Português
English Indonesia Türkçe Deutsch Español Português Pусский Français Italiano Nederlands Polski العربية ไทย Tiếng Việt 繁體中文 简体中文 日本語 한국어
NF2BioSolutions's profile picture. NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis

NF2 BioSolutions

@NF2BioSolutions

NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis

601Posts 381Seguidores 396Seguindo
Talvez você curta
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
11 de set. de

📢 We’re excited to announce our upcoming webinar: Peripheral Tumors in NF2 with Dr. Matthieu Peyre 🗓 October 2 | ⏰ 2 PM ET / 7 PM BST | 💻 Zoom Register here: buff.ly/ET5RyQc

NF2BioSolutions's tweet image. 📢 We’re excited to announce our upcoming webinar: Peripheral Tumors in NF2 with Dr. Matthieu Peyre 🗓 October 2 | ⏰ 2 PM ET / 7 PM BST | 💻 Zoom Register here: buff.ly/ET5RyQc
0
1
7
0
175
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
4 de set. de

Help us push for NF2 gene therapy research worldwide. Join us as an Ambassador in your country/state. Support our mission and stay updated on research initiatives. Reach out to local NF2 patients and families, build a network, and fundraise creatively. Contact us today!

NF2BioSolutions's tweet image. Help us push for NF2 gene therapy research worldwide. Join us as an Ambassador in your country/state. Support our mission and stay updated on research initiatives. Reach out to local NF2 patients and families, build a network, and fundraise creatively. Contact us today!
0
0
1
0
166
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
2 de set. de

🏃♀️ On Oct 5, Alanna Halloran runs the Twin Cities Marathon for her twin, Lizzie, & everyone with #NF2. Every gift = doubled up to $10K 💙 Support research toward a cure: buff.ly/HQ01Kes

NF2BioSolutions's tweet image. 🏃♀️ On Oct 5, Alanna Halloran runs the Twin Cities Marathon for her twin, Lizzie, & everyone with #NF2. Every gift = doubled up to $10K 💙 Support research toward a cure: buff.ly/HQ01Kes
1
2
3
0
126
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
27 de ago. de

We are pleased to share that Buffalo Wild Wings, located at Jackson St., Macomb, Illinois, United States, will be donating 25% of its proceeds to the fight against NF2 on September 15th from 5:00 pm to 9:00 pm. If you are in the area, make sure to stop by!

NF2BioSolutions's tweet image. We are pleased to share that Buffalo Wild Wings, located at Jackson St., Macomb, Illinois, United States, will be donating 25% of its proceeds to the fight against NF2 on September 15th from 5:00 pm to 9:00 pm. If you are in the area, make sure to stop by!
0
1
4
0
123
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
14 de ago. de

Join our ONLINE Pampered Chef party, hosted by ambassador Amy Williams, to support NF2 Biosolutions. Our goal is to donate 30% of sales to this amazing cause. Enjoy shopping for kitchen gadgets, playing games, and winning prizes from home. Order here: buff.ly/jIsqfJM

NF2BioSolutions's tweet image. Join our ONLINE Pampered Chef party, hosted by ambassador Amy Williams, to support NF2 Biosolutions. Our goal is to donate 30% of sales to this amazing cause. Enjoy shopping for kitchen gadgets, playing games, and winning prizes from home. Order here: buff.ly/jIsqfJM
0
0
1
0
38
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
30 de jul. de

The 7th Annual Avalon Invitational Offshore Fishing Tournament was a huge success, and we're honored to be the beneficiary of this incredible event once again. The tournament raised an amazing $52,000 for NF2 BioSolutions, pushing the 7-year total to $300,000 in support of NF2.

