Optical Jukebox
@OpticalJukebox
Bringing real people's stories to light... documentary film and photography that changes lives. Working with health, research, communities and charities.
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Against a central London skyline: the extraordinary #BreatheforElla by Dryden Goodwin, who created 1300 individual drawings for this tribute. In memory of @EllaRobertaFdn and in support of #EllasLaw. #cleanairforall
Clean air is a human right. Last night, hundreds gathered on the South Bank to see the unveiling of Dryden Goodwin’s #BreatheforElla, honour Ella’s memory @EllaRobertaFdn & galvanise support for #EllasLaw. Incredibly moving evening. On for 2 more nights @Rambertdance
We are currently making a short film to promote 'Gastrostomy tube - Is it for me?' If you have MND, have used the decision aid and might be interested in taking part, please get in touch asap. We would come to you to film @mndassoc
Excited to announce the launch of the 'Gastrostomy tube - Is it for me?' decision aid on the MND Association website. This decision aid was developed as part of the DiAMoND study. mndassociation.org/diamond-patien….
Our @starworks_cp child prosthetics programme have produced a wonderful video, highlighting the approach taken, showcasing the individual projects and spotlighting our children and young people ambassadors that make the whole programme come together - devicesfordignity.org.uk/2022/06/june-2…
We’re very proud to have worked with you all to produce this film. Such a great project to have been part of!
Our @starworks_cp child prosthetics programme have produced a wonderful video, highlighting the approach taken, showcasing the individual projects and spotlighting our children and young people ambassadors that make the whole programme come together - devicesfordignity.org.uk/2022/06/june-2…
Are you a #careworker? Could you help @NeurocareK test a new learning resource for care workers who support people with #neurologicalconditions ? Find out more at youtu.be/6d56_aPn-60 or take a look at tinyurl.com/56bwh2kc
Hello #careworkers👋 could you help test our new learning platform? We'd like your honest feedback - shopping vouchers given to all testers! Find out more in our film youtu.be/6d56_aPn-60 @exemplarhc @HC_One @FourSeasonsHCUK @RightatHomeUK @AlliedCare @UfiTrust @HCareInsight
youtube.com
YouTube
Neurocare KnowHow Testing Opportunity
Hello #careworkers👋 could you help test our new learning platform? We'd like your honest feedback - shopping vouchers given to all testers! Find out more in our film youtu.be/6d56_aPn-60 @exemplarhc @HC_One @FourSeasonsHCUK @RightatHomeUK @AlliedCare @UfiTrust @HCareInsight
youtube.com
YouTube
Neurocare KnowHow Testing Opportunity
We have co-created Neurocare Knowhow for #careworkers👋 to help support the care of people living with neurological conditions in the community and in care homes. Please help us make it better. Find out more in our film youtu.be/6d56_aPn-60 @NeuroAlliance
youtube.com
YouTube
Neurocare KnowHow Testing Opportunity
Proof that co-design during Covid can be done! Great article by @helloammba on our recent co-design workshops for the Neurocare Knowhow resource.
Here's something we wrote about the challenges of delivering online workshops and the excellent participation by our co-design group for @NeurocareK a project supported by @UfiTrust bit.ly/338EFvN @OpticalJukebox @Devices4Dignity @profcjmcdermott #MND #Neurology #MS
We are calling on the Government to define people with #MND as being extremely vulnerable as a matter of urgency. If you have MND, we recommend that you register as extremely vulnerable at gov.uk/coronavirus-ex…. This may help you get the best possible support! #Coronavirus
Find out more about #myBreathing, a fantastic website to enable people living with #MND to understand more about #breathing support, #NIV and #ventilation bit.ly/2Ilb8E6 @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @designbyglass @OpticalJukebox
You can find brand new #myBreathing + #myTube via #myMND Info resources to support care choices in #MND #ALS Created w/ @neuroshef @NWVU_MFT @SYMNDA @MNDManchester @mndassoc @helloammba @designbyglass mymnd.org.uk
Have you seen the #myBreathing website? It's brand new. It aims to support people living with motor neurone disease on choices they can make about their breathing support. The project was part funded by our @SYMNDA and @MNDManchester Branches. Visit > mybreathing.mymnd.org.uk!
A fantastic addition to the ‘myMND’ information resources. Developed in collaboration with people living with MND, helping inform about the option to start non-invasive ventilation (NIV). Check it out and share far and wide @mndassoc @SYMNDA mybreathing.mymnd.org.uk
mybreathing.mymnd.org.uk
Home - myBreathing
If you missed this great news last Friday, check it out! We were very proud to help fund some of this work, and also have our branch play a part in the feedback to inform the final version! Thanks to @profcjmcdermott and @cathy_soreny for their engagement with us all.
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk
mybreathing.mymnd.org.uk
Home - myBreathing
Delighted to see this launched today, really pleased our @MNDManchester branch helped a little towards its funding. Was a pleasure to meet with @cathy_soreny and thanks to her and @profcjmcdermott who engaged our branch during the process. Some great work, with our local touch!
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk
mybreathing.mymnd.org.uk
Home - myBreathing
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