Match4Emma
@Match4Emma
We could not find Emma a match. We were lucky her daddy was able to be her donor. PLEASE join the register as there are many more in need
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If you haven’t watched #TheSwimmers on @Netflix, add it to your list now. It’s based on the true story of Syrian sisters who fled war to become refugees and live their dream. Not only an incredible movie but also a subject that is so rarely humanised.
Yusra Mardini left her home country because of war but managed to continue her sport and reach the Olympics. She is now the focus of a new film on Netflix called “The Swimmers.” Al Jazeera spoke to Yusra ahead of the film’s release ⤵️
30 mins into watching ‘The Swimmers’ on Netflix & I’m in tears. It’s based on a true story of Syrian sisters who fled war to become refugees & live their dream. There are people living this painful reality every day. Syria, Ukraine, Afghanistan, the list goes on. We need change.
Everyone aged 17 - 55 and in general good health should be on the stem cell register
Today is World Bone Marrow Donor Day, so we were invited by @GeneticAll_UK to share the good news about our Better Together for Healthy Bone Marrow project. geneticalliance.org.uk/gauk-news/news… #WMDD2022
I’m utterly chuffed! Congratulations! You are finalist in The Social Care Leadership Awards Category: The Workforce Development Leader Award It’s wonderful to have our work recognised in this way #socialcare @3SpiritTraining
We're excited to hear from our three keynote speakers at this year's #FARFSymposium, Sept. 15-17. Learn more and register free here: cvent.me/ZQeBX0
⚠️ An urgent message from Veer’s parents: “Last week we had some unexpected news. Veer’s need for a matching stem cell donor is now urgent. Today we are asking you to help us save our 4-year-old little boy.” Request a swab kit to register: bit.ly/2BtVoeT #HelpVeerNow
🚨 URGENT APPEAL 🚨 Veer needs to find his match NOW. Time is running out for lovely little Veer, and he urgently needs a stem cell transplant. If you are aged 16-30, and you’re in good health, please apply to join our stem cell register: anthonynolan.org/helpveernow #HelpVeerNow
"I am immensely proud to be working with the most incredible patients and their parents... every day I am overwhelmed by their heroism.” Read about Leanne, the Clinical Nurse Specialist and Team Manager of the Children’s Hospice at Home nursing team. pepper.org.uk/meet-leanne-sp…
We’re getting ready to reopen on 4th a July... see you then
A Fanconi anemia clinical trial has just received a $1.7 million grant from the FDA. Initial funding for this trial was provided by generous donors to FARF. Thanks to you, those funds have been leveraged to get federal funding for the next four years. bit.ly/31EGDAo
You're very special to us. This #WorldMarrowDonorDay, we want to make sure you know it. Thank you to all our potential lifesavers, researchers, supporters, partners, and volunteers 💚🖤 You give hope to the families of people with blood cancer. Isn’t that incredible? #WMDD2019
Got an idea for FA research? We want to fund you! Join a renowned international community of researchers committed to finding better treatments and a cure for Fanconi anemia. Letters of Intent deadline this Friday 10/12. #FAResearch #FARF bit.ly/2y7G7PE
Saleem and brother Nadeem are raising money for Fanconi Hope for vital #FanconiAnaemia research in the #londontobrighton #L2B Cycle Ride in Sept 18. justgiving.com/fundraising/Sa…. Please Share! @FAresearchfund. @GeneticAll_UK @GeneticDisUK
Good News! Our updated Website, fanconihope.org, is up and running, making it more secure, mobile friendly and simpler to navigate. We are indebted to @AmineTouati, a professional web designer who has given his time for free to update the website. #FanconiAnemia
This is a brilliant new app from @AnthonyNolan for #stemcelltransplant patients -- keep track of results, record issues to ask doctors, set goals for exercise etc... Wish I'd had it four years ago, but expect it still to be v useful!
My Transplant Tracker - the 1st app to help people manage their recovery from stem cell transplant - is available now from @AnthonyNolan & @imagineear on iOS & @Android. Just search for "Transplant Tracker" in the @AppStore - info: bit.ly/2vY1JPC
Rachelle Emberton is fundraising for Fanconi Hope. Donate to Rachelle's JustGiving page justgiving.com/Rachelle-Ember…
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