NF2BioSolutions's tweet image. The 7th Annual Avalon Invitational Offshore Fishing Tournament was a huge success, and we're honored to be the beneficiary of this incredible event once again. The tournament raised an amazing $52,000 for NF2 BioSolutions, pushing the 7-year total to $300,000 in support of NF2.
NF2BioSolutions's tweet image. The 7th Annual Avalon Invitational Offshore Fishing Tournament was a huge success, and we're honored to be the beneficiary of this incredible event once again. The tournament raised an amazing $52,000 for NF2 BioSolutions, pushing the 7-year total to $300,000 in support of NF2.
0
2
5
0
157
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
24 de jul. de

The Geoffrey Jefferson Brain Research Centre in Manchester has secured a £700,000 grant to accelerate NF2 research, funding studies into the mechanisms of brain tumours and inflammation pathways in vestibular schwannomas and related tumours. Article here: buff.ly/TPsAMlj

NF2BioSolutions's tweet image. The Geoffrey Jefferson Brain Research Centre in Manchester has secured a £700,000 grant to accelerate NF2 research, funding studies into the mechanisms of brain tumours and inflammation pathways in vestibular schwannomas and related tumours. Article here: buff.ly/TPsAMlj
0
5
10
0
281
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
2 de jul. de

💙Join Us This Saturday for the Freedom Fundraiser 5K & Kids Dash! 💙 Come out and show your support for NF2 research at the Freedom Fundraiser 5K Run/Walk and Kids Dash THIS SATURDAY in Warren, PA! Register or donate here: buff.ly/PWGTPjA

NF2BioSolutions's tweet image. 💙Join Us This Saturday for the Freedom Fundraiser 5K & Kids Dash! 💙 Come out and show your support for NF2 research at the Freedom Fundraiser 5K Run/Walk and Kids Dash THIS SATURDAY in Warren, PA! Register or donate here: buff.ly/PWGTPjA
0
0
3
0
71
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
3 de jun. de

🎥 Missed the live webinar? The recording is now available! Learn about a groundbreaking AAV9-based gene therapy approach to treat NF2, presented by leading researchers in the field. ▶️ Watch the full recording now: 🔗 buff.ly/RqYqfJc

NF2BioSolutions's tweet image. 🎥 Missed the live webinar? The recording is now available! Learn about a groundbreaking AAV9-based gene therapy approach to treat NF2, presented by leading researchers in the field. ▶️ Watch the full recording now: 🔗 buff.ly/RqYqfJc
0
2
2
0
107
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
1 de jun. de

NF2 Awareness Month Is Over, But the Fight Isn’t 💙 May is behind us, but for those living with NF2, the challenges don’t end on June 1st, and neither does our mission. 👉 Donate today: Using Facebook: buff.ly/0JDU0yl Using our webpage: buff.ly/3kAdqPO

NF2BioSolutions's tweet image. NF2 Awareness Month Is Over, But the Fight Isn’t 💙 May is behind us, but for those living with NF2, the challenges don’t end on June 1st, and neither does our mission. 👉 Donate today: Using Facebook: buff.ly/0JDU0yl Using our webpage: buff.ly/3kAdqPO
0
0
1
0
67
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
29 de mai. de

🚨 Happening TODAY! Our AAV9-NF2 Gene Therapy webinar is just a few hours away — and there's still time to register! ✅ Can’t attend live? Register anyway, and we’ll send you the recording by email! 🔤 Live captioning will be available. 🔗 Register here: buff.ly/RqYqfJc

NF2BioSolutions's tweet image. 🚨 Happening TODAY! Our AAV9-NF2 Gene Therapy webinar is just a few hours away — and there's still time to register! ✅ Can’t attend live? Register anyway, and we’ll send you the recording by email! 🔤 Live captioning will be available. 🔗 Register here: buff.ly/RqYqfJc
0
1
4
0
176
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
22 de mai. de

Want to know how your donations are used? Here is a breakdown of what your donation can accomplish for the Yale Antibodies Project. Donate: Facebook: buff.ly/hHykMNh Webpage: buff.ly/hHqZRrq PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9

