JavadtheGiraffe's profile picture. Javad the Giraffe tells the story of a special boy who has Myotubular Myopathy, a rare muscle disease. #raredisease #mtmcnmfamily #giraffestrong

Javad.the.Giraffe

@JavadtheGiraffe

Javad the Giraffe tells the story of a special boy who has Myotubular Myopathy, a rare muscle disease. #raredisease #mtmcnmfamily #giraffestrong

"We're flying up, up outta here. Here we go, come with me. There's a world out there that we… instagram.com/p/BLZ8orJB8rQ/


Look who showed up today in time to go to Australia and New Zealand with Cheryl. #giraffestronginstagram.com/p/BLKdADqhydl/


Javad the Giraffe is heading home with #rarebear from @rarescience. Another great addition from… instagram.com/p/BKy-yLxhRoO/


Leaving a great weekend of #raredisease with @globalgenes @ Hyatt Regency Huntington Beach instagram.com/p/BKykO8LBwBd/


Javad the Giraffe loved attending the @globalgenes Champions of Hope Gala. A reminder that if we… instagram.com/p/BKxC8pwhd7d/


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