Learning Banks
@MSLearningBank
Advice & info from MSers to MSers, helping our community overcome trials and trouble. Search ideas & deposit your own.
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@MSLearningBank love this! We need this added to Learning Banks #EnablingMe @differencenorth learningbanks.org.uk/MS//index.php/
The gobsmacked look of someone who just discovered his first wheelchair-accessible bar. #MultipleSclerosis #wheelchair #accessibility
lol! Me: approaching lift guy: nearly up first flight of adjacent open stairs, looks, sees me, says something, rushes back down, approaches lift and says, let me get that for you, and presses the forking button! lol, le, lol lol lol it's me legs what r forked, not me finger 😀
Guy: lift is this way, love. Me: I'm not going that way, but ty. G: where are you going, the lift is here? M: I don't need to use the lift yet, ty. G: but it's here. M: not right now, ta. G: rude. ... WTF, I'm rude? #Disabled people know what we want & when we want it...🖕♿
And even even better, add your own ways you deal with foot drop and help others 😀😀 learningbanks.org.uk/contribute
even better, read how we've dealt with it! learningbanks.org.uk/search/content…
even better, read how we've dealt with it! learningbanks.org.uk/search/content…
Foot drop, is an MS symptom caused by weakness in the ankle or nerve disruption between the legs & the brain. It may cause your foot to drag or catch when walking. Have you experienced this? Have you tried any treatments for it? Read more about foot drop ow.ly/E1Zu50jOnv6
We are at Westminster! Thank you to everyone who tweeted their MP and ask them to show their support. 📣📣📣 Our External Relations Manager @JonathanRBlades explains why ocrelizumab was rejected for primary progressive MS on the NHS - and why this is wrong! #SpeakUpForMS
“It would give hope.” George (living with primary progressive MS) was diagnosed 14 years ago and spoke to us about why it’s so important ocrelizumab is available for primary progressive MS on the NHS. #SpeakUpForMS
“Every day that goes by, until they make a decision, we’re just going to accumulate disabilities.” We’re still at Westminster and talked to Al (has primary progressive MS). He explained why ocrelizumab needs to be approved for primary progressive MS on the NHS. #SpeakUpForMS
“It’s vital that MPs understand the difference that ocrelizumab could make to people’s lives.” Our Head of Campaigns and External Relations, @Georgina_MSS, talks about our event at Westminster, campaigning for ocrelizumab for PPMS on the NHS, and why we need to #SpeakUpForMS.
sorry! lol, just seen this. WELL DONE @mssocietyuk for building pressure 😀 what next?
We've been at Westminster to #SpeakUpForMS and make sure the voice of the #MS community is heard. A massive thank you to everyone who tweeted or emailed their MP and asked them to attend and help make ocrelizumab available for primary progressive MS on the NHS.
What the fork is this all about? Are they proposing to withdraw DMT treatment for MSers who can't walk? Is this #Disablism? Please convince me otherwise! learningbanks.org.uk/contributions/…
@MSLearningBank beautifully designed by @SarahHerb2040 from @consultndesign Thank you 😀😀
THANK YOU @LouiseMarie14 😀😀!!
What great news and what a valuable resource, I'm so pleased you made this happen!
Hey @LouiseMarie14 remember me asking you when you were at Northern Rock Found if u knew of any health related support for MS support? well, project is now launched!! #SlowAndSteadyWinsTheRace 😀😀😀
Calling all MSers! Check out new knowledgebase learningbanks.org.uk for tips & tricks for dealing with the pesky disease - by users for users. This animation explains things: youtu.be/eNoB2cd8LGU
Something old, something new, something borrowed, something in the learningbank.org.uk, ye olde spoon theory: shar.es/aao9Ag
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