NF2BioSolutions's tweet image. Want to know how your donations are used? Here is a breakdown of what your donation can accomplish for the Yale Antibodies Project. Donate: Facebook: buff.ly/hHykMNh Webpage: buff.ly/hHqZRrq PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9
0
0
1
0
60
NF2BioSolutions's profile picture.
NF2 BioSolutions
 @NF2BioSolutions
22 de mai. de

We’ve raised $63,000 to fund Dr. Zhou’s cutting-edge antibody therapy at Yale—but we’re not done yet! Donate today: Using Facebook: buff.ly/hHykMNh Using our webpage: buff.ly/hHqZRrq Using PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9

NF2BioSolutions's tweet image. We’ve raised $63,000 to fund Dr. Zhou’s cutting-edge antibody therapy at Yale—but we’re not done yet! Donate today: Using Facebook: buff.ly/hHykMNh Using our webpage: buff.ly/hHqZRrq Using PayPal: buff.ly/0KKEtlF Internationally: buff.ly/aIuNLl9
0
2
2
0
89
nf2biosolution1's profile picture. Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.

NF2 BioSolutions UK & Europe

@nf2biosolution1
GraceGregory_'s profile picture. Postdoc in Computational Biology • Investigating the tumour microenvironment of vestibular schwannoma and meningioma.

Grace Gregory

@GraceGregory_
brain_op's profile picture. Consultant Neurosurgeon | Professor | Skull Base | Pituitary | Brain @MCRSkullBase @GJBrainResearch @SNOMan_Lab

Omar Pathmanaban

@brain_op
mamawadey's profile picture. Clinical Nurse Specialist #CNS for skull base tumours and conditions @MCRskullbase @MCCN_UK. Mum to 3 boys.

Andrea wadeson

@mamawadey
VibeBio's profile picture. Every cure for every community. Join us.

Vibe Bio

@VibeBio
NfIreland's profile picture. At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657

NF Ireland

@NfIreland
ChildrensTumor's profile picture. The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.

Children's Tumor Fdn

@ChildrensTumor
OnceUponAGene's profile picture. Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

Effie Parks

@OnceUponAGene
Nf2UK's profile picture. Dog-eared advocates still hoping for a cure ..... general NF2 info: https://t.co/3GbobMCGk0

Nf2UK

@Nf2UK
GJBrainResearch's profile picture. The Geoffrey Jefferson Brain Research Centre (GJBRC) combines discovery science and experimental medicine to rapidly translate research into healthcare benefit

GJBrainResearch

@GJBrainResearch
facialpalsyuk's profile picture. Charity dedicated to supporting people affected by facial paralysis. We also provide resources for health professionals. #UniqueSmiles #FaceMyDay

Facial Palsy UK

@facialpalsyuk
bnamdphd's profile picture. pediatric & adult neuro-oncologist at @ucsfhospitals @ucsfchildrens via @harvard @drexelmedicine @uh_rbcresidents @ucla | #NF #SWN #AYA

Brian Na, MD PhD

@bnamdphd
SBDRareProject's profile picture. Same but Different create thought-provoking exhibitions that stimulate conversation, change attitudes and empower individuals.

SamebutDifferent

@SBDRareProject
RarePOV's profile picture. #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

Stephanie Fischer

@RarePOV
RareBeacon's profile picture. Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Beacon for Rare Diseases

@RareBeacon
SaritaEdwards's profile picture. Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth

Sarita Edwards

@SaritaEdwards
vlmerker's profile picture. Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.

Vanessa L. Merker, PhD

@vlmerker
GlobalGenes's profile picture. Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Global Genes

@GlobalGenes
NFBot2's profile picture. Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston

NF Bot

@NFBot2
nfnetwork's profile picture. Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.

Neurofibromatosis Network

@nfnetwork
NolaMccale80613's profile picture.

Nola McCaleb

@NolaMccale80613
Humanistplanet's profile picture. Virtual Nomad. Techie. Encyclopedia. Philonoist. Humanity. Peace. Save Nature. Brain Tumor(Meningioma) Survivor/ScarEpilepsy. - Opinions/Retweets are personal.

