HelpHarryFund's profile picture. Fundraising and raising awareness for our 8 year old son Harry who has Duchenne Muscular Dystrophy, all money raised goes to Duchenne UK.

Help Harry

@HelpHarryFund

Fundraising and raising awareness for our 8 year old son Harry who has Duchenne Muscular Dystrophy, all money raised goes to Duchenne UK.

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In 2020, Archie Naughton joined us alongside his parents, Paula & Padraic, to speak about his terminal 'muscle wasting' condition, Duchenne Muscular Dystrophy. Sadly, Archie passed away in July. Paula & Padraic pay tribute to their son as they continue to raise awareness.


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💙🤍💛Happy #WorldEarthDay2022🌍from #FreshfieldCaravanPark, let’s see how far round the world we can get this tweet!🌍✈️#Formby #liverpool #worldearthday @FormbyBubble

flossyd_caravan's tweet image. 💙🤍💛Happy #WorldEarthDay2022🌍from #FreshfieldCaravanPark, let’s see how far round the world we can get this tweet!🌍✈️#Formby #liverpool #worldearthday @FormbyBubble

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Happy @WorldBookDayUK we love seeing your outfits! Could your pre-loved books be turned into cash donations for Duchenne UK? It is easy to donate your unwanted books, CD’s, games and DVDs via @ZiffIt and give the proceeds to Duchenne UK. uk.virginmoneygiving.com/giving/worldof… @HelpHarryFund

DuchenneUK's tweet image. Happy @WorldBookDayUK we love seeing your outfits! Could your pre-loved books be turned into cash donations for Duchenne UK?

It is easy to donate your unwanted books, CD’s, games and DVDs via @ZiffIt and give the proceeds to Duchenne UK.

uk.virginmoneygiving.com/giving/worldof…

@HelpHarryFund

So great that Harry can take part in this after school club (not physical) and he loves it👍🏻

Great start to our new Minecraft Club. Our topic was the Vikings with lots of Eric the Reds @MiLittlePadLtd

StJeromesSch's tweet image. Great start to our new Minecraft Club. Our topic was the Vikings with lots of Eric the Reds @MiLittlePadLtd
StJeromesSch's tweet image. Great start to our new Minecraft Club. Our topic was the Vikings with lots of Eric the Reds @MiLittlePadLtd
StJeromesSch's tweet image. Great start to our new Minecraft Club. Our topic was the Vikings with lots of Eric the Reds @MiLittlePadLtd
StJeromesSch's tweet image. Great start to our new Minecraft Club. Our topic was the Vikings with lots of Eric the Reds @MiLittlePadLtd


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Thanks for all your support Harry has been enjoying his new scooter at playtimes.


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2018 has been a big year for Duchenne UK and the Duchenne community. We have commissioned novel research, funded clinical trials and helped hospitals run those trials by funding doctors, nurses and support staff. And... facebook.com/duchenneuk/vid…


Thank you so much @StJeromesSch and all who took part for moving a mile for Harry’s muscle @DuchenneUK 💙💙💙💙

Fabulous Infant Sports Day ending with a whole school Harry's Mile @HelpHarryFund Perfect!

StJeromesSch's tweet image. Fabulous Infant Sports Day ending with a whole school Harry's Mile @HelpHarryFund Perfect!
StJeromesSch's tweet image. Fabulous Infant Sports Day ending with a whole school Harry's Mile @HelpHarryFund Perfect!


Living in hope for that cure @HelpHarryFund #DuchenneMosaic#Sarepta

HelpHarryFund's tweet image. Living in hope for that cure @HelpHarryFund #DuchenneMosaic#Sarepta

Harry walking out with Bernardo Silver @ManCity 💙


What a day Harry had meeting all the players and walking on the pitch thank you @ManCity 💙💙💙

HelpHarryFund's tweet image. What a day Harry had meeting all the players and walking on the pitch thank you @ManCity 💙💙💙

Here is Harry ready to walk on the pitch with Manchester City team later today @DuchenneUK @ManCity 💙

HelpHarryFund's tweet image. Here is Harry ready to walk on the pitch with Manchester City team later today @DuchenneUK @ManCity 💙

Our next event 🍷💙🍷

HelpHarryFund's tweet image. Our next event 🍷💙🍷

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Duchenne UK is a lean, ambitious and highly focused charity with a clear vision to fund and accelerate treatments and a cure for Duchenne Muscular Dystrophy. Please watch and share our film. Thank you for your support. youtu.be/e2uKGoWO0K4 #Duchenneber #DuchenneUK

DuchenneUK's tweet card. Duchenne UK Charity Film

youtube.com

YouTube

Duchenne UK Charity Film


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We need your help @DeutscheBank please vote for Duchenne UK to be your charity of the year & help us to End Duchenne youtu.be/BVbgRQYOras

DuchenneUK's tweet image. We need your help @DeutscheBank please vote for Duchenne UK to be your charity of the year & help us to End Duchenne youtu.be/BVbgRQYOras

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Noah has had support from lots of football clubs and fans... All the messages make him smile @LFC Noah said thanks Jurgen! #footballfamily


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Thanks @veoliaenvtrust for an amazing grant to make a magical woodland walk in Springfield Park! We can’t wait to start this fab project

AlderHey's tweet image. Thanks @veoliaenvtrust for an amazing grant to make a magical woodland walk in Springfield Park! We can’t wait to start this fab project

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The Solid Biosciences team around the world recognizes World Duchenne Awareness Day, strengthening our resolve to end this disease #WDAD17

Solid_Bio's tweet image. The Solid Biosciences team around the world recognizes World Duchenne Awareness Day, strengthening our resolve to end this disease #WDAD17

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Yesterday we met David Roblin @Summitplc's new COO and President of Research and Development to discuss their drug development plans #WDAD17

DuchenneUK's tweet image. Yesterday we met David Roblin @Summitplc's new COO and President of Research and Development to discuss their drug development plans #WDAD17

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We would like to share a blog by Jon Hastie from DMD Pathfinders: "DMD RESEARCH DIDN’T INTEREST ME – BUT NOW IT... fb.me/2k7LNQ4rv


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