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A write-up of this event will appear in BioNews next week. A film will be made available on PET's YouTube channel in future #HFEAct
Q.Will additional regs mean fertility gets treated differently to other areas of medicine? A. Helen said fertility is already different. Alex said fertility is the only area which has a tax applied to every cycle! This makes it one of the most heavily regulated areas. #HFEAct
The word data has become a dirty word - but data in healthcare can be used so rapidly to improve patient care. Dr Helen O'Neill #HFEAct
Alex points out the current framework is also more flexible you might think. That said some more unusual intervention may need be covered by 'compassionate interventions. The HFEA may not be best placed to manage some of the aspects i.e. post launch surveillance. #HFEAct
Alex said AI devices are already being used and regulated by the current medical device framework. The regulation is getting tougher as the EC brings in additional AI regulation. Other areas would fall under the existing medicines framework #HFEAct
Alex Denoon - not repro technologies, rather tech used in repro health - because then focus is more on existing frameworks that techs are likely to fit into #HFEAct
What happens if human genome editing becomes normalised? Big societal questions! Dr Andy Greenfield #HFEAct
Who decides whether there is a safe and effective methodology that warrants clinical use? There has to be an international dimension. Dr Andy Greenfield #HFEAct
'Regulatory sandboxes' - a way of prototyping and testing new approaches - including new forms of regulation - regulators need opportunity to learn & test too. Dr Andy Greenfield #HFEAct
Third speaker Dr Andy Greenfield is Honorary Research Fellow at the University of Oxford's @Ox_wrh. He is a Member of the @HTA_UK and the @RHC_UK, and was previously a member of the @HFEA and @Nuffbioethics #HFEAct
Regulation should take account of commercial considerations and the need to attract investment (whether we like it or not, we live in a capitalist society). Dr Andy Greenfield #HFEAct
Regulation and innovation should embrace ethics and public engagement. Dr Andy Greenfield #HFEAct
How can regulation be used to positively influence and alter the trajectory of technology? Dr Andy Greenfield #HFEAct
We can only 'regulate' use of genome editing if it's lawful to do so. Dr Andy Greenfield #HFEAct
We do not have a lawful way of performing genome editing in the UK. Dr Andy Greenfield #HFEAct
Political processes confer legitimacy on anyone who aims to use human genome editing...Dr Andy Greenfield #HFEAct
Machine learning using 63K fully annotated embryos is be used to look at the next level of development - Artificial Intelligence. But more evidence is required to help get the best results for the patient #HFEAct
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