HumanFirst

@Humanistplanet
Owiulirr00491's profile picture.

Owiulirr

@Owiulirr00491
0BS98vldLoq3TR's profile picture. living life one smile at a time 😊

CallieDrop

@0BS98vldLoq3TR
DJd01u45mKBCd0X's profile picture.

DominicCumberland

@DJd01u45mKBCd0X
AjokeAyomi22943's profile picture. We extend our heartfelt thanks for your generous contribution. Your support is invaluable in bringing us closer to achieving our goal.

Oiler Balutanski

@AjokeAyomi22943
Victor_nexus87's profile picture. Helping campaigns reach caring hearts 💙 | Supporting Victor’s ongoing medical care | Together we can bring hope, healing & change

Jessical

@Victor_nexus87
NZustaendig's profile picture. #Ösi #NieWiederIstJetzt #TeamWissenschaft Pöbel ist mein zweiter Vorname. 🤷‍♀️

Nicht Zuständig 😷

@NZustaendig
cherzic09's profile picture.

ColleenHH

@cherzic09
PESQUIRES's profile picture.

Patricia

@PESQUIRES
mcnn180's profile picture. .

mcnn1800

@mcnn180
mry11090768's profile picture.

M S Q

@mry11090768
ArishMustafa's profile picture. Academic Foundation Doctor @LivUni | @LivUniMedicine Grad | Interested in neuroscience

Arish Mustafa

@ArishMustafa
coleparsuns's profile picture. you gotta BE the marble

Cole

@coleparsuns
ElenaWilli26170's profile picture.

Elena Williams

@ElenaWilli26170
DaleB08's profile picture.

Dale

@DaleB08
KayleeF0825's profile picture. Wife, Mother, Nurse, IBCLC. Eyes wide open to the corruption.. there is no going back. Once you see it you will question everything you thought you knew.

Kaylee Michelle

@KayleeF0825
Arshan28674780's profile picture. Spreading awareness about the thing you never heard

Arshan

@Arshan28674780
SPowlison90178's profile picture. Christian. Wife. Mother. NF Advocate and Neighbor Shine a Light NF Walk -CLE Director CTF Engage Patient Representative

Sarah Powlison

@SPowlison90178
lhuhu590445's profile picture.

李华华

@lhuhu590445
lisahsmithlhs's profile picture. Family Nature Hiking Skiing Cottage Life Fishing Boating Traveling Concerts My retweets are not endorsements ( ͡ᵔ ͜ʖ ͡ᵔ )

lisahsmithlhs

@lisahsmithlhs
Crams_dumpster's profile picture. “fear is the path to the dark side” #1 Luis Madrigal/Alexandro Byrd STAN|LiaMini| bor(N) a (F)ighter, NF2|

spider-cram 🕷️🍮

@Crams_dumpster
Paula3265857670's profile picture.

Paula

@Paula3265857670
SantoThera's profile picture.

Santo Therapeutics

@SantoThera
Lavinia1342551's profile picture. When you can tell your Story and it doesn’t make you Cry, You know you have Healed. ~ I Am Kind To Everyone But Make No Mistake. I Give No Mercy To The Wicked.

Lavinia

@Lavinia1342551
AlterkMustafa's profile picture.

Mustafa AlterK

@AlterkMustafa
hotheadedbab's profile picture. (20) nf2 and epilepsy but i exist - IM PISSING ON THE MOON /ref

🏳️‍⚧️Mark/Marky💚

@hotheadedbab
Shuetairxx_U's profile picture. Thank you for being able to meet among thousands of people and spend this journey together https://t.co/YZZWuhHOG7

Sophia

@Shuetairxx_U
2eroCG's profile picture.

