HowBigBWS
@HowBigBWS
Raising awareness for Beckwith-Wiedemann Syndrome. A global movement of people wanting to save lives. http://howbigbws.com
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We care about rare! 1 in 11,000 babies are born with Beckwith Wiedemann Syndrome. Recognizing the symptoms and getting a diagnosis is crucial for #childhoodcancer detection. #rarediseaseday #howbigbws… instagram.com/p/B9KkOWWDblC/…
Help fight childhood cancer, one selfie at a time! Stop by your local Volvo Cars dealership, take a selfie and post your photo with the hashtag #VolvoCarsforAlex. @VolvoCarUSA will donate $10 to #AlexsLemonade for every tagged selfie up to $5,000.
THREE DAYS LEFT to donate to #childhoodcancerresearch and have your donation DOUBLE matched by volvocarusa and @alexslemonade. Link in profile for the #beckwithwiedemannsyndrome fund. #morethan4 #gogold… instagram.com/p/B26-pXIDLTB/…
We will donate $1 for every retweet and donation to our team through Sunday @AlexsLemonade and @volvocars will match donations too! #morethan4 #ChildhoodCancerAwarenessMonth alexslemonade.org/mypage/1683931…
#Repost compassionatelybri ・・・ Wow. Attending and speaking at the Deciphering Beckwith Weidemann Syndrome Conference was INCREDIBLE! Pictured in the first photo is Dr. Kalish who organized not only the conference… instagram.com/p/B0MQi95jwqW/…
Check out compassionatelybri who talks about self care and kindness and also happens to have #beckwithwiedemannspectrum #howbigbws #beckwithwiedemannsyndrome #selfcare #kindnessispowerful instagram.com/p/B0L3tYCjX2A/…
Are you counting down the days? #howbigbws #beckwithwiedemannsyndrome #overgrowth #macroglossia #hemihypertrophy #childhoodcancer #macrosomia #hypoglycemia… instagram.com/p/BvwduV1AOpR/…
Your support of Alex's Lemonade Stand Foundation (ALSF) has made 2018 remarkable and hope-filled for children battling cancer. Whether you hosted a lemonade stand, attended one of our… instagram.com/p/Br5pEJ9Ai7J/…
#DYK childhood cancer research is vastly and consistently underfunded? Now through the end of tomorrow, @VolvoCarUSA is matching all donations made to #MillionMile teams! Donate to a team and double your impact for kids fighting cancer at TheMillionMile.org. #goldstrong
@AlexsLemonade & @VolvoCarUSA will double match your BWS #Childhoodcancer Research dollars thru Sept 14 alexslemonade.org/mypage/1435872… #donatetoday #gogold #howbigbws
It's National BWS Awareness Day and our All Care Employees, including President & CEO, Shawn Potter, are wearing yellow and green in Support of Team Skylah Lee! Skylah Lee is the grand-daughter of Kelly LeBlanc who is an employee here at All Care! #howbigbws #BWSAD2018
Wearing yellow for BWS day 💛 @RareDiseases @GeneticDisUK #careforrare #howbigbws #bwsad2018
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