversary of #PRIME: join live broadcast on experience gained so far on 19 May: bit.ly/2qK0Pmv
Registrations are now open for our RT on Orthopaedic issues in #haemophilia at bit.ly/2rqNo88
We are excited to invite you to our June Round Table! Registration is now open and can be accessed at ehc.eu/events/ehc-rou… #EHCRoundTable
Announced yesterday at IPFA Zagreb
During IPFA Zagreb, Croatian MoH outlines EC revision plan for EU #blooddirective and announces new stakeholder consultation opening in May.
.@FedEx: stop shipping shark fins! RT if you agree! ow.ly/pWqM308lDDq #sharks #sharkfinning #finning
#EAHAD2017 starts tomorrow! Don't miss out talk by EHC CEO @Amanda_Bok on Thursday on EC expert group on RD and haemophilia
Bonsoir Paris ! We're excited to be here for #EAHAD2017, which starts tomorrow with the Pre Congress Day for Nurses and Physios #haemophilia
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