2ero

@2eroCG
AstellasUS's profile picture. A pharma company dedicated to changing tomorrow by improving the health of people around the world. Tweets for U.S. audience. Guidelines: https://t.co/AJlgiDgWSG

Astellas Pharma US

@AstellasUS
YangHou3's profile picture. Director @FSUDEaRLab, Assi Prof #FSUCOM , PhD #UTAustin. Postdoc #NIH developmental, clinical, quantitative psychology, mental health, rare disease

Yang Hou

@YangHou3
Kytair170360's profile picture.

Kytair

@Kytair170360
ManalZafer5's profile picture. محلل بيانات 📊

منال

@ManalZafer5
ArchiveRoad's profile picture.

Archive Road

@ArchiveRoad
Sidneysnfstory's profile picture.

Sidney Glasshoff

@Sidneysnfstory
DwightFettig's profile picture.

Dwight Fettig

@DwightFettig
omar_ahmid_'s profile picture. PhD student at @Welcome Trust Centre for Cell-Matrix Research. Badminton/Runner/Gym.

Omar Ahmid

@omar_ahmid_
GandalfTheOkk's profile picture. Just an average gamer with a spinal cord injury who loves sharing some clips of good times and new games! Come join us!

GandalfTheOk

@GandalfTheOkk
michabird67's profile picture. MAGA./MAHA, Trump/Vance/RFK JR Supporter. Mother, Wife, Fitness Enthusiast! UNITED WE STAND, DIVIDED WE FALL

TeresaENRG

@michabird67
jennakkoenig's profile picture. MD/PhD Student @IUMedSchool @iumstp @IUStark_Neuro 🩺🧬studying #Neurooncology #pediatricglioma 🧠 @notredame Alum 🍀 @WomenInNSGY MSC @CNS_Update MSC

Jenna Koenig

@jennakkoenig
Jewell_Lab's profile picture. Cell Signaling • Cell Growth. Views are my own.

Jewell Lab

@Jewell_Lab
TWright_GenomeX's profile picture. 🧬Clinical Genetics SpR/Resident (OOPR) | PhD Researcher @FBMH_UoM @mft_iMRare @ManchesterBRC #RareConditions #Genomics #MentalHealth |💗Husband/Dad/Son/Sib🎭🎨

Tom Wright

@TWright_GenomeX
needfor2ound's profile picture. Audiology PhD student @ucl

Eleanor

@needfor2ound
Ram1Rios's profile picture.

Ronaldo Rios Ramos

@Ram1Rios
o_rmum41533's profile picture.

ORmum

@o_rmum41533
andy85022174's profile picture.

andy

@andy85022174
SeiBellaLR's profile picture. Dr. Trussell owns Sei Bella Med Spa & offers HTCA bioidentical hormone pellets, IPL, lasers, injectables, Emsella, EmSculpt, Ultherapy. A4M Diplomate & Fellow.

Anne R Trussell MD

@SeiBellaLR
nrsk__'s profile picture. B^D

のりすけ

@nrsk__
SebastianM77237's profile picture. keyboardist for Bad Island Easter. Singer for The Rhythm Bullies. Ambassador for NF2 Bio Solutions. Writer at Tales From the Anti-Culture.

Sebastian Mogan

@SebastianM77237
YolsterC's profile picture. Flo-Grown☀️305➡️407 . wife, mom of 3, teacher ❤️ Mötley ,beer, tacos, tattoos , Roman Reigns, horror. Sarcastic, easily amused . IFBAP and ignore DMs #HorrorFam

Yöly C 🇺🇸✝️

@YolsterC
nf2biosolution1's profile picture. Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.

NF2 BioSolutions UK & Europe

@nf2biosolution1
GraceGregory_'s profile picture. Postdoc in Computational Biology • Investigating the tumour microenvironment of vestibular schwannoma and meningioma.

Grace Gregory

@GraceGregory_
brain_op's profile picture. Consultant Neurosurgeon | Professor | Skull Base | Pituitary | Brain @MCRSkullBase @GJBrainResearch @SNOMan_Lab

Omar Pathmanaban

@brain_op
aloktayi's profile picture. Building a community to find & fund treatments for rare diseases w/ @VibeBio Also: @biotech2050pod

Alok Tayi

@aloktayi
mamawadey's profile picture. Clinical Nurse Specialist #CNS for skull base tumours and conditions @MCRskullbase @MCCN_UK. Mum to 3 boys.

