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Michelle Sie Whitten

@MSW_Ds

Hoping to inspire others to create centers & we can provide blueprint. #Downsyndrome #CPHC @lalamarwoo @sandyhubbard @GailZahtz


Volunteers organize silent auction, assist w/ Dare to Play sports programs, man info booths, partner for dances, lots more. #CPHC @GailZahtz


I'm a workaholic :) and I come from a long line of workaholics. #CPHC @GailZahtz


We have 300+ volunteers, many parents, who are equally important to what we do. I'm just lucky. #CPHC @GailZahtz


It was sheer luck. My family and I had resources so I could work full-time on this… #CPHC @GailZahtz @MSW_Ds


My 10yo daughter w/ #Downsyndrome & discovery of lack of research & good medical care. #CPHC @GailZahtz


I make sure to follow Amer. Assoc. of Ped. guidelines for all my daughter's checkups. pediatrics.aappublications.org/content/128/2/… #CPHC @sandyhubbard @gailzahtz


For me personally, information is knowledge. Knowledge is empowering. #CPHC @sandyhubbard @gailzahtz


Look for online resources and experts such as @GDS_McGuire are open to responding to health questions. #CPHC @MardraSikora @GailZahtz


For #Downsyndrome, as w/ typical pop., studies show exercise, nutrition & routine benefit ability of our children & adults. #CPHC @GailZahtz


Unfortunately, #Alzheimers is problem; est. up to 50% of people w/ #Downsyndrome will get early onset. #CPHC @gailzahtz


Exec Dir and Co-Founder of @GDSFoundation, mom of 10yo w/ #Downsyndrome, former cable TV exec. bit.ly/I35VQA #CPHC @gailzahtz


T8. Yes.Amnio @ 18 wks. AFP test. Doc essentially said my child would live til 3 &encouraged termination. Horrible experience. #prenatalchat


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