Phyllis
@Groz_P
DCIS 1995 ➡️ metastatic breast cancer 2008, 2 clinical trials LEE011,SRN,2 ports,2SIRT,Lymphedema,edema,paracentesis,0 tx &0 trials left (ineligible) #MBCKills
Was dir gefallen könnte
What's it like to have terminal cancer & need a clinical trial? You might be surprised. Patients' Perspectives: metup.org/wp-content/upl…
RIP Phyllis Groskin. A powerful advocate for herself and her sisters and brothers in the MBC community. @METUPorg @METUPUKorg. Beloved wife of @sperki. Thanks for supporting her. Carry the flame Metsters!
Sharing my piece "Reflections on the Boston Marathon from a Breast Cancer Oncologist (or Why I Just Don't Quit)" nwh.org/media/file/The… … … … @newtonwellesley @mamadocsrunthis @HemOncWomenDocs #BostonMarathon2018 #Keepshowingup #CarpeDiem
A #BitofBeauty from our garden. Peonies came from my grandparents in PA to my parents in NY and now me in MA, making the original plants around 80 years old.
To have this much influence and this many resources at your disposal, yet still ineffectively utilizing it and benefiting only part of the affected population...its just plain sad @SusanGKomen #pinkisnotacure #fundresearch
Hey @BCBSLA you decided not to cover the TACE liver treatment my radiation oncologist is recommending because he has seen it work for other patients in a position similar to mine. You won’t cover it because it’s ‘investigational’ but isn’t that how science advances?
You just have to wonder why one of the largest breast cancer non-profits does not understand the sexualization of #breastcancer is not cool with anyone. What about the 30% who detected BC early & it came back to kill them? You should be ashamed @SusanGKomen & @AdCouncil #bcsm
We are proud to announce Komen and @AdCouncil’s new campaign, Know Your Girls! Follow along at @_KnowYourGirls & head to KnowYourGirls.org to learn more about breast health & #breastcancer risk. #KnowYourGirls
Hey @BCBSLA why are you denying me the TACE liver treatment I need to stay alive? You say it’s investigational and won’t cover it. To me it is life extending. Obviously your profits are more important than my life.
In the spirit of @actupny -- die-in at Living Beyond Breast Cancer calling for action around metastatic breast cancer #LBBCmetsconf #bcsm
New molecular insights on breast cancer in men compared to women in this large genomic study with important outcome data. Just published in Understanding male breast cancer scopeblog.stanford.edu/2018/03/28/und…
Every single member of the House of Representatives is up for election in 2018. Here’s a list of the members who voted for the #GOPTaxScam #TaxScamBill #VoteThemOut
So my #sbcinfographic I created in 2015 will be taken over by 2 chairites who won't be giving me any credit for it whatsoever (apart from in one of their "good practise" report) But yes I'm an "inspiration" Tell that to my kids when I'm dead...
Money is power & drug companies keep patient advocate groups & non-profits silent on drug cost by giving them a lot of it.
I have been trying to find this slide @vinayprasad82 @pash22 I think theres a lot that needs discussing here re patient groups and HCPs ....
“Mass shootings are scary and impossible to predict. Except for this one big thing that’s a really good predictor.” youtube.com/watch?v=iBuKbe…
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Close the Boyfriend Loophole | November 1, 2017 Act 2 | Full Frontal...
Joan, it’s hard to respect your work when it specifically excludes women with MBC and rejects our need for research on metastasis.
Amazing! Congrats to Dr David Ryan and Dr Lecia Sequist!
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