Andrea wadeson

@mamawadey
VibeBio's profile picture. Every cure for every community. Join us.

Vibe Bio

@VibeBio
Leia_N_MD's profile picture. Neuro-oncologist; Vice Chair of Academic Affairs; Director of Neuro-Oncology Fellowship @UCLANeurology #UCLABrainTumorCenter; NF and Schwannomatosis Clinic

PhiOanh "Leia" NghiemPhu, MD

@Leia_N_MD
ChildrensTumor's profile picture. The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.

Children's Tumor Fdn

@ChildrensTumor
OnceUponAGene's profile picture. Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

Effie Parks

@OnceUponAGene
Nf2UK's profile picture. Dog-eared advocates still hoping for a cure ..... general NF2 info: https://t.co/3GbobMCGk0

Nf2UK

@Nf2UK
GJBrainResearch's profile picture. The Geoffrey Jefferson Brain Research Centre (GJBRC) combines discovery science and experimental medicine to rapidly translate research into healthcare benefit

GJBrainResearch

@GJBrainResearch
facialpalsyuk's profile picture. Charity dedicated to supporting people affected by facial paralysis. We also provide resources for health professionals. #UniqueSmiles #FaceMyDay

Facial Palsy UK

@facialpalsyuk
rarediseaseday's profile picture. 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay

Rare Disease Day

@rarediseaseday
JNeurooncol's profile picture. The official twitter account for the Journal of Neuro-Oncology (JNO), the official journal of the AANS/CNS Section on Tumors

Journal of Neuro-Oncology

@JNeurooncol
RarePOV's profile picture. #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

Stephanie Fischer

@RarePOV
RareBeacon's profile picture. Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Beacon for Rare Diseases

@RareBeacon
SaritaEdwards's profile picture. Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth

Sarita Edwards

@SaritaEdwards
vlmerker's profile picture. Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.

Vanessa L. Merker, PhD

@vlmerker
GlobalGenes's profile picture. Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Global Genes

@GlobalGenes
NFBot2's profile picture. Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston

NF Bot

@NFBot2
direllac12's profile picture. Father & Grandfather (of 7), Civil Servant, Tinkerer, Civil Engineer #FightLogicalFallacies #ResistCognitiveBias #SupportTheConstitution #BelieveInLogic 🇺🇦

Mr. J 🇺🇦

@direllac12
RGibson2164's profile picture. (she/her) pediatrician & physician scientist @UNCpedsres 👶🧬 I MD/PhD @DukeMSTP 👩🏻‍⚕️ I Undergraduate @ColumbiaUniversity 🦁🎓

Rebecca Gibson, MD, PhD

@RGibson2164
rdii_org's profile picture. RDII is a non-profit organization focused on education, engagement and to equip the rare disease community

Rare Disease Innovations Institute

@rdii_org
OHRareDisease's profile picture. Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases

Oxford-Harrington Rare Disease Centre

@OHRareDisease
NamrataGRRaut's profile picture. ResearchFellow @JankowskiLab @CincyChildrens #endNF1 #epigenetics #SEMOalum #TWUalum NeuroscientistInProgress 📍#Nepal🇳🇵to 📍#USA🇺🇸 Views are mine

Namrata GR Raut (she/her)

@NamrataGRRaut
hopealbeit's profile picture. Neurosurgeon

Dr VKS Gautam

@hopealbeit
LittlestTumor's profile picture. Our mission is to increase understanding of Neurofibromatosis (NF), empower affected families, and advance research of preventative therapies.

