LisaRobinB's profile picture. I want people to pause in a moment of awe and go, "Woah." #sculptor #writer http://skylightstudiosinc.com, @capronicollection, @migrainedotcom (she/her)

Lisa Robin Benson

@LisaRobinB

I want people to pause in a moment of awe and go, "Woah." #sculptor #writer http://skylightstudiosinc.com, @capronicollection, @migrainedotcom (she/her)

#rvtopanonymous throw the glasses into the audience!!!


#rvtopanonymous caller—you like the environment, but Chris definitely does not. ;)


Lisa Robin Benson reposted

Meanwhile, according to @NIH posted analyses, #migraine research would be 15 times higher if disease burden was the only priority. Yet, the last NIH RFA specifically focused on #migraine research was in 2007. It funded 4 grants totally $5.5m... bit.ly/3hQ0c3Y 4/4

headachedoc's tweet image. Meanwhile, according to @NIH posted analyses, #migraine research would be 15 times higher if disease burden was the only priority. 

Yet, the last NIH RFA specifically focused on #migraine research was in 2007. It funded 4 grants totally $5.5m...
bit.ly/3hQ0c3Y

4/4

This is great news as well!!!

CMS now covers home oxygen for Medicare beneficiaries with cluster #headache!!! Finally!! This is a huge win for Americans with cluster headache, and validation of a decade of tireless efforts. Thank you to our incomparable @AHDAorg advocates!! #HOH21 go.cms.gov/3ydSPJ2



So happy to hear this news!

House Appropriations includes $20m in FY22 funding to expand VA #Headache Centers of Excellence to 28 sites!! Thank you, again, @RepDean, @PeterWelch, @RepMcKinley, & @RepBrianFitz!! Also, congrats and thanks to all of our fantastic #HOH21 advocates!!! bit.ly/3dwPg93

headachedoc's tweet image. House Appropriations includes $20m in FY22 funding to expand VA #Headache Centers of Excellence to 28 sites!!

Thank you, again, @RepDean, @PeterWelch, @RepMcKinley, & @RepBrianFitz!!

Also, congrats and thanks to all of our fantastic #HOH21 advocates!!!

bit.ly/3dwPg93


Yes all of this #migraine is not the fault of the person.

So are you saying the “trigger-industrial complex” is an ableist social structure promoting self-blame and diverting persons with migraine from actually helping themselves? I think, in large part......yes.😱



This is so true.

So are you saying the “trigger-industrial complex” is an ableist social structure promoting self-blame and diverting persons with migraine from actually helping themselves? I think, in large part......yes.😱



Lisa Robin Benson reposted

Many workplaces don’t understand or make accommodations to help ease the impact of #migraine. People with migraine deserve better. Here's a free downloadable guide with steps to navigating a conversation about migraine at work: #MHAM info.americanmigrainefoundation.com/migraine-at-wo…

amfmigraine's tweet image. Many workplaces don’t understand or make accommodations to help ease the impact of #migraine. People with migraine deserve better. Here's a free downloadable guide with steps to navigating a conversation about migraine at work: #MHAM info.americanmigrainefoundation.com/migraine-at-wo…

Thank you Doctor @AmaalStarlingMD for your advocacy!

So are you saying the “trigger-industrial complex” is an ableist social structure promoting self-blame and diverting persons with migraine from actually helping themselves? I think, in large part......yes.😱



Lisa Robin Benson reposted

Today, we remember the courage and sacrifice of #Boston police Sgt. Dennis Simmonds. On this day 7 years ago, Simmonds died of a medical emergency that stemmed from the injuries he suffered while responding to the 2013 shootout with the Boston Marathon bombers in Watertown. #RIP

WCVB's tweet image. Today, we remember the courage and sacrifice of #Boston police Sgt. Dennis Simmonds. On this day 7 years ago, Simmonds died of a medical emergency that stemmed from the injuries he suffered while responding to the 2013 shootout with the Boston Marathon bombers in Watertown. #RIP

217 advocates, 47 states, trying to extend more help with veterans with headache and more research on #migraine and #headache. Yay for #hoh2021 !!!

LisaRobinB's tweet image. 217 advocates, 47 states, trying to extend more help with veterans with headache and more research on #migraine and #headache. Yay for #hoh2021 !!!

About to do my first Headache on the Hill meeting with the office of @SenWarren! We are 215 patient advocates strong from 47 states. It’s virtual this year but just as important as ever to advocate for the 60 million Americans with headache diseases.


Lisa Robin Benson reposted

They did this well 👇

Whilst it is true that #migraine can be an awful disorder, it is actually the symptoms of migraine attacks that people suffer with. By saying 'people with migraine' rather than 'migraine sufferers', we focus on the person rather than the disorder. migraine.org.au/language

migraineaus's tweet image. Whilst it is true that #migraine can be an awful disorder, it is actually the symptoms of migraine attacks that people suffer with. By saying 'people with migraine' rather than 'migraine sufferers', we focus on the person rather than the disorder.
migraine.org.au/language


Was great to be part of this first session!

Whilst it is true that #migraine can be an awful disorder, it is actually the symptoms of migraine attacks that people suffer with. By saying 'people with migraine' rather than 'migraine sufferers', we focus on the person rather than the disorder. migraine.org.au/language

migraineaus's tweet image. Whilst it is true that #migraine can be an awful disorder, it is actually the symptoms of migraine attacks that people suffer with. By saying 'people with migraine' rather than 'migraine sufferers', we focus on the person rather than the disorder.
migraine.org.au/language


Lisa Robin Benson reposted

The Boston Red Sox have converted the 252 feet long by 20 feet tall billboard outside Fenway Park into a Black Lives Matter mural overlooking the Massachusetts Turnpike.

OnlyInBOS's tweet image. The Boston Red Sox have converted the 252 feet long by 20 feet tall billboard outside Fenway Park into a Black Lives Matter mural overlooking the Massachusetts Turnpike.

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