Help4HD
@Help4HDI
Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.
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Watch NOW on Facebook LIVE! Help 4 HD HIPE includes #HD Q&A, AMT-130 update analysis with #HDExperts, pharma representatives, community stories, and so much more. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease fb.watch/Df8XxHezr_/
Connect LIVE TOMORROW at 8am PST! We can't wait to see you there! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease
"We are committed to providing access to necessary #healthcare & long-term supports & services for people with disabilities..." ~#DisabilityRights #Louisiana💙💜💙 Find more resources like this on the #Help4HD #Resource Database: digitalgrowthfirm.adalo.com/help4hd-databa…
*Giveaways* Join the HIPE! Once the event is live, you can find #giveaways at the bottom of each session page. #Help4HDHIPE2025 #Virtual #HuntingtonsDisease #Help4HD App: digitalgrowthfirm.adalo.com/h4hdweb?target… Event Zoom link: us02web.zoom.us/j/88083650040?… Passcode: 431440
"I feel helpless, because it's like... what can WE do?" Listen NOW on #Help4HDTV as Laura & Leah react to the AMT-130 update & discuss moving forward from here as a community! #HuntingtonsDisease #HDResearch #uniqure Full episode: facebook.com/help4hd/reels/
Laura Vazac-Muoio & #Help4HDTV host Leah reveal how they heard about the AMT-130 update & their different reactions to the news! Listen in Tomorrow at 9am PST to find out more. #Help4HD #HuntingtonsDisease #HDResearch AMT-130 update: facebook.com/help4hd/posts/…
We are THRILLED to have Dr. Beth Borowsky, Senior Global Program Clinical Head in Neuroscience at @Novartis, speaking at #Help4HDHIPE2025 on Saturday! Listen to this special guest at our FREE #virtual #HD event as we #LooktotheFuture starting @ 8am PST!
Make sure to tune in TOMORROW at 4 pm EST to hear Katie Jackson and I talk about the recent UniQure update, what we as a community can do, and the upcoming @Help4HDI HIPE event. #HuntingtonsDisease #raredisease #Voice4HD #DyingToLive #HDWarrior #patientadvocate #careaboutrare
Tessy Rossignol, Sr. Manager Patient Support Services for Neurocrine Biosciences, will be coming virtually to HIPE this weekend! Listen in Saturday @ 8am PST as we Look to the Future! #Help4HDHIPE2025 #Virtual #HuntingtonsDisease facebook.com/photo?fbid=124…
THIS WEEKEND! Come online to hear more about HD Pace (#HD Patients Accelerating Clinical Endeavors) with Christy & Lauren at Virtual HIPE! Tune in at 8am PST on Saturday! #Help4HDHIPE2025 #Virtual #huntingtonsdisease help4hd.org/events-1/virtu…
We wish to thank our #Help4HD Resource Database #sponsors for helping us provide access to resources for the #HD community. Thank you for your generous support!💙💜💙 Check out the Help4HD Resource Database here: digitalgrowthfirm.adalo.com/help4hd-databa…
Listen in on this session as Mei-Lise Nguyen representing Genentech/Roche shares #HDResearch updates coming up on Saturday! Join us virtually starting at 8am PST! #Help4HDHIPE2025 #Virtual #huntingtonsdisease help4hd.org/events-1/virtu…
🍂APPLY NOW!🍂 #Help4theHolidays is pleased to be giving qualifying #HD/ #JHD families relief towards a #holiday meal. #Help4HD's #HolidayRelief meal program portal is now OPEN! (First-Come, First-serve) Details: help4hd.org/events-1/help-…
#Help4HD's #Bereavement Support Group is a messenger group for individuals grieving the loss of a loved one to #HuntingtonsDisease. To get involved please contact [email protected] All support groups: help4hd.org/support-groups
We know this is news we weren't expecting or hoping for, but it isn't over. uniQure states it will continue to work with the FDA to establish a pathway forward. ...we will continue to fight on & push forward. ~ Katie Jackson More: facebook.com/photo?fbid=124…
Helen Magnuson will be sharing her #HDCaregiver story in the near future! Listen virtually as we connect on Saturday starting at 8am PST! #Help4HDHIPE2025 #Virtual #huntingtonsdisease Event Details: help4hd.org/events
You're invited! #Help4HD's Monday Mixer Virtual Meeting meets TOMORROW at 4pm PST!!! Our #MondayMixer is a space where #HD community members can come together & socialize on Zoom. Reach out to [email protected] for more details. See you soon!
Josie Ponterio is joining the HIPE! Connect with us online to hear her perspective on Looking to the Future as someone gene-positive for #HD! Listen in just one week, Nov. 8th! #Help4HDHIPE2025 #Virtual Event details: help4hd.org/events
Meet Lance Kruger at Virtual HIPE! Learn more about Lance's story & connection to the #HD community! Listen next Saturday as we Look to the Future!#Help4HDHIPE2025 #Virtual #huntingtonsdisease Event details: help4hd.org/events
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