Littlest Tumor

@LittlestTumor
ProfCantu's profile picture. Scientist. Teacher. Advocate for Persons with Disabilities ¡Con Ganas Todo Se Puede! 🇲🇽🇺🇸https://t.co/IgnujvgLRf

Jorge A Cantú

@ProfCantu
TweetyKrissy's profile picture. Deaf Art Therapist ❤️🧏‍♀️ 🤟🏻 Bunny mom 🐰 ♍️

Krissy

@TweetyKrissy
webster_rick's profile picture.

Rick Webster

@webster_rick
RaremindsUK's profile picture. Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…

Rareminds

@RaremindsUK
jblakel3's profile picture. Marjorie Bloomberg Tiven Professor of Neurofibromatosis; Johns Hopkins University

Jaishri Blakeley

@jblakel3
pumpikano's profile picture. chronicling the phenomenology of information superfluidity \ cto @transcriptabio — hyperscaled transcriptomics

Clayton Mellina

@pumpikano
HearingYourBest's profile picture. Leaders in #Audiological Care for #Hearing and Balance Disorders

Assoc. Audiologists

@HearingYourBest
KendallJD28's profile picture. Rare Disease Patient Advocate. Lets spread awareness for the OVER 7,000 RARE DISEASES and those they impact. Together we are strong. Lets change the world!!

Kendall Davis, MPH

@KendallJD28
DNS_UOM's profile picture. Official account for the Division of Neuroscience at the University of Manchester @FBMH_UoM @OfficialUoM

Division of Neuroscience

@DNS_UOM
NeuroAlliance's profile picture. People affected by neurological conditions still can’t get the healthcare they need. We need action now. Sign our open letter: https://t.co/b5h5bdfxtM

The Neurological Alliance

@NeuroAlliance
SJB1120's profile picture. PhD working to #EndNF | Ravenclaw | Dice Maker | TAZ fan | NADDPODer | 20 sides to every story | I had the time of my life fighting dragons with you 🫶🏻

Dr. Stephanie Joy Bouley | In my 🩵#EndNF💚 Era

@SJB1120
NFYIForum's profile picture. 📍Renaissance Baltimore Harborplace Hotel 🔜📅Submission deadline: Sept 8th Supported by independent educational grants from Alexion & SpringWorks Therapeutics.

Neurofibromatosis Young Investigators Forum

@NFYIForum
ICOMeningioma's profile picture. Dedicated to the study of meningiomas, the most common brain tumor in adults. Members from 30 institutions across 4 continents and counting.

International Consortium on Meningiomas (ICOM)

@ICOMeningioma
LelaFinkbeiner's profile picture. sie/ihr, Lehrbeauftragte, Deutsche Gebärdensprache, Autorin, internationale Familiengeschichte, Nf2, Master-Studium KriDiCo, hier privat unterwegs

Lela Finkbeiner

@LelaFinkbeiner
NF2pointofview's profile picture. Angel Lauren Wall, 24. Raising awareness by sharing my journey with NF2. All opinions are my own.

@An_NF2_point_of_view

@NF2pointofview
amyversuslife's profile picture. Life with a disability a small business and a big heart #NF2 alchemybyamyuk@outlook.com #disabled #chronicillness #cleanliving🌸 👯‍♀️ @shopnaughtee

Amy

@amyversuslife
RareDiseaseDDx's profile picture. Select symptoms in free RareLook™ to see matching rare diseases. Share with physician, who gets free RareMDx™ to refine and generate a DDx.

Undiagnosed?

@RareDiseaseDDx
DrAMansouri's profile picture. Neurosurgeon, Scientist. Entrepreneur. Focused on clinical trials for brain cancer and ways to simplify the process for patients. Opinions my own

Alireza Mansouri

@DrAMansouri
KasherLab's profile picture. Zebrafish lab in University of Manchester with interests in stroke, neuroinflammation, genetics and neurological disease

KasherLab

@KasherLab
BeccaNortheast's profile picture. Senior Product Manager for https://t.co/x1Hb41O8Oh. Strong love for all things neuroscience. Excited by reproducible and ethical science.

