MND_PeerSupport's profile picture. A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent

MND Peer Support

@MND_PeerSupport

A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent

#newday our #MNDPeerSupport study will continue recruitment until May 2025! 🎉 #trending We have now recruited 119 participants out of a target of 160. 🎯 #thankyou to @mndassoc @mariecurieuk @kingsmnd @UHSussex #research #AcademicTwitter #carersweek


Are you a carer of someone living with #MND? Are you interested in taking part in a #research trial to see whether #online #peersupport can reduce #stress levels and promote #wellbeing. Interested? Please contact us at [email protected]. More details, rb.gy/scyv6s.

mndassociation.org

Online peer-to-peer support programme for carers of MND

Online peer-to-peer support programme for carers of MND


We are running a virtual peer-to-peer support programme for informal caregivers of individuals with #MND at risk of becoming or currently technology-dependent. Read more here rb.gy/scyv6s or email [email protected] #RCT #peersupport

mndassociation.org

Online peer-to-peer support programme for carers of MND

Online peer-to-peer support programme for carers of MND


MND Peer Support reposted

Do you look after patients with neuromuscular conditions? #NMD Please complete our survey to tell us what you think is important to measure in future studies on secretion clearance. Your voice is vital to make this work! delphimanager.liv.ac.uk/secretion_clea…


Are you living with a neuromuscular condition? Or are you caring for someone with #NMD? Please complete our survey to tell us what is important to measure in future studies of treatment to help clear mucus. Your voice is vital to make this work! shorturl.at/pvUW6


MND Peer Support reposted

Do you care for someone with motor neurone disease? You may be able to join this @MND_PeerSupport study, which #PilgrimsHospices is supporting, or become a peer supporter for someone in need. For more info, email [email protected] or click here: ow.ly/IO0t50JTJJH 💙

PilgrimsHospice's tweet image. Do you care for someone with motor neurone disease? You may be able to join this @MND_PeerSupport study, which #PilgrimsHospices is supporting, or become a peer supporter for someone in need. For more info, email peersupport@kcl.ac.uk or click here: ow.ly/IO0t50JTJJH 💙

MND Peer Support reposted

Our new preprint: ALS brain transcriptome-/proteome-wide association study (TWAS/PWAS) elucidates molecular mechanisms, highlights drugs reversing ALS risk profiles, and generates blood-based polytranscriptomic scores predicting ALS risk. tinyurl.com/2jdukhb6 (1/6)

ollie_pain's tweet image. Our new preprint: ALS brain transcriptome-/proteome-wide association study (TWAS/PWAS) elucidates molecular mechanisms, highlights drugs reversing ALS risk profiles, and generates blood-based polytranscriptomic scores predicting ALS risk. tinyurl.com/2jdukhb6 (1/6)

MND Peer Support reposted

#Branches & #Groups if you have @MNDPatients in need of an #AAC device Pls contact @MND_CommsAids or #MND Connect Helpline it's free and offers information & support on all aspects of motor neurone disease 📞 0808 802 6262 📧 [email protected] mndassociation.org/support-and-in…


What an amazing feat! Go Lennie! #fundraising #MND #TeamMND @mndassoc

Please support Lennie & his 2 amazing charities,every little helps to make a big difference!HE'S set to cycle to 5 super league Stadiums roughly 42 Miles in just ONE DAY!CLICK THE LINK TO DONATE⬇️@mndassoc @LDShospcharity #TeamMND #fundraising #charity gofund.me/7303770a



Family carers have compassion in abundance! If you care for someone with #MND & are interested in finding out more about our virtual peer support #research trial please contact Rebecca at [email protected] or follow this link rb.gy/scyv6s @DrEstherHobson @st_marg

mndassociation.org

Online peer-to-peer support programme for carers of MND

Online peer-to-peer support programme for carers of MND

Compassion is the source of true joy, peace and happiness. It is the foundation of a good heart, the essence of a meaningful life, and the fundamental principle for creating a better world.



MND Peer Support reposted

We have the ‘Match Ball’ for the ‘Doddie Cup 555 Ride’ and we’ve taken it on tour. Anyone know where we are? #doddieaid2023 #mnd #doddiecup555 #dc555 #mndresearch #doddieaid

doddie_aid's tweet image. We have the ‘Match Ball’ for the ‘Doddie Cup 555 Ride’ and we’ve taken it on tour. Anyone know where we are? #doddieaid2023 #mnd #doddiecup555 #dc555 #mndresearch #doddieaid

MND Peer Support reposted

HELP REQUIRE D; Jordie now requires an Air Flow mattress and I am having trouble finding holiday cottages that have this, plenty with electric bed but not air flow mattress. MND friends can you help 🤞🙏❤️@mndassoc @MNDoddie5 @Rob7Burrow @DarbyRimmerMND


MND Peer Support reposted

Are you a family Carer of someone with Motor Neuron Disease (MND)? We are looking for Family/informal carers of someone with MND for a research study of online peer support. To sign up: [email protected]

NRS_NDN's tweet image. Are you a family Carer of someone with Motor Neuron Disease (MND)? 
We are looking for Family/informal carers of someone with MND for a research study of online peer support.
To sign up: peersupport@kcl.ac.uk

MND Peer Support reposted

Hooray, the weekend is almost here! But timeoff for caregivers of people with #MND is non-existent. KCL is undertaking #research to see if online #peersupport can help #carers in their invaluable role. Interested? See more here rb.gy/scyv6s @DrEstherHobson @mndassoc

mndassociation.org

Online peer-to-peer support programme for carers of MND

Online peer-to-peer support programme for carers of MND


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