MND Navigate
@MndNavigate
Diagnosed with MND 2019. Sharing my journey with MND to hopefully inspire others to live strong and with positivity-Also founder of MND Elite -views are my own
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You may remember I shared my story with the wonderful @ArthurRankHouse last year, we’ve had conversations and I’m pleased to say they wish to interview me a year on arhc.org.uk/supporting-you…
It’s with deep sadness that our MND warrior Lee who founded @MndNavigate and @MndElite passed away on the 25th May. We are all still heartbroken and our children and me (Tracey his wife) miss him so much. We will keep you legacy alive. #fuckmnd !!
I last week called a meeting with my health care team and family that they are to action my end of life plan after my charity ball I have navigated my journey with courage and heart and there will be another meeting before to ensure I’m sure @ArthurRankHouse
I’m developing that over I’ve been declined access the living well centre the hospice is like family @ArthurRankHouse @sharonallenarhc @DMTalbot
I am so pleased to announce that in June of next year my new event AN EVENING WITH LEE AND HIS MND WARRIOR FRIENDS more details in the new year @ArthurRankHouse @RoyalPapworth
I don’t have a huge following but o my days you lot are amazing thank you for all your support
My health has taken a huge decline these last few months where I’ve had the belief I have 3 years I believe I will be lucky to see next Christmas it’s a tough shout but it’s the reality of life 🙏
I’m sleeping rough on the streets for a night to raise funds for our local food bank with my team @ArthurRankHouse
Three years diagnosed, was given 24 months don’t fight the diagnosis fight the prognosis @ArthurRankHouse I have total respect for those that have lost a dear one and continue to support the fight against this disease
I hope this article will help others @ejmayberry @ArthurRankHouse @DoddieWeir5 @Redsmail @AlingaSun @dsetters @lamhanson @HelenMackieMND1 @MndQuirk
This weekend I walk 3 miles to celebrate 3 years with MND I’ll be supported by my team because I can’t walk unaided raising awareness of motor neurone disease
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