Rebecca Northeast

@BeccaNortheast
choyle22's profile picture. Postdoc at the University of Manchester researching inflammasomes

Chris Hoyle

@choyle22
drjackpgreen's profile picture. Presidential Fellow at the University of Manchester. Researching inflammasomes and molecular mechanisms of inflammation

Jack Green

@drjackpgreen
LabDabdoub's profile picture. Inner Ear Regenerative Medicine Lab for future treatment of hearing loss and balance disorders @Sunnybrook @UofT PI: Alain Dabdoub

Dabdoub Lab

@LabDabdoub
Daisy_Flatman's profile picture. She/Her 🌼 @theBHF PhD student 🫀 @BIG_research group 🧠 Investigating ECM defects in cerebrovascular disease 🐟

Daisy Flatman

@Daisy_Flatman
Smokes4harris's profile picture. NF1 - NFYA Program Coordinator - Certified Medical Assistant

Tyler

@Smokes4harris
BrianNahed's profile picture. Neurosurgeon, Brain Tumor Surgeon, Physician-Scientist, Program Director, Migliaro Endowed Scholar, Digital Biomarkers for Health, Innovation in Healthcare,

Brian Nahed MD MSC FCNS FAANS FACS

@BrianNahed
neurofibroma_uk's profile picture. neurofibromatosis suffers worldwide

neurofibromatosis uk

@neurofibroma_uk
Sagebio's profile picture. Better Science Together | We are driving a new age of discovery through truly open science and radical collaboration.

Sage Bionetworks

@Sagebio
psuextension's profile picture. Penn State Extension connects you with scientists and educators to solve real-world challenges and improve quality of life. Learn when, where and how you want.

Penn State Extension

@psuextension
ALAS_lips's profile picture. Professional membership association supporting lipspeakers who work with deaf people who lipread with signed vocabulary to support + CPD

Association of Lipspeakers with Additional Sign

@ALAS_lips
SunderlandDiane's profile picture. Just a Mum trying to raise awareness of Neurofibromatosis for a better outcome for her daughter. We love and need our NHS 🌈

Diane Sunderland

@SunderlandDiane
MedicsForRare's profile picture. This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare

MedicsforRareDisease

@MedicsForRare
KianSaville's profile picture. #TeamSpeedo Athlete/Public Speaker British Para-International Qualifier “Swimming is my life, deal with it!!”

Kian Saville

@KianSaville
RickUke's profile picture. NF1 (illness). Amputee (34 years). Musician/Singer with Andrea Michele and The Uke Men. The Tour to End All Tours Tour (That didn't actually tour.)

Richie Von Reck

@RickUke
DNA2c's profile picture. Connecting capital to research to cure disease Love biotech-hate cancer. I build Startups. Dogs & Scientists rock!

Chris Conley

@DNA2c
Context_Tx's profile picture. Advancing T Cell Engagers for Solid Tumors

Context Therapeutics

@Context_Tx
OwningMyStory's profile picture. Rare Disease Advocate | Classical Ehlers-Danlos Syndrome | Adaptive Sports Enthusiast | Collector of Quotes | Occasional Superhero | she/they

Abbey Hauser

@OwningMyStory
SaghiraMSharif's profile picture. PhD, Principal Genetic Counsellor | Prenatal Genetics | Passionate for enhancing equality, diversity and inclusion in Genomics🧬

Dr Saghira Malik Sharif

@SaghiraMSharif
thednadoc's profile picture. Dr Tazeen Ashraf 🧬Clinical Geneticist 🩺Ex-Paediatrician 👩‍👦‍👦Mother 🗯Health | Wellbeing | Genomics | Rare Diseases 🚫 No personal medical advice

Taz Ashraf

@thednadoc
DeannaPortero's profile picture. Can we scale access to ultrarare therapies in a rapid, efficient, sustainable & equitable way? VP, Partnerships & Innovation at Orphan Therapeutics Accelerator

Deanna Portero

@DeannaPortero

United States Tendências

Talvez você curta

Something went wrong.


Something went wrong.