Jenny
@Rexie10
Just a t-shirt and jeans kinda girl. SC born and raised.
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.@US_FDA has approved tezacaftor/ivacaftor (Symdeko) for children between the ages of 6 – 11 with two copies of the F508del mutation or a single copy of one of 26 specified mutations. #CFresearch on.cff.org/2WVKEOH
We couldn't have gotten to where we are today without you! Help us move closer to a cure for #cysticfibrosis, and learn how you can get involved today. on.cff.org/volunteer
Ready to get involved, but not sure where to get started? Show support for your friend or loved one living with #cysticfibrosis by getting involved with a fundraising program near you! on.cff.org/2Irscbt
Newborn screening is critical for diagnosing babies born with CF and connecting them with the high-quality care they need to thrive. Act now and tell your member of Congress to support the Newborn Screening Saves Lives Reauthorization Act. #CFadvocacy act.cff.org/PHElwJo
The term #65Roses has been used by kids of all ages to describe #cysticfibrosis. But, making it easier to say doesn't make CF easier to live with. On 65 Roses Day, you can help change that by joining the 65 Roses Club. 🌹 on.cff.org/65RosesClub
One of my favorite shows is returning!!!
Cystic Fibrosis Awareness Month may be coming to a close, but you can still help raise #CFawareness all year long! Learn about all the different ways to get involved and help move us closer to a cure for CF. on.cff.org/2QKECyZ
Help us take our search for a cure for #cysticfibrosis to new heights! Register for a #CFclimb near you today. ➡️ on.cff.org/2QnorY6
To have #cysticfibrosis, you must inherit two copies of the CFTR gene that contain mutations--one copy from each parent. That means that each parent must either have CF or be a carrier of a CFTR gene mutation. #CFawareness
Your calls, texts, and tweets make a difference! Because of the CF community's tireless efforts, the House of Representatives voted to pass H.R. 986 to protect the availability of affordable care for people with #cysticfibrosis. Thank YOU for continuing to advocate. #CFadvocacy
Scientists have identified a new cousin of the T. rex that reached only the 3-foot height of a toddler. latimes.com/science/la-sci…
One month from today, we'll celebrate #65Roses Day (6/5)! Learn more about the history behind the term, and stay tuned to see how you can get involved. 🌹 on.cff.org/2UXgKZb
I'm not sure what I walked into, but it can't be good. #toysrus… instagram.com/p/BLnIhUBADVGt…
Rockin' the Thomas conductor hat. #workfun #comeonletsplay… instagram.com/p/BLC9ARvg8pxs…
So this is happening. #nutella #animalcrackers #midnightsnack… instagram.com/p/BKpPCzsA94xT…
Welcome to the #JurassicWorldPremiere! Follow the action on Twitter, Periscope, & Instagram! #TheParkIsOpen
Just witnessed a fight between @Zaxbys employees in the parking lot. The manager was trying to break it up. #